posted
I have literally not posted here for years. First, because it was so bad, and then, because it's been so good!
But I feel that I need to let the Lyme community know what we have done that has worked so well for us. Is it a CURE? I can't say.
Backstory: daughter unknowningly bitten 9 years ago at age 13, no rash; onset of 24/7 migraine level headache; constant fatigue, constant nausea, extreme cognitive deficits, heart pain, lung pain, episodes of tremors and partial seizures. Had to drop out of school. 20+ doctors misdiagnosed her. Took 9 months to a diagnosis that actually fit the symptoms.
Years of orals, homeopathics, months of hyperbaric, alternative medicine, RIFE, ozone steam therapy, etc etc etc did not carry the day. Finally we got her on IV Rocephin for 18 months at age 17. Gave her her life back, but did not make her well. She had a life again, but still suffered. Graduated HS by our homeschooling, but not well enough for college.
A guy from Medsonix saw my LymeSucks.org website. Offered to treat her with the Medsonix machine, which is in Vegas (and Naples FL). It's audio waves through a transducer. It's FDA approved for increasing blood flow, reducing pain, and bringing down inflammation.
I kind of forgot about the call for a few months, but as her "trend" continued on a downhill trajectory and we had done everything under the sun and had nothing left, we went for it. We got her to Vegas 1X month for a whole year. I didn't tell very many people about it because Lymies are broke and I didn't want to get peoples' hopes up without a long run.
Long story short, it's a miracle! She could not work when she started Medsonix due to pain and fatigue, and we had to drive her from LA to Vegas for treatments. Two months into it, she was able to take an evening college class. That led to an internship and a full-time job (unthinkable!) at something she's really interested in! Her energy is normal, the headache is no longer a player, she has a great social life, and drives BY HERSELF to Vegas every 4-5 weeks... that's four hours driving, then takes treatments for four hours, then drives four hours back, showers, changes, and goes OUT for the evening! HELLO??? MY daughter is doing that???
It has no bad side effects for her. There's too much to say here, but the whole thing is on my website. I don't know where we would be if I had not been contacted by them. I am happy to talk to anyone who wants to talk to me; but I'm on the west coast and I'm a working person. Email is best, at least for starters. I am not in the employ in any way with Medsonix. And BTW, they are WONDERFUL people! I'm just reporting on the best thing that has ever happened to us, once Lyme was on board. [email protected]Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
Not at all, Lymetutu, if you have something in the vicinity of 150K to spend!! But there is talk of a "home version" that would be within the realm of some people...
Posts: 245 | From Tickafornia | Registered: Apr 2003
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Any info on the future of medsonix? Is it going to become more widely available?
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Interesting... Too bad they don't just broadcast it for everyone via all the cell phone towers...
"Medsonix uses low frequency sound waves which is the other end of the spectrum. Research has shown that it exhibits a very profound effect on pain and inflammation throughout the entire body.
As one sits in a comfortable chair and relaxes, the entire body is being bathed by the acoustic vibrations. Any and all areas of inflammation and pain in the body are being effected at once, noninvasively. "
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
FYI - I just read the Lymesucks.org website about Medsonix treatment, and they said they have clinics in Naples, Fl and Arlington, VA.
Posts: 9020 | From Illinois | Registered: May 2006
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posted
The latest I have heard is that there's going to be five of them coming to the SoCal area. I have to find out more specifics. Anyone interested in the answer to that question now should go to their site, www.medsonix.com and call or put in a query.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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jackie51
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posted
How much does it really cost? Says about the same as a co-pay.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
So happy for your daughter!! Interesting stuff.
Here's an interview w/the founder and some others; they say they did a double-blind study as well:
posted
lpkayak, If they don't call you back, call them again. They are not in the office full-time. The Vegas office is just one person, AL, the inventor, and he comes and goes in proportion to the people coming in for treatments. The Vegas office is kind of a "showroom" as well as a treatment center. I suspect that the Naples office is more regular.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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The cost is discussed at the bottom of the blog: "Mention Silver or Bev Feldman's name, or LymeSucks.org, they will give you a substantial discount: normally a package of 4 treatments is $399, but for you it will be $299."
I am in no way affiliated with this product or clinic - just trying to help my dear son.
Posts: 9020 | From Illinois | Registered: May 2006
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posted
I forgot to add that this cost was at the Las Vegas, NV clinic. Didn't mention it for Naples, FL.
Posts: 9020 | From Illinois | Registered: May 2006
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by apljack: How much does it really cost? Says about the same as a co-pay.
The one in Naples, they recommend 10 treatments in 10 days for $499.
They discount it for people with Lyme. For other ailments it costs more.
