posted
So I was thinking after having been denied access to my Lyme doctor and hearing over and over and over again, "Oh you're sick...with what? Isn't that the joint issue? that's no big deal!" There needs to be an awareness day or something.
I'm sure there has been things like this done before, but it needs to happen again.
I dont care how much work it takes, I've organized events before and would have no problem heading up an event like this, but I was thinking about how last year there was a Global Day for Darfur event held on the DC mall.
I want to there to be Lyme Disease Awareness Day held at the Washington Mall...this year!
Who's with me? 5 or 5,000 people, I will start this rolling either way.
Posts: 44 | From Maryland | Registered: Jul 2008
| IP: Logged |
bettyg
Unregistered
posted
may 13 it international day for fibro/chronic fatigue/lyme !!
IP: Logged |
posted
Organizing at the time of the IDSA public hearing (its in DC) in April I think would make sense too. Or just do a large demonstration at the hearing.
Posts: 30 | From DC | Registered: Oct 2008
| IP: Logged |
posted
Count me in. 95% to the good since treatment, but the train has left the station and my LLMD is laying on the tracks
Posts: 108 | From maryland | Registered: Sep 2007
| IP: Logged |
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Let's march! Count me in. We need lots of people!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
| IP: Logged |
posted
yay! Alright, I'm thinking the may 13th awareness day thing might be a good plan...
I have been talking to someone who sets up venues in DC and he is going to help with getting permits and setting up staging areas, as well as getting other people to help with the whole construction side of things.
Yay! Awareness day here we come!
Posts: 44 | From Maryland | Registered: Jul 2008
| IP: Logged |
posted
Tie it in to May Lyme Disease awareness month, which is now recognized by all levels of gov't - federal, state, local...
Posts: 13117 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
Let him...Some peope will still see it before it gets moved. I really wish there was a way to get more people over here, but the fact of the matter is people don't come here, so they aren't even seeing the information.
It's funny though it you add "medicine" somewhere to the post or title you can put it over there.
Not sure if any else has noticed this. So play along put "let's march for medicine", and then it can stay...
Most of us are fighting to get the medicine we need! Don't worry though the actually march can be about awareness...LOL sorry about my sarcasm...Just feeling fresh!
But on a more serious note,I think if it is helping us all and in the best interest of the Lyme community as a whole, it should be able to be posted anywhere on here. So long as it raises more awareness. I hate to see us get hung up on techincalities and miss out on valuable information because of it.
Ann
-------------------- If you keep doing nothing...nothing changes!
posted
YES!!! Count me in and I will be more than happy to help anyone with rides. I love me a road trip especially for this!!! I can hold 4 people possibly 5 in my car. Let me know details ASAP so I can make arrangments.
WAHOOOOOO!!!
Posts: 171 | From the land of oz | Registered: Feb 2009
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
sounds good........lets do it
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
So, are we planning on going to Washington in May? If so, I am definitly in. I am going to cancel my Keys vacation and go to Washington for that weekend!
Please let me know so I can go ahead and book my flight. Anyone else in? I would love to meet you all!
Posts: 171 | From the land of oz | Registered: Feb 2009
| IP: Logged |
posted
Thats cool Miranda, let me know if I can do anything to help.
So, since I am new to all this? Do you set up a booth or something or can you just march around like the things I seen back in the 70's and stuff? Like on Forest Gump?
LMAO, I am silly!
Posts: 171 | From the land of oz | Registered: Feb 2009
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
My step daughter lives there. Last time I was there, people marched right in front of the capital building. If I feel up to it at all, I am in.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
No one loves a protest more than ME!
A few ideas and thoughts.. helpful I hope. Somethings to think about... and you may have already thought about them or done them.
You might want to be sure other groups in the tri-state area and beyond (PA, NJ, MD, VA, DC, DE, WV, CT, etc- and Lyme Rights and national organizations too) aren't planning something that would conflict with your plans.... or take away from theirs.
In my opinion, it is always best to contact organizations who care about Lyme in advance of your planned event so your efforts and theirs aren't diminished in any way.
Try to work together when ever possible because manpower and money is short in supply.
Keep in mind that the LDA/ILADS Conference this year will be just outside of DC in October.
Keep in mind the IDSA duckquarters building is right outside of DC.
Consider your intended audience and goal.
The President signed on to cosponsor the bill last year, so he knows. 116 Congressman signed on to cosponsor the bill too and many more support it, so they know.
Will Congress be in session then or not?
Are there other protests, plans or events that time of year that will overshadow your event?
Are there any you could join in with to save yourselves time and effort?
Will tourists from Japan, Australia, etc who come to see Archie Bunker's chair at the Smithsonian in the DC mall be able to help you... care about you and your cause.. OR..
Would you like to focus your money, time and energy where it might do more good?
Do you have bathroom access for all?
Money for security deposits and set-up?
Wheelchairs for those who can't walk from the closest parking garages or spaces?
Water and food?
An inside place for inclement weather?
Trained EMT's or ambulance access close by for folks who WILL be overcome by the weather/smells/crowds/noise?
All the necessary permits?
And last for now...
Did you order hand engraved invitations to send to the IDSA?
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
![[lol]](graemlins/lol.gif)
Printer-friendly view of this topic