randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my eyes are really bothering me. they are very dry, feel like i have sand in them, have stabbing eye pain, throbbing around the eyes, etc., etc.,
this morning i woke up to bloodshot eyes and got so scared i just lost it. the temple pain is bad.
i started shaking and crying. called my opthamologist. no appt untill april 4 but they want to see me on monday for a workin appointment.
then my dang primary called and wanted me to go see a neurologist at 8 in the morning which conflicts with the eye doctor.
i don't know what to do. i'm afraid they will want to give me steroids.
i'm sick to my stomach with worry over going blind.
i feel like throwing up and am so nervous and shaky.
this is making me physically ill, really.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
It's not the best, but if you have to you have to. Same with if it's TA, you have to.
I'm not saying it's Sjogren's, but what you posted today sounds like it.. along with the watery eye.
But just saying that I do have it and have not had to use steroid drops yet. I have used an abx/steroid ointment for a brief period of time though. No trouble.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
hey tu, do you think this can all be just stress?? i mean honestly???
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
When I have a rough herx my eyes burn, I'll get a sty on my eyelids.
I've found flushing my eyes with water a couple of times a day really helps get through this. If I don't, they get all dry and scratchy, multiple sties, downright uncomfortable. Flush them as soon as they start bothering me and they'll start watering properly.
Some toxin is making its way out through the tears, oil in my skin, etc. Rinsing it off helps, aloe vera helps with the skin irritation and seems to keep the oil production down so my skin doesn't get as irritated.
-------------------- Ticks suck. Posts: 140 | From Alabama | Registered: Aug 2009
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manybites
Frequent Contributor (1K+ posts)
Member # 33750
posted
Your bartonella infection is so activated that is maiking lyme as well activated.I had this symtoms exactly 9 years ago.Please go into treatment strongly for bartonella and lyme.
I also hope you do not have ehrlichia or ricketsia in your system.If you go in Mino , azithr and rifamphin with Flagyl you will cover them all .
Posts: 1379 | From disable | Registered: Aug 2011
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i have my appt with a great doc on april 4th. am just treading water until then.
my fear is making everything much worse.
the neurologist that my primary wants me to see rates a 1-2 from patients, so i ain't happy about that. but i do like my eye doctor very much. he knows about lyme also.
they're going to "work me in" monday around 10, but can't promise anything.
i am not going to let them put steroid drops in my eyes and that might po them off but at this point i'm like "well you jerks should have listed to me back in december when i was starting all these problems."
and the headache is just killing me.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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hey tu, do you think this can all be just stress?? i mean honestly???
- I don't know. Stress can do a lot. You listen to your doctor on the steroid drops. If it will save your vision... then....
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
willl a neurologist know when to prescribe steroid eye drops or would it be my eye doc on monday? i've been going to him for over 15 years and like i said, he's familiar with lyme and has another patient with it also.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Prob the eye doc .. but the neuro can tell you about the TA..
Can you see both on Monday?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i see the neuro tomorrow at 8 and the eye doc at 10 on monday.
should be interesting. if my nerves hold out!!!
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
Sjogren's syndrome, it looks a bit like that. How are other fluids in your body, saliva for example?
Posts: 6199 | From Brussels | Registered: Oct 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
oh I'm fine with all that. But have dry skin tho
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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