LymeNet Flash: beward of student's LYME MAP; IDSA associated by woods foundation

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Activism » beward of student's LYME MAP; IDSA associated by woods foundation

UBBFriend: Email this page to someone!

Author

Topic: beward of student's LYME MAP; IDSA associated by woods foundation

bettyg
Unregistered

posted

hi all,

i received the below in my email today and wanted others to be aware of it.

it's about a student wanting to make a LYME NATIONWIDE MAP of where folks are and their brief story.

but if you start going thru the various pages, you'll discover what i did as i have stated before.

just a heads-up on this project ... bg
********************************

Hey LYME support buddies: go to this site and put ur case up maybe we will be recognized as the epidemic we know this is:

http://sites.google.com/site/LYMEDISEASEMAPproject/home

It's a map and you can add your story to your town. Really simple.

*********************

hi there; this looks good until you startr reading the site;

*sponsorsed by robert wood foundation; tincup posted alot lately in activism about him & how he's NOT helped us chronic lyme folks;

*links show idsa guidelines only!! not anything about ILADS guidelines. [tsk]

**************************************

*so sorry, this is one i won't forward on; idsa manipulates things to their advantage! but thx anyway.

*bettyg, iowa activist

IP: Logged |

Cold Feet
LymeNet Contributor
Member # 9882

posted

Betty, TinCup;

Did you mean this project is funded by this group: http://www.rwjf.org/

Wait, just found it:

About the Young Epidemiology Scholar Program: This program encourages high school students from across the United States to learn about the science of epidemiology and careers in public health. The program is run by the College Board and sponsored by the Robert Wood Johnson Foundation.

--------------------
My biofilm film: www.whyamistillsick.com
2004 Mycoplasma Pneumonia
2006 Positive after 2 years of hell
2006-08 Marshall Protocol. Killed many bug species
2009 - Beating candida, doing better
Lahey Clinic in Mass: what a racquet!

Posts: 830 | From Mass. | Registered: Aug 2006 | IP: Logged |

Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

posted

Why don't you delete the post rather than giving the
robert wood foundation any exposure at all?

Posts: 5191 | From Lyme Zone | Registered: Jan 2009 | IP: Logged |

bettyg
Unregistered

posted

so you read the same as me .... good.

IP: Logged |

bettyg
Unregistered

posted

NO abx.
*******

i want members to know about this and look into WHO is doing and providing funding/sponsorship for this survey BEFORE they send in their info.

many others folks received this survey from 1 of our members in our regular email.

IP: Logged |

Pinelady
Frequent Contributor (5K+ posts)
Member # 18524

posted

Around here we call that a snake in the wood pile.
MORE DETAILS ABOUT PROPOSED CENTER

This effort is spear-headed by CFS advocate, Kenneth Friedman, PhD, UMDNJ, and a Florida-based "neuro-endocrine immune" support group, P.A.N.D.O.R.A., for which he is Director of Public Policy.

The Center will be located at the University of Medicine & Dentistry of New Jersey, home to both Mr. Friedman and Robert Wood Johnson Medical School.

We are concerned that Robert Wood Johnson Medical School (deeply involved in the Lyme vaccine clinical trials & was home to someone acknowledged in the IDSA Guidelines) has published numerous articles strongly discounting the notion that chronic Lyme disease symptoms remain after standard IDSA treatment.

If symptoms remain, they are either considered by them to be psychiatric in nature or a result of autoimmune disorders, such as fibromyalgia and chronic fatigue syndrome.

At the recent IDSA Lyme Guidelines Review Panel hearing, it was reported that, "these syndromes have more in common than their apparent differences would suggest and may be best considered under the rubric of a Functional or more accurately, Dysfunctional, Somatic Syndrome."
http://flash.lymenet.org/ubb/ultimatebb.php/topic/8/2099

[ 10-19-2009, 11:03 AM: Message edited by: Pinelady ]

--------------------
Suspected Lyme 07 Test neg One band migrating in IgG region
unable to identify.Igenex Jan.09IFA titer 1:40 IND
IgM neg pos
31 +++ 34 IND 39 IND 41 IND 83-93 +
DX:Neuroborreliosis

Posts: 5850 | From Kentucky | Registered: Dec 2008 | IP: Logged |

bettyg
Unregistered

posted

pinelady, thx for update for those who may have not read the other link ...

IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/