posted
Diana - thanks for the update. What do you mean by, "plans are underway to open many of these." Do you have specific information on this? Thanks.
Posts: 641 | From Nevada | Registered: May 2009
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posted
Hi Dan, I think there is someone interested in putting these in several locations around the country. That is all that I know. The existing locations are Naples, Las Vegas, and now Los Angeles area - Sherman Oaks.
Posts: 43 | From The South | Registered: Jan 2010
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posted
My daughter's LLMD, who has treated her for a year and a half for Lyme, Bart, and Babs, is very happy with her progress. He recommends detoxing during and after her Medsonix treatments. He has other patients who have heard of and are going to Medsonix.
My daughter's local doctor does blood microscopy, and since she began Medsonix treatments, says my daughter's blood has gone from Lyme prevalent, poor circulation, poor immune system, to a healthy immune system with toxicity problems.
Hang in there Posts: 43 | From The South | Registered: Jan 2010
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posted
Diana 85-- great to hear about your daughter's progress with Medsonix and the empirical evidence of her bloodwork! I am sooo glad to hear this! Orion
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
Nighthunter21 (me) was sent a pm that i have not been able to answer before. My progress has continued with my medsonix treatments being less in number but longer in duration. I now take 4 hour treatments at a time. Since I have to travel a long distance I like to take 2 or 3 days of this (last time only one as I had to leave early). I still have issues but am able to work longer. Headaches and sleep are still a major problem.
Posts: 2 | From texas | Registered: Mar 2010
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posted
orion It is with a heavy heart that I post here tonight. You see I have had Lyme disease for over 45 years. Like many of us it took most of my life before I found out what was wrong with me. Since I have been sick so many years I haven't been able to work much so I have very little money. I thought it was bad enough that I had Lyme disease and was never able to be much of a mother to my kids but now I have even worse news. My son who is 29 has lyme disease also. He has his first appointment with his doctor tomorrow. I just hate to see him start down the road I have gone with so much medicine. Do you know if there is any hope of them opening up one in the midwest? I fear I already know the answer but I am not out anything to ask. Thank you in advance for your trouble.
posted
Thanks mike for your update. I was the one that sent the pm. I did talk with Al about 2 weeks ago and the sessions in Vegas are more reasonable.I was quoted for 3 days at 4 hours per day, it would be 200.00 per day.
Al is really more interested in helping people feel better from Lyme then trying to cash in.
I also feel he has lowered the rates for lyme from last year due to the discovery that it takes more sessions to help out most people with lyme.
posted
Oh that is so sweet of you hopingandpraying. If I had the money I would open one up in every state and do it without a profit just to help all the people who need it so much. Little kids could have parents who are well and brothers could have sisters who are well. The list just goes on and on.
posted
Frankly, I'd like to see a Medsonix on every street corner! Yes, Al does make financial accomodations for Lyme patients. He is REALLY a GREAT guy!
Also, I warn people to take it easy on treatments at the beginning... it does not produce side-effects, but when doing it at first, I think taking it slow is better. Sitting down and doing 4 hours 1st time out MAY produce something like a herx. I know it's happened to at least one over-zealous Lyme patient. Just take it easy and build up.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
I am new on here, just registered, but am very intrigued by this thread that I cam across. My 12 year old son has been sick for 14 months and was finally diagnosed by a LLMD here in Colorado about 6 weeks ago. He is on a detox diet, antibiotics, tons of supplements, frequency specific micro-current treatment, etc. He just started the antibiotics 2 weeks ago, but he is horrible shape. His doctor says this is probably the "Herx" reaction, but it is so hard to see him getting worse, not better. Would you all recommend that we wait longer before we would try this treatment? He has only been in school about 15% of the time over the last year. Luckily, he goes to a great private school and we do what he can at school and the rest at home. I would take him to Vegas from CO asap if this could really help him feel better. I would like to see if my Dr. has heard of it, but am fascinated that this could be something that would work. Please let me know what any of you think on the timing we should consider. Thanks.
Posts: 3 | From Boulder, CO | Registered: Feb 2012
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posted
I hear you on this one. I know what you are going through. Our daughter was SOOOO sick. Medsonix does not kill bugs. Its FDA approved to bring down inflammation, pain, and increase blood flow, and it does those things. (One would think those are good things for Lyme patients. I did.) But we did not do Medsonix till we had done tons of meds (including 18 months of IV) and we had no doubt killed a LOT of bugs prior to Medsonix. There are NO studies on this. And I'm sure your doctor hasn't heard of it. You can read the full account of our journey on LymeSucks(dot)org.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
There has to be a way to do this at home using different technology... I have been looking into it & found other devices. I don't have time to do a thorough search now. Maybe others can look into it...?
I think you basically need a transducer to produce the low frequency sound waves. I'm not sure why the sessions are so expensive & why Medsonix is the "only" way to do this...
I did find this device but there was no price on the website - or even practitioners... The inventor is pretty well known in some circles.
The Medsonix uses a low- frequency sound wave of 600 hertz. I guess one would need to look for a similar device...?
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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posted
Thanks so much orion - I will check out your site and story. I know it is not a cure, just want to do anything that will help him. I will read more about it and stick to what we are doing for now - but keep this info for down the road. Our doctor thinks that our son could be better in 4-6 months possibly, but reading all the stories on here sure is discouraging. I know this could be years, but am praying that he can get better.
Posts: 3 | From Boulder, CO | Registered: Feb 2012
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posted
I think this should be kept on page 1 so everyone is aware of this place. It seems very promising to me. I just hope they keep adding new states where we can go.
posted
boulderlyme -You should take your son for Medsonix treatment as soon as possible, if you can. It's worth a try.
