posted
Begin forwarded message from Bruce Fries of the Mayday project:
Resent-From: <[email protected]> From: "Bruce Alan Fries" <[email protected]> Date: October 16, 2015 1:19:54 PM EDT Subject: Article and Petition That Exposes Violations of Federal Laws by CDC and NIH Officials
Dear friends, neighbors and associates,
Here’s a link to an article I wrote that exposes flagrant violations of the law by CDC and NIH officials responsible for federal policy on Lyme disease, along with a link to a related petition.
This is a very serious issue that affects every American. Even if you don’t have Lyme disease, you probably know someone who does, and as a taxpayer you are affected by the enormous cost to our economy that are exacerbated by CDC’s actions and omissions that are causing suffering, disability, and occasionally death for thousands of patients with chronic Lyme disease.
Following is a summary of the key points of the article and petition:
· CDC’s preferential treatment violates the law that governs the conduct of employees of the Executive Branch. · Participation of CDC and NIH officials in clandestine advisory meetings violates the Federal Advisory Committee Act. · CDC’s actions and omissions harm patients who are denied access to medically-necessary treatment options that could help them regain their health.
The petition follows best practices established by Ralph Nader’s Public Citizen advocacy group. This type of petition is a legal instrument and CDC will be compelled to respond in a timely manner.
Please take the time to read the article and sign the petition that calls for an end to CDC’s preferential treatment of the Infectious Diseases Society of America.
posted
This petition is a great idea and with the recent acceptance of the ILADS guidelines to the National Guidelines Clearinghouse, the timing is perfect.
Advocacy idea, have your local group support this effort and send a letter with your support to your local news outlets.
From Bruce Fries of the Mayday Project, "This petition follows best practices established by Ralph Nader’s Public Citizen advocacy group. It is a legal instrument, filed in accordance with the Administrative Procedure Act. CDC is required by law to respond in a timely manner. Copies were sent Wednesday, October 14 via certified mail to top officials at CDC and HHS."
Petition to End Preferential Treatment of the IDSA Guidelines for Lyme Disease
"CDC Lyme Group Violates Law with Preferential Treatment of IDSA," Advocates Say
ATLANTA, Oct. 21, 2015 /PRNewswire/ -- The Centers for Disease and Control Prevention (CDC) group responsible for policy on Lyme disease violates federal law by extending preferential treatment to the Infectious Diseases Society of America (IDSA) says a petition created by a group of Lyme patient advocates. The petition to End Preferential Treatment of the IDSA Guidelines for Lyme Disease was filed with the CDC's Bacterial Diseases Branch on Wednesday, October 14.
The petitioners are exercising their First Amendment right to petition the government for "a redress of grievances," along with a more specific right added by the Administrative Procedure Act, which provides "interested persons" with the "right to petition for the issuance, amendment, or repeal of a rule."
The petitioners claim that "because of restrictions imposed by the critically flawed IDSA guidelines promoted by CDC, thousands of chronically ill patients are harmed by misdiagnosis and denial of medically necessary treatment. CDC's failure to provide equivalent exposure for more recent guidelines from the International Lyme and Associated Diseases Society (ILADS) compounds the harm by omitting information about evidence-based treatments that could help these severely ill patients recover from this devastating disease."
In addition, these advocates want to know, "Why does the CDC, a public agency tasked with protecting the health of US taxpayers, promulgate the IDSA guidelines as policy, particularly when it can be demonstrated that the guidelines authors disallow, ignore, or reject a very large body of scientific evidence that contradicts their narrow view of the this disease?"
A related article, Why is the CDC Allowing a Private Group to Determine Federal Policy on Lyme Disease?, by Bruce Fries of the Mayday Project, documents what advocates claim are flagrant violations of federal law by CDC and NIH officials responsible for policy on Lyme disease.
According to the article:
"CDC has been breaking the law for more than a decade by providing preferential treatment to the Infectious Diseases Society of America and promoting the critically flawed IDSA guidelines for Lyme disease, which are nine years out of date and non compliant with federal standards, while omitting information about competing guidelines from ILADS that are compliant with current standards and contain details about treatments that could help thousands of chronically ill patients regain their health."
CDC's rule regarding the IDSA guidelines is published in the following statement on the CDC website, in answer to the question: "Why does CDC only link to one set of treatment guidelines?"
"CDC believes that the Infectious Diseases Society of America (IDSA) guidelines currently represent the best available synthesis of the medical literature on the diagnosis and treatment of Lyme disease. The IDSA, with input from CDC experts and other doctors, has developed and published Lyme disease treatment guidelines."
The ad hoc group of Lyme patient advocates who collaborated to produce the petition wants to know: "How can these outdated, critically flawed guidelines represent the best available synthesis of the medical literature?"
The petitioners claim CDC's preferential treatment of IDSA violates the Standards of Ethical Conduct for Employees of the Executive-Branch, which states:
"Employees shall act impartially and not give preferential treatment to any private organization or individual."
The IDSA guidelines are up for revision, and the health of thousands of Lyme patients depends on IDSA getting it right. Advocates are gravely concerned that given CDC and IDSA's track record history will be repeated and untold numbers of Lyme patients will continue to suffer unnecessarily.
Contact Information: Susan Harris Media Relations TeamCom 301-545-0808 [email protected]
This release was issued through WebWire(R). For more information, visit http://www.webwire.com.
SOURCE The Mayday Project
-------------------- KarlaL Posts: 694 | From New Lebanon, NY | Registered: Dec 2010
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posted
Excellent articles. The secret meetings are incredibly shocking--and some of the attendees listed are actually employed by Alphabet agencies and the Epidemic Intelligence Service, which is an informal branch of the CIA:
"Attendees included IDSA guidelines panelists Mario E. Aguero-Rosenfeld, Paul G. Auwaerter, Johan S. Bakken, Linda K. Bockenstedt, Raymond J. Dattwyler, J. Stephen Dumler, Durland Fish, John J. Halperin, Mark S. Kempler, Peter J. Krause, Robert B. Nadelman, Eugene D. Shapiro, Sunil K. Sood, Gerold Stanek, Allen C. Steere, Franc Strle, and CDC employees Barbara J.B. Johnson and Paul S. Mead.According to Johnson: the Ad Hoc group, "which subsequently added two members of the NIH, Drs. Philip Baker and Edward McSweegan, to its membership ranks."
I'm sure the above are being paid handsomely for their deception and coverup work --- at taxpayer expense.
Yes, folks--- this "controversy" is basically just another government cover up, which the mainstream media actively supports.
I pray that this whole thing will be completely exposed, and the perpetrators legally punished..
Everyone should sign the petition. Thanks.
Posts: 696 | From New York | Registered: Aug 2006
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