I have been sick with Lyme for over 15 years. I have received all the standard treatments for the 1st ten years and now just try to manage the symptoms I am left with. I have seen most of the LLMD's in NJ/NY area but have not been treated for Lyme in 5 years, as I just gave up. I am wondering if any new treatments have been successful and who is using them. Thank you for your help.
Posted by faithful777 (Member # 22872) on :
**moving to medical for some more help**
Posted by kidsgotlyme (Member # 23691) on :
Oh my, there are so many different treatment methods out there. Did you ever try doing a parasite treatment? If not, I would recommend you do a search here. A lot of people have had success after years of failed treatments.
Posted by Lymetoo (Member # 743) on :
What do you mean by "standard treatments?" Were you treated long term? Were you treated for coinfections? .. such as bartonella and babesia??
Ten years ago, many doctors did not know about the coinfections.
And yes, parasites could play a factor as well.
Posted by Keebler (Member # 12673) on :
- Were ALL forms of lyme addressed, especially the cyst form? Antibiotics will not work for all forms of borrelia.
Just about the cystic form, and remember that antibiotics, alone, can CAUSE chronic lyme by forcing spirochetes into cyst form.
But there are so many other considerations, too. Most are addressed below.
See the link for BURRASCANO's treatment guidelines. Did your treatment path resemble that? It should have, of course, taking into consideration that each LLMD may treat a bit (a BIT) differently but still will address the same targets - and each person with lyme "complex" requires an individualized plan of action that will often need to be altered.
Diagnosing Lyme Disease (&/or whatever else is going on)
Other tick-borne infections and other chronic stealth infections - as well as certain conditions that can hold us back - are discussed here.
PARASTITES, HEAVY METALS, MOLD, DIET . . .
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Liver damage can happen just by having lyme - and treatment can also stress the liver (still, lyme must be treated somehow and with vigor). It's vital to maintain excellent care of the liver & kidneys during treatment.
Many symptoms can come about from stressed liver & kidneys. What can help:
LIVER & KIDNEY SUPPORT & and several HERXHEIMER support links, too.
LL ND (naturopathic doctor) links here.
RIFE machine links here, too.
ADRENAL SUPPORT as well, another essential aspect regardless of whichever treatment paths are taken.
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Lyme, some treatments and just life can greatly affect our ears, balance, etc. When our ears are stressed, it can affect the entire body and psyche, too.
Topic: TINNITUS: Ringing Between The Ears; Vestibular, Balance, Hearing with compiled links - including HYPERACUSIS -
Posted by mich (Member # 22330) on :
I had many many courses of oral, and I/M antibiotics. I had 2 years of I/V antibiotics. I had I/V Flagyl (not sure if that is what is meant by parasite treatment or not. I tried acupuncture and many vitamin and supplement treatments without any success. I am able to work and function but I have a great deal of joint pain and fatigue. I no longer test positive for Lyme but have an elevated ANA (160) which my LLMD says is not an autoimmune disease but is from the chronic Lyme. Thanks for your help, I will look into the parasite treatment.
Posted by Keebler (Member # 12673) on :
- Are you gluten-free, dairy-free and do the best you can to avoid not just all processed foods but also GMO foods?
The reason I ask all that (and I know, it's alot to ask) . . .
GMO foods that destroy the GI Tract; Gluten; Dairy. -
Posted by Keebler (Member # 12673) on :
- Two years can seem like a long time, and it IS. Still, some take longer to reach a good remission.
Be sure to read "CURE UNKNOWN" by Pamela Weintraub. See how she finally reached a good, solid remission.
And, you may want to consider a RIFE MACHINE.
Parasite attention would be the place I'd begin again, though. I just don't have links for that but see Gael's PARASITE WARRIOR THREAD.
Heavy Metals should also be considered now before moving on to any other antimicrobial Rx.
As lyme is killed off, it can release heavy metals and parasites - so those are both keys to successful treatment.
Good luck. -
Posted by Keebler (Member # 12673) on :
- It's true, an elevated ANA is very common with lyme and chronic lyme or other chronic stealth infections. The body KNOWS something of harm is there but these stealth infections can hide and evade so well. Still, my take on this is that there is still some alarm in our immune system that says:
I know it appears that all is well, but I KNOW, instictively, that there is some threat roaming around here. So it works very hard to try to find that and it can appear to be autoimmune.
"Cure Unknown" speaks to this. Don't be put off by the title, it may say "unknown" but there is some fabulous detail in that book to help us better understand what is happening and some ways to head it off at the pass, so to speak. -
Posted by hopingandpraying (Member # 9256) on :
Here is the 'Parasite Warrior Support Thread"' link by poster glm1111:
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.