My son has been ill for 12 years and, if we could, we would take him too. He has had chronic pain in his chest, sides, back and arms for 6 years and we haven't been able to hug him (it hurts more to be touched).
BTW - Please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems. Thanks.
Posts: 9020 | From Illinois | Registered: May 2006
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posted
Thank you orion for all the information. Please keep us informed if they do open up any new places. sick
Posts: 538 | From Iowa | Registered: Apr 2006
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posted
A Medsonix has opened up in Sherman Oaks, CA (SoCal, Los Angeles area.) I don't know the details of it, but my daughter has been there and used the machine. If anyone wants to know more about that location, I'd Google it, and if no results, call the Las Vegas office number which is on www.medsonix.com. Or send me a note to bev AT lymesucks dot org.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Any more updates/feedback on Medsonix?
I have followed this thread with great interest. I'd love to do it. It's just the money, and the fact that I'd have to fly there, pay for a motel, etc. each time. And right now I am focusing on getting and paying for treatment. But I am pretty desperate to feel better, even somewhat so.
Wish there were one in my area.
Posts: 3792 | From around | Registered: Mar 2008
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posted
I had a ticket to burn so I tried it about 2 months ago. It was effective for me as the 3rd day I started herxing hard and had to stop. Rested for about an hour and drank water. As I drove back to the airport I had a burst of mental clarity and very little fatigue, my two worst symptoms.
I should add I stayed on my abx for bart. while I did the treatments as I knew if you knock back the inflamation the abx can go to work.
After about 2 weeks the improvement slipped away. It is a continual type treatment and I'm not in the position to buy plane tickets,hotel rooms,rental car plus Medsonix charge, every month.
Glad I did it though because next year I could be in a position to move closer to a location if I really wanted to. Then drop in once a week or every other week and see where more frequent visits would take me.
Posts: 805 | From Utopia | Registered: Feb 2006
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posted
Jarjar, Glad to hear that it made a difference for you! (I want one of these on every street corner!) My daughter continues to do it, but less frequently. She is living a normal life now. Actually, MORE than a "normal" life, but that's a long story not sppropriate to this space.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
hope, I talked with Al about that, he mentioned one city and then got very vague about it taking place.
Posts: 805 | From Utopia | Registered: Feb 2006
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posted
Since these are in so few places would some of us be able to take the mercy flights (that may not be the correct name)that will take us to doctors for treatment or would this qualify for that?
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Orion,
Well, maybe the details of how your daughter is now living MORE than a normal life isn't appropriate here, but I'm sure that I wouldn't be the only one to want to hear them! We need inspiration from those who have "made it to the other side!"
Any more updates anyone? I still want to do it, but keeping up with my treatment/supplement/medical costs is an enormous challenge as it is. Adding flights, hotel, and Medsonix costs---don't know how i'd do that, esp to keep it up.
My sed rate is through the roof though (indicating a LOT of inflammation, so . . I'm sure it would be great.
Posts: 3792 | From around | Registered: Mar 2008
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posted
Rumigirl, The medsonix SHINES when it comes to anything inflammatory and circulatory. So, I agree, it would probably do you good. Thing is, you do need to do it with some regularity to break up the inflammatory cycle, IMHO. It's painless, but not in the "expenses" department.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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posted
any update on medsonix? I just heard from someone who said it helped them. Want to hear more from those who've used it.
Posts: 641 | From Nevada | Registered: May 2009
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posted
Orion here. Update on daughter: Living a normal life, has a job she loves and works very long hours, moved out into her own place. All unthinkable not that long ago. Medsonix was a BIG part of it. They are in Las Vegas and I see that they have moved. They have posted a $199 offer that's good for 4 sessions. Not a bad deal IMHO.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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Can you tell us what else your daughter did that helped? You said "medsonix was a big part of it." What else was part of it? Thanks :-)
Posts: 641 | From Nevada | Registered: May 2009
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posted
Well, the BIG part was 18 months of IV ceftriaxone. It got her from horizontal to vertical, which was fantastic, but it did not bring her daily life back into the zone of normal functioning and being pain-free. Medsonix did the rest.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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TNT
Frequent Contributor (1K+ posts)
Member # 42349
posted
Yes, that is great news! Is there one near PA?
Posts: 1308 | From Eastern USA | Registered: Oct 2013
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posted
the one in naples closed
Posts: 641 | From Nevada | Registered: May 2009
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MannaMe
Frequent Contributor (1K+ posts)
Member # 33330
posted
I tried emailing them and it said my message failed to be delivered. I tried using the contact button on their website.
Posts: 2608 | From USA | Registered: Aug 2011
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posted
Thanks, orion, for the wonderful update on your dear daughter.
Are the Las Vegas & CA offices the only ones open now? Wish we had one here in the Midwest!
I'm also a bit confused, because I googled Medsonix for CA and two locations came up: Sherman Oaks and Santa Monica. Are there two or did they move from one town to another?
Posts: 9020 | From Illinois | Registered: May 2006
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posted
Yes, I've known about the Van Nuys (Sherman Oaks?) one, but I wasn't sure it was still open. I'd call the number at the Las Vegas one and talk to Al, and find out what's going on, and where. Don't annoy him with questions about treating Lyme. He's not a medical professional, and by law he cannot (and never would!) make promises or claims about what the machine does, other than it: 1. brings down inflammation 2. reduces pain 3. increases blood flow.
Those are the things that it's PROVEN to do, so if any of those getting better in your body due to Lyme or anything else seems like a good idea to you, then you might want to consider it.
Posts: 245 | From Tickafornia | Registered: Apr 2003
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