posted
I want to start by saying thank you to all who went. BUT - does anyone think this will change these ridiculous guidelines or force anyone from the idsa to do anything?
...
Posts: 10 | From stamford ct | Registered: Mar 2006
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
YES!!!!!!!!!
KEEP THE BALL ROLLING...DO YOUR PART.
GO THRU ACTIVISM AND MEDICAL...THERE ARE LOTS OF SUGGESTIONS ON WHAT YOU CAN DO RIGHT NOW FROM HOME
I STILL WISH SOMEONE HAD TIME TO ORGANIZE THESE "THINGS" THAT EVERYONE CAN STILL DO. I JUST CAN'T RIGHT NOW. AND MANY OF THE ONES THAT USUALLY DO STUFF LIKE THAT ARE WRITING ARTICLES AND CONTACTING PRESS TO:
KEEP THE BALL ROLLING...PLEASE DO YOUR PART AND HELP
THE CONNECTICUT AND PENNSYLVANIA AND NEW YORK POLITICIANS ARE INVOLVED...(probably others too)THE LLMDS ARE INVOLVED...MANY LYME ADVOCATES ARE INVOLVED...
THIS IS NOT OVER...DO WHATEVER YOU CAN TO HELP.
THANKS.
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
well, YES, of course.
But only if the pressure is intense and continuous and focused like a laser on what matters.
it is sometimes difficult to see progress being made when you are on the side that doesn't hold the most cards to begin with. but progress is definitely being made.
do you think you'd like to become actively involved too?
you might be surprised how GOOD it feels to be out there making a difference, instead of having much of your life consumed by the day to day of living with TBD.
I really think getting and staying active at least on some of the days when you feel well enough is one part of the way back to health.
dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
| IP: Logged |
posted
Im all for the fight,people are suffering.Was anything accomplished at the Mass state house?
Posts: 308 | From new bedford,Ma. | Registered: Dec 2004
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Nah.. it probably won't help. I just went for the food.
The ONLY way it will work is that EVERYONE here... and else where... start working together.
This is a small part of a bigger plan.. but without YOU all helping.. it won't get us anywhere.
Think of it kinda like the Bumsteere gang is just a big old chicken you are fixing for supper.
(Not a hard stretch, eh?)
Anyhow..
If you toss that chicken in a pot of boiling water.. and you cook it and cook it and cook it...
It will either have to jump out of the boiling water to get away from the heat... or.. eventually.. it will fall to pieces.
If we keep the heat up.. and prussure them hard..
We should end up with at least a nice Patsy Cline supper.
savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Do I think the protest was beneficial? YES! I saw hundreds of people driving by reading our signs, waving, clapping,honking at our message. The protest also gave us lymies a sense of validation. There was electricity in the air and you could really feel this movement moving forward. Are we just beginning? YES!! Are we going to stop? NO!!
"Never doubt that a small group of thoughtful citizens can change the world. Indeed, it is the only thing that ever has."
-Margaret Mead
Posts: 1603 | From ny | Registered: Aug 2006
| IP: Logged |
posted
I just love the fine spirit of everyone on here...and this despite being chronically ill...
Posts: 10 | From stamford ct | Registered: Mar 2006
| IP: Logged |
posted
I called and wrote including a little of my own story.
I feel more empowered and less a victim. Hooray!
Susan
Posts: 233 | From United States | Registered: Oct 2006
| IP: Logged |
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
One cannot equate what hope can do for the chronically ILL.
It should not always be looked on as what we may or may not have accomplished in changing the world...
IT CHANGES US!
nuff said
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
We all have built up ourselves somehow and that feels good ... but we cannot stop there.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
| IP: Logged |
Greatcod
Unregistered
posted
Overturning the IDSA guidelines is not necessarily the the short term goal. That would be to keep open the ability of LLMDs to diagnose and prescribe without facing legal action, and of patients to continue to get treatment without being cut off or refused by insurance companies.
IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Eek!]](eek.gif)
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic