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I finally got around to entering my kid's Lyme data at MyLymeData, a project of LymeDisease.org to gather and use Big Data via Lyme researchers.
It was quick - just registration and 2 short parts to the survey. You can enter for yourself or another with their permission or for your kids.
You register, enter your data and help further Lyme/tick disease research. It's anonymous and you can withdraw if you ever change your mind. https://www.lymedisease.org/mylymedata/ to register. Thanks for considering it!
-------------------- Parent of teen with late stage Lyme, mycoplasma, bartonella and babesia. Dx Nov '15, in remission early to mid '18.
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Thanks for your participation! The more people who register, the more valuable the data is.
Results from thousands of patients lets us see patterns. In contrast, the largest NIH study had something like 67 patients in it--not enough to be statistically significant.
Posts: 991 | From California | Registered: Feb 2006
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