I have been on IV rocephin for 2 full weeks. My pain level has increased quite significantly, plus migrating pains--jolt in the head, behind the eye, in the shoulder, bottom of foot--plus nasty headaches in the front part of my head. Is this the herx?
Thanks for any ideas/comments. Jen902
Posted by Aniek (Member # 5374) on :
Jen,
A herx can be an increase in any of your symptoms, or the onslaught of new symtpoms. So yes, could definitely be a herx.
Posted by Carol in PA (Member # 5338) on :
Hi Jen, How are you doing? Any better, any worse? Are you taking anything for the headaches?
Carol
Posted by bettyg (Member # 6147) on :
Welcome Jen, and here are some newbie links; one explaining herxes, etc. Hang in there for better days ahead ok.
Welcome to this 24/7 LYME support group board!
Here's TREEPATROL's and Tincup's combination newbie links.
Print off the links then check them off as you read as you could spend several months reading all of this.
print & read Dr. Burrascono's 2005 info first; you will come back to this often.
Extensive info in Treepatrol''s newbie links about the meaning of WESTERN BLOT IGM/IGG test results from Igenex! Be sure to read or print this info IF Igenex tested you ok!
Also, see Cheryl''s extensive web sites on: LD DIAGNOSIS, SYMPTOMS, & TREATMENT ... wonderful! Read the area on CO-INFECTIONS! You could have from 1-12 other illnesses that tick is carrying...lyme, malaria, etc.
If you are showing symptoms of co-infections, I would like to suggest being tested for co-infections when you have LYME western blots done. It isn''t cheap!! But if you are positive, you can treat the co-infections first, and then work on LYME symptoms.
mention you have lyme and marshall protocol, they will give you 20% off!
Also they have been kind enough to replace the SCRATCHED LENSES & BROKEN BOWS! How's that for service?
I don't drive often at night, but I can wear NOIR's 901 lenses at night while driving; it creates soft candle lights coming at me...tolerable. NOT to wear in town with all the action of people crossing where they shouldn't be, etc.
from LOU to Betty on LONG web links and Thank You Lou!: "If you hit the return key in the middle of a link, I don't think it will be clickable anymore. An alternative that maybe Betty should be telling people about is the tiny url website. I have it on my tool bar at the top of the page and use it for those incredablylongwebsiteaddresses.
All you have to do is ask tiny url to produce a short version, which it will do with a unique address, which you then use instead in your post. Works just the same when clicked! Here is the website, spread the word!
3-1-06, fyi, I tried dragging tinyurl to my toolbar without success, so that''s why I currently have LONG addresses vs. short tiny ones! I''ll keep trying.
Tincup posted March 8, 2005, 2218 Lyme Disease Survey Responses February 27, 2005 - March 9, 2005 1. How many doctors did you have to see before being properly diagnosed? 112 responses Average number of doctors consulted before being diagnosed- 14 Answers ranged from 1- 120 different doctors 2. Have you had problems getting insurance to pay for doctors or treatment? 87 responses Yes- 63 No- 24
3. Have you lost income because of Lyme disease? 106 responses Yes- 99 No- 7 4. How much does it cost you (average) per month for Lyme related expenses? 61 responded Average cost per month per patient- $4,472.49 Low- $500.00 High- $21,492.00
5. How many different medications do you take per day? 77 responded Average - 14 different medications per day Low- 3 High- 25
Posted by WildCondor (Member # 434) on :
It sounds like a herx to me! Remember all your symptoms can worsen plus the addition of new ones. hang in there!
Posted by AmandaPI (Member # 5587) on :
Sounds like a herx to me.
I would suggest you talk to your doctor about the severity and managing symptoms.
I didn't herx on IV rocephin or levequin to badly but they sure did help...for a while.
I stopped abx for almost a year because I was doing so much better. I've now started having syptoms again and taking oral abx.
I recently posted about a horrible herx and am feeling much better.
Hang in there!
Posted by Jen902 (Member # 8822) on :
Thank you all for your responses. How wonderful to not have to go thru this alone, but have knowledgeable people to offer ideas and support.
I have been on Rocephin since the last week in April, the first week on increasing doses and now 2000 mg each day. At some point, we will switch back to twice daily for 3 days on, 4 off, but my white blood count was up for some reason and the daily seemed like a solution.
I was so afraid my energy would be zapped. Not sure if the antibiotics are helping in that department, or if it is just that I do better in the spring in our northern climate, but I have had good energy for me (which isn't saying much for a normal person).
My pain level has been at the "screaming" level at times, esp. at night right after taking the abx. Also I have migrating pains--a shot behind the eye, a jolt to the head, the bottom of feet, etc, plus some headaches. I don't think there is much to be done about it but to get thru. I am taking ultram (tramadol) and diclofenac for pain--gets me thru. Wish I could take some narcotics, but am also taking naltrexone to boost immune system and don't want to mess with that.
I am highly chemically sensitive, and am exhibiting some skin sensitivity to the plastic of the PICC line where it touches or goes into my skin. Any ideas? So far things are holding but I have only had it a week, so that is discouraging.