It struck me that it would be better to frame the issue, while more accurately describing it, if we described chronic Lyme always with the word "infection" in the name.
This would more accurately reflect the prevailing science behind this condition and force the debate to focus better on the relevant issue. This would help out cause.
I encourage everyone to start to always use it!!
Thoughts??
Posts: 360 | From Massachusetts | Registered: Dec 2012
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
That's a great idea.
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I like it. A Lot! It took a good while for me & others to remember to say "Chronic" Lyme in our speeches and writings and I remember the day we started doing that. I think it caught on!
But yes, you are right. Chronic Lyme Infection does sound nice. Way to go Bob!
posted
Thanks for ringing endorsements all!! Surprised that there are not more comments, even from those who might not agree.
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It's true that if others hear "infection" it might give "lyme" more validation.
"Chronic Neuroborreliosis" seems the best term, in my book. I would take "lyme" out of it, totally. And there are medical articles by that term. It covers a lot of bases.
But then other tick-borne and other stealth infections can be chronic, too.
Some LLMDs say "Lyme Complex" not just because it so often includes other infections but also affects so many body systems and organs. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Hi Keebler. Good points. I was looking for a term that covers everything and one the public can remember, while pointing to and framing the issue around the best current scientific explanation for the root cause.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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posted
I saw on another thread that Persistent may be better than Chronic. I agree. Chronic connotes medically that there is nothing that can be done about it, but the medical definition for Persistent is not nearly as permanent. THus, I am going to start using "Persistent Lyme Infection" or "Persistent Lyme Disease Infection" in all my future communications.
The key is always have Persistent with the word Infection. This puts non-believers automatically on the defensive and is scientifically more accurate since it fits best with the scientific data to date and clinical experience.
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