Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
LymeNet members have always been a force to reckon with when it comes to educating others about Lyme disease during the month of May. They have have doing a wonderful job indeed!
I am starting this post as a place to come for ideas and also a place where you can share what you've done to promote awareness.
There is even a section for those who- "Only Have a Few Minutes to Spare Or Can't Get Out Much" located on the Ideas Page.
posted
Yes! Just simply tell everyone you meet! I'm doing a pretty good job of that myself and people are asking me a lot of questions because they're hearing about it more now, thanks to more news publicity.
[ 04-30-2014, 06:25 PM: Message edited by: Robin123 ]
Posts: 13117 | From San Francisco | Registered: May 2006
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
Thx for the reminder. I am planning on posting info May 1 on my FB page.
But I talk about it all the time anyway to anyone with ears.
And now with the woohoo news from the CDC that LD is under-reported, LD is on the map and in the news. But as I've been telling ppl, this is prep for mass marketing of the brand spanking new LD vaccine which I've told my friends and family to avoid like the plague.
Guess we have to take the good with the bad.
Posts: 1885 | From here | Registered: Jul 2012
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I do believe Robin5937593 is the "go-to" person in her area for Lyme info, a never-ending wealth of information! Amazing she is, simply amazing! I hear of her hard work clear out here on the moon!
Beaches- love that you are one of the techy people who uses facebook and other media that some of the older volunteers don't use. (Not me, of course, I mean the other old advocates- HA!)
And you hit the nail on the head with the CDC promo for the vaccine. This is what happened before the release of the LymeRix vaccine to try to scare people into getting the vaccine. Sad our government can be so slimy and self-serving.
Many thanks for all you do, beaches! Keep on chatting it up. Like I could stop you, I can't!
posted
Thx, Ms TC - I do work hard at it! Hope there's no ticks yet on the moon...
Posts: 13117 | From San Francisco | Registered: May 2006
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beaches
Frequent Contributor (1K+ posts)
Member # 38251
posted
TC your first link does not work!
Posts: 1885 | From here | Registered: Jul 2012
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Know what today is? May 1, 2008- an anniversary!
Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I find that regularly sharing accurate info/websites on facebook helps a lot.
I get frequent private messages asking me questions about tick bites, Lyme, etc.
I think it helps to approach posting some information from the standpoint of "chronic symptoms" or "chronic illness" or naming specific symptoms such as fatigue, sleep problems, pain, neurological problems, etc.
That can get people's attention who would not otherwise look at the info because they think Lyme disease does not apply to them.
I also keep copies of a handout I made (on lime green paper). It lists a lot of websites like lymedisease.org, ilads.org, Dr B's "Advanced Topics in Lyme Disease", lymepa.org, "Under Our Skin" free on hulu, and others, with a very basic description of what is in each link.
When I run into someone talking about tick bites, Lyme, etc at the soccer field, baseball field, grocery store, etc, I can give them a copy of my lime green handout.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I posted this on a Fibromyalgia/Chronic Fatigue Syndrome site that I am on. If anyone wants to copy and paste it to use for Lyme Awareness, feel free:
May is Lyme Disease Awareness Month! Chronic Fatigue, Pain, Etc Could Be Tick-Borne Infections!
For Lyme Disease Awareness Month I am posting links to very good and helpful information about tick-borne diseases/infections. This includes info about Lyme, Bartonella, Babesia, and other infections.
If we find and treat the root causes of our symptoms, we have a much better chance of recovery.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
You're welcome, Robin and Tincup.
Please do share the post/info any way you can!
(I just noticed that I had forgotten one of the links, so I just edited to add it.)
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Thanks again. I needed the Advanced Lab info to add to websites, so appreciate the easy find.
Now trying to get the computer to play the videos. Not much luck with that, but will try!
posted
Good one Bob Posts: 31 | From Davis, CA | Registered: Oct 2013
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
I would not want the CDC to post anything about Lyme awareness because it would not be accurate, but the general public would believe it.
I think it's better for them to be silent until they can teach the truth.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
And those of you playing with the CDC by reporting your own case, please read this.
The case reports are used, illegally, to go after doctors. I would not send your info to the CDC. They won't do anything but laugh at you or cause you and/or your doc problems.
This action is not a good idea, in my opinion.
Make the public aware. The CDC already knows it all, and will not change.
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
I've been telling everyone I meet in my neighbourhood (with a dog), that the ticks are a plenty already.
Having this little dog is great. When at the dog park, I bring up the ticks I've found already this year. He is such an easy going guy, I demo tick checks on him! He thinks it's a game! Haha!
It's a great conversation opener and more times than not leads into tick check conversations on people AND dogs, and also tick repellent for people and dogs.
People often care more about their dogs than themselves-this is a good way for me to get tick checks into the forefront of their brain.
Dogs in a big city are ways for people to strike up conversation. Any dog owner is an instant friend!
So for any folks shy about bringing up lyme, use your dog or outdoor cat to get the word out
Especially if you're a regular in your dog park, parks or walking your dog, people will remember you (or your dog) if they have any questions.
Plus it helps my dogs gear is all lyme green Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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