LymeNet Flash: Looking for best LLMD available in NJ, PA, OR NY

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Looking for best LLMD available in NJ, PA, OR NY

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Topic: Looking for best LLMD available in NJ, PA, OR NY

sparty1367
Junior Member
Member # 38168

posted

I am currently seeing Dr. E in NJ and would like to get another opinion. Thanks in advance!

Sparty

Posts: 3 | From New Jersey | Registered: Jul 2012 | IP: Logged |

sparty1367
Junior Member
Member # 38168

posted

Also I am 23 and having more neurological symptoms than ever so would it be better to see an LLMD who is also a neurologist?

Posts: 3 | From New Jersey | Registered: Jul 2012 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for PA.

You need to be under the care of a LLMD. Lyme disease can cause neurological problems. If the LLMD determines you need to see a LL Neurologist, then he/she will refer you to one.

The top LLMD is in NY, but he is not taking new patients. PM me if you need information to get on his waiting list.

Check the online state Lyme groups at:
http://health.groups.yahoo.com/group/statenamelyme

Maybe they can help you.

Some more resources for you:
www.lyme-aware.org/new-jersey.html

www.lyme-aware.org/pennsylvania.html
www.lymepa.org

www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

Read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

The top Lyme doctor, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

View "Under Our Skin" for free on www.hulu.com

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

TF
Frequent Contributor (5K+ posts)
Member # 14183

posted

There are other lyme doctors in New Jersey, but I don't recommend them.

If you are willing to travel to the D.C. area, I can give you a name of a doctor for a second opinion.

Regarding a neurologist, that is not necessary for a lyme patient. See this quote:

"It is clear that in the great majority of patients, chronic Lyme is a disease affecting predominantly the nervous system." (page 4)

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

So, what you have in the way of neurological symptoms is typical, I am afraid.

Also, lyme doctors are few and far between. To find one who is a neurologist would be virtually impossible. The one neurologist that I know of that understands lyme disease does not treat lyme patients. So, you just are not going to find that combo.

I suggest you study the Burrascano Guidelines referenced above. As you will see, you may need IV antibiotics due to the neurological involvement. Here is another quote for you from Burrascano:

"INDICATORS FOR PARENTERAL THERAPY
(The following are guidelines only and are not meant to be absolute. It is based on retrospective study of over 600 patients with late Lyme disease.)

· Illness for greater than one year
· Prior immunosuppressive therapy while infected with Bb.
· Major neurological involvement
· Active synovitis with high sedimentation rate
· Elevated protein or cells in the CSF"

(page 21 of Burrascano Guidelines)

If you are getting worse with Dr. E, then it is wise to find a better doctor. The one I am thinking of will put you on IV, and he follows the Burrascano Guidelines which is the most successful lyme treatment protocol in the world.

Let me know if you want the name.

Posts: 9931 | From Maryland | Registered: Dec 2007 | IP: Logged |

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