I was Lymed about 54 yrs ago.. dxd with FM 33 yrs ago. Dxd with Lyme 13 yrs ago..Recovered 9 yrs ago. The rest is history!
Thanks for the article.
(have not heard that Envita knows how to treat Lyme, however)
Posted by Keebler (Member # 12673) on :
- Too bad rheumatologists and most MDs don't know this link. Thanks for that article, good to know that some are getting the connection.
And, glad you can be light about donning a nickname. We sure do need humor along the way.
For the respect of all with lyme, though, it's important to know that any group nickname attached to one person automatically puts others in that category and can bring severe sadness to some who deal with this - & others outside of this can use this name against us.
Just last month, there was a professional article from a univeristy that even said we are pleased to take on the "Lymie" name. Very wrong take on that, the authors had. They implied that we WANT to be known by such a nickname and WANT to join a "group" it was very demeaning, the way they did that.
I will see if I can find the link to that article. It had to do with "social science" & web connections. A set back for all with lyme, by their "proclamation" in that regard.
I hope everyone might consider the reasons why it matters to avoid any kind of nickname, even on what may seem here like a closed site (it is not). If they see this anywhere, they think it's okay to call us all that. It is not, especially in a study or survey about those with lyme disease - a paper that is for an entirely different audience.
Please do not call me “Lymie” -
Posted by sutherngrl (Member # 16270) on :
I also was misdiagnosed with Fibromyalgia. Been meaning to write a letter to that rheumatologist.
Posted by lax mom (Member # 38743) on :
I was diagnosed with CFS and Fibromyalgia. I wish the Lyme and CFS Drs would work together and combine their research.
Posted by Lymetoo (Member # 743) on :
I was dx with CFIDS/ FM for over 13 yrs. Till 2011 finally dx with Lyme. Still working on getting well. It is tough.
Posted by we'll win (Member # 11112) on :
Lymetoo,
I am only on this site periodically and I know you have probably told your story 1000 times....
But recovered? Fantastic.
Could you share how you recovered at least one more time for this 23 year Lymie?
Thanks.
We'll Win
Posted by nefferdun (Member # 20157) on :
Protomyxzoa can also cause fibromyalgia. Fibromyalgia is just a "condition". A number of things can cause your nerves to be inflamed.
Chemicals and heavy metals can cause it. A lot of people allergic to nickel that smoke have fibro.
Posted by alhambra42 (Member # 43047) on :
i always thought there was a connection between fibro and lyme! more research like this needs to be funded.
Posted by Robin123 (Member # 9197) on :
We'll win - we're all different in how we recover, probably due to having different strains, different co-infections, different genetics, different weaknesses, etc.
I had a fibro dx for 25 years and I recovered instantly with 150mg oral clindamycin around the clock. It's bacteriostatic, not cidal, so doesn't kill the bacteria - it keeps them from replicating.
We are all different which means the clinda worked for me but not necessarily others.
It lasted 5 years and then didn't work anymore. I'm allergic to most antibiotics so I'm treating more naturally, especially with lots of turmeric to counter the inflammation.
Posted by Abxnomore (Member # 18936) on :
I got the old FMS dx. years ago, too. Fortunately, I only had that dx. about a year while continuing to search for answers and discovered it was really lyme disease and co-infections.
It's really sad how after all this time so many people are being medicated to death with little relief for Fibromyalgia, when they could be getting treatment to get at the root cause.
The symptom list for FMS and Lyme Disease are practically identical and yet it still goes unnoticed.
Posted by GretaM (Member # 40917) on :
Me too. Fibro was one of my first (of many) mis-diagnoses.