Posts: 1142 | From South | Registered: Dec 2010
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
ok-they called me back and i am more confused.
-no place in VA
-first he said 4 tx for 299
-then he said two long tx (1 1/2 hrs) in two days because of lyme detox
-then he said if only for my osteo arthritis more money
-i know i am foggy and talk funny but he was in a hurry and upset with me
-i told him i HAD lyme but didn't know if i still had it and wanted the tx for inflammation from arhtitis i know i have...and he said that would be more money-but he sounded like he only goes by what you say-you don't have to prove if you have lyme
-but there was no mention of a 4 hr tx once a month...
so i am basically confused
i wonder how long the tx is in naples the 10 in 10 for 499
my brother lives down there-i guess i could do it
VA was what i was excited about...its so close to me now
anyway-too tired to deal with this now...painful day
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
They give discounts to Lyme patients. Just say you have Lyme. The treatment is the same.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
I need to hear from more people other than the ones associated with the Lymesucks.org before I really believe this is not another thing capatalizing on lyme patients. That seems to be the only story actually floating around re: progress with this and lyme.
The Naples FL one seems to be giving out their own treatment advice that the owner from Vegas doesn't seem too thrilled about---10 days is ridiculous, no one can stick around for that. He said he was going to contact them.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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They mentioned a double blind needs to be performed, but I see nothing actually mentioning that it was done.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Well, here is my story. First of all, I went to Medsonix, Naples, FL. it is owned and operated by Linda and Gary Gordon. Both good people, IMO.
First let me say that I live within driving distance of this facility in the Winter months...so the 10 days in a row was not so difficult for me to do.
They have a pkg for Lyme patients that is 10 days, 1/2 hour treatment for 499.00. Medsonix was developed to treat other conditions, not necessarily Lyme disease.
It just so happens that they found that lyme patients did see benefits. However, unlike other ailments, lyme patients typically do not respond as rapidly as, say, arthritic patients, or migraine sufferers.
They are very clear that this IS NOT a cure for lyme. Everyone differs on how long the benefits 'hold'.
From my own experience, I went for 10 days at the end of December through the first week of January of this year.
Before treatment, I could not tolerate any stimulation for over 3 1/2 years. NO PUBLIC PLACES without feeling like I would pass out, tachycardia, etc..
My first Medsonix session, I could barely sit in the chair for a half hour. I could not tolerate the movement of the two other people in the room with me...very overstimulated.
After the 4th session, I herxed, bad. In bed, felt like my eye was being pulled out, horiffic head pain, my typical herx. This lasted 2 days and I did not do sessions on those 2 days.
After that one herx, and my next session, I was going into stores without problem, something I hadn't done in 3 1/2 years. The noise, light, stimulation didn't bother me. I shopped for 3 hours one day. WOW.
I was able to go to church a few times (huge for me) out to dinner (also huge)..and generally felt better..headaches that were everyday were now 60-70 % diminished.
Gradually the results began to fade. In the last month, significantly so. No longer able to tolerate stimulation/public.
They said that this would probably happen. I have spoken to 2 other lyme sufferers and they had amazing results. One in specific, Rita Farmer, she is on the video on the Naples website.
I am going to sign up for 10 more appts. before I leave to return to MI for the Spring/Summer. Bottom line? When you haven't gotten any relief in 3 1/2 years of heavy abx, including 4 rounds of IV..you're willing to pay 500 dollars for a few months of relief...whether it is 25% or 50%.
anything that gets you out of the house or bed!
I would think that someone who is not as compromised as myself may reap even greater benefits...
I am in no way affiliated with this treatment or Medsonix Naples...
UNLV, I believe, has published papers on the efficacy of this treatment...it is actually sonar waves and it is believed that the vibrations help with blood flow, etc.
at first, i wasn't sure this treatment did anything, in retrospect, it did A LOT!
FWIW...this was my experience.
[ 03-25-2011, 07:12 PM: Message edited by: feelfit ]
Posts: 3975 | From usa | Registered: Aug 2007
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posted
Feelfit said it very well.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I think it's interesting - as I said. I have no doubt that we can do healing with sound. I wonder if the results are cumulative over time?
I guess it might be in the same category as massage or taking a sauna. I hope others will post with their experiences.
I'm sure some of the old folks in Florida will get some benefit from this. It's nice to hear some good news for a change. Hopefully, it will get cheaper as it gets more popularized.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
toppers-it would be easier for me to do 10 days once a year than 1 day onnce a month cuz of travel-i have a brother to stay with there
i didn't see any where any one saying it was a lyme cure...i saw them saying it helps inflammation which is a severe constant sx of lyme
ORION-i'd like to hear more from you...didn't you say your daughter did 4 hr txs once a month for a yr?
i know i have osteo arthritis many places...i believe it came from lyme cuz it started in my 30s...but xrays show it everywhere and i can walk now that i have artificial knees so i know it is the cause of much of my pain
i'm not sure how active my lyme is...tests not very pos anymore
of course i would want the lyme discount but i'm trying to understand if it matters the length of tx and how close the txs are depending on why you are txing...lyme or arthritis
the guy i talked to sounded like he just wanted to tx ppl---didn't matter what their health problem---but that they found because of "detox" lymies did better on different time etc than others
not really sure what he meant by detox...i'm glad he created this tx but he obviously isn't lyme literate and really doesn't want to be
but thanks for the info here
that was really helpful feelfit
i want them to move one to VA tho-it would be easier to experiment with times then
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
lpkayak...did you speak to the Naples person? gary gordon?
it doesn't matter if you tell them you have lyme disease, arthritis or cancer... the treatment is the same..except that lyme pts. tend to need more sessions in order to see results.
this statement is based on the lyme patients that have gone through treatment.
I am returning. Rita Farmer has done the treatment several times, each time it gets her out of bed and functional. I have a lyme friend in FL. who has done the treatment as well. When I was investigating Medsonix, all the lyme people that i talked to told me to do myself a favor and run to Medsonix and that I would not regret it.
To answer your question about arthritis, that is supposed to be one of the conditions that it helps with in a BIG way....they sort of just happened to fall into seeing that it helped with lyme.
It obviously cannot help with joints that are deteriorated, can't 'repair' them, etc.. but it sure as heck can and does help with the inflammatory process
like anything, results differ for everyone. Rita Farmer experiences HUGE results that are very, very noticable, my results were more subtle, but nevertheless, 'there'
feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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sammy
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Member # 13952
posted
Wow feelfit, I'm so glad that it helped you! I hope that you will continue to get better with each treatment and eventually be able to hold on to those improvements.
Posts: 5237 | From here | Registered: Nov 2007
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
Seems like if you keep doing it and are able to keep the inflammation down, that maybe your immune system can eventually take over again and whop the Lyme on it's own? It must be so hard for the body to have to fight infections and deal with inflammtion at the same time.
I live in N. FL. and it would be about a 4 hour drive for me. My concern is, I am soooo sick, I'm not sure I could sit there with total strangers, feeling like they are looking at me like I'm some kind of kook.
I just know I would sit there and cry, partly from overstimulation and partly from sheer frustration of the whole ordeal.
I would feel so much better about it if it were more private.
My nervous system is so shot to hell right now. I just can't see myself sitting with people I don't know. (Before I got sick I would've enjoyed the heck out of it. I love people.)
Just thinking out loud here. Wishing I could hit the Lotto so I could just buy one.
Posts: 1142 | From South | Registered: Dec 2010
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
hambone...i only sat with others 2 out of 10 sessions. The Gordons are so nice, they may be able to accomodate your need to be alone, in fact, i'm quite sure that they would work with you on that.
posted
It seems interesting - I hope they can get some more studies done to further validate the treatment. Those studies that were done do not appear to have been published in a journal (anyone can write a paper), but it is a good start!
I wish I had a machine here... We are going to Vegas for vacation, but I'm not sure we want to be herxing while out there
Wondering if I can figger out how to build one (hehe)
racer
-------------------- Me - Igenex: IgM: 41IND, IgG: 39IND, 41+ but Plasmid PCR Positive Kiddo - after 1 year IV - positive Lyme culture (before IV: IgM:31,34,41,83-93 IND; IgG: 41+++, 66+) Posts: 133 | From CT | Registered: Feb 2011
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
feel fit i havent talked to naples yet. i plan to. orion just talked to me a lot. my brother lives in cape coral. i hope i can pull this off.
thanks to all on this thread
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by feelfit: hambone...i only sat with others 2 out of 10 sessions. The Gordons are so nice, they may be able to accomodate your need to be alone, in fact, i'm quite sure that they would work with you on that.
ff
Thanks!
I'm considering it. Trying to figure out how to travel and stay there for 10 days.
If I haven't said it before, I have the utmost respect and admiration for those of you who are so sick, but manage to criss cross the country if you have to, to get the help you need.
Posts: 1142 | From South | Registered: Dec 2010
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posted
Hambone, I understand the thought of doing it with others, etc., could be daunting. But I think the benefits will far outweigh your concerns. And I'm sure the Naples owners would be extremely sensitive to your needs. Orion
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
lpkayak - sorry, I just read that the Arlington, VA place is being "installed", according to the Lymesucks.org website.
I apologize if I misled you or got your hopes up by posting VA. I just thought it was there already! Hopefully, soon!!
Posts: 9020 | From Illinois | Registered: May 2006
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I've done IVs in places where there were other people getting treated. It's not so bad. Most people there are ill, too, & they don't really care.
Sometimes, you get someone who talks too much but it's not necessarily a bad or uncomfortable thing to be in the same room with other people.
I guess it depends on the person.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
I did not know that the Arlington VA site is not happening. So I'll take that off of lymesucks.org. Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
orion - I think being "installed" probably means they are in the process of opening a center in Arlington, VA, - don't know. Perhaps you could ask the clinic in Las Vegas where your daughter was treated if they know anything about VA and let us know?
For what it's worth, would you also ask them of they plan on opening clinics in the Midwest? They are opening several in California, from what I've read. Thanks.
Posts: 9020 | From Illinois | Registered: May 2006
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posted
Just want to clear up a little bit of confusion on this Medsonix stuff. The recommended tx for most normal aches and pains, arthritis, bursitis, back pain, sciatica, joint pain, etc.. is 4 sessions, which is offered in a pkg. for $299,normally $399. Single sessions are offered at $99, normally $129. It is more cost effective to do the pkg., because the results are better and more sustained after a series. Lyme patients however require a more extensive tx, so rather than charge 2x as much and then some, for 2x as many sessions and then some, they offer a pkg. of 10 for $499. Most things do not require that many sessions. Both offices are having great results, but the results are going to differ for everyone, just as some people respond better to certain drugs than others do. Each office has found good results with differing protocols, but as a rule, the more sessions, the better the results. They are trying to find the BEST protocol for Lyme, but this is done by trial and error. Just remember Medsonix is ALWAYS working no matter what, the cardiovascular system is always being benefitted because of the increase in blood flow. As far as more locations...that is the plan, but probably not likely to happen until it is more well known and profitable, as many who have an interest want to see this before they plunge in. Hope this helps with all the confusing/conflicting information. They are all good people who really do want to help. This is not a solicitation and is only meant for informational purposes.
Posts: 1 | From Naples, FL | Registered: Mar 2011
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posted
Yes, unsure445, it does help with the symptoms of these and yes it is beneficial for neurological symptoms as well. Again, it does not cure or heal, but may allow the body to help itself because of the increase in blood flow and the decrease of inflammation.
-------------------- Linda @ Medsonix of Naples Posts: 3 | From Naples, FL | Registered: Mar 2010
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posted
What Linda (Medsonix Naples) said is in line with what I think. You can't say it "kills bugs" -- Lyme, babs, etc. And you can't say that it heals, either, at least at this time. But it DOES do what it says it will do -- bring down inflammation, reduce pain, and increase blood flow. It appears, if my daughter is any indication, that all of those things give a BIG rise to quality of life, so much so that it's truly a miracle for her and my family.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
Al, I hear you loud and clear having a good sense of smell myself.
On the other hand I can't dismiss Orion's posts. I have had good results with a naturopath. I never in a million years would have seen that coming.
Try to keep an open mind. Believe me, if I can so can you.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
The only fishy thing for me is that I can't seem to find any press releases or news articles about it.
Posts: 340 | From san francisco, ca | Registered: Nov 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Sonar? Perhaps we should just swim in a pool of Dolphins and we would be better!
I am skeptical.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I was quoted $199 for four treatments. The patent office does have several patents - one on the basic technology and a couple others on top of that one.
It will be interesting if someone can do more research and get it published - then it might make the news.
Sounds interesting - but I am not ready to plunk down my money yet. If there wasn't such a capitalistic approach to this (vs. medical/scientific) (franchises info etc.) and if the owner charged much less in order to get more people treated -I think I'd be more likely to try it.
I am very happy it has helped the original family though!
-------------------- Me - Igenex: IgM: 41IND, IgG: 39IND, 41+ but Plasmid PCR Positive Kiddo - after 1 year IV - positive Lyme culture (before IV: IgM:31,34,41,83-93 IND; IgG: 41+++, 66+) Posts: 133 | From CT | Registered: Feb 2011
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posted
So if someoner were traveling a long distance would they stay for 10 days and get the treatment each day? Or is one treatment per month the optimal schedule?
When do you plan to have your Florida location open? I'll try anything at this point! Thanks for the information.
-------------------- unsure445 Posts: 824 | From northeast | Registered: Jun 2008
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I contacted them earlier this week and they sent me an electronic reply that said they "are heartbroken that they have no plans to install a machine in Arlington, VA." They also said they'd received two inquiries from Virginians.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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