posted
I was Lymed about 54 yrs ago.. dxd with FM 33 yrs ago. Dxd with Lyme 13 yrs ago..Recovered 9 yrs ago. The rest is history!
Thanks for the article.
(have not heard that Envita knows how to treat Lyme, however)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Too bad rheumatologists and most MDs don't know this link. Thanks for that article, good to know that some are getting the connection.
And, glad you can be light about donning a nickname. We sure do need humor along the way.
For the respect of all with lyme, though, it's important to know that any group nickname attached to one person automatically puts others in that category and can bring severe sadness to some who deal with this - & others outside of this can use this name against us.
Just last month, there was a professional article from a univeristy that even said we are pleased to take on the "Lymie" name. Very wrong take on that, the authors had. They implied that we WANT to be known by such a nickname and WANT to join a "group" it was very demeaning, the way they did that.
I will see if I can find the link to that article. It had to do with "social science" & web connections. A set back for all with lyme, by their "proclamation" in that regard.
I hope everyone might consider the reasons why it matters to avoid any kind of nickname, even on what may seem here like a closed site (it is not). If they see this anywhere, they think it's okay to call us all that. It is not, especially in a study or survey about those with lyme disease - a paper that is for an entirely different audience.
Please do not call me “Lymie” -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I also was misdiagnosed with Fibromyalgia. Been meaning to write a letter to that rheumatologist.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
lax mom
Frequent Contributor (1K+ posts)
Member # 38743
posted
I was diagnosed with CFS and Fibromyalgia. I wish the Lyme and CFS Drs would work together and combine their research.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I was dx with CFIDS/ FM for over 13 yrs. Till 2011 finally dx with Lyme. Still working on getting well. It is tough.
Posts: 1058 | From VA | Registered: Oct 2010
| IP: Logged |
I am only on this site periodically and I know you have probably told your story 1000 times....
But recovered? Fantastic.
Could you share how you recovered at least one more time for this 23 year Lymie?
Thanks.
We'll Win
Posts: 107 | From maryland | Registered: Feb 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Protomyxzoa can also cause fibromyalgia. Fibromyalgia is just a "condition". A number of things can cause your nerves to be inflamed.
Chemicals and heavy metals can cause it. A lot of people allergic to nickel that smoke have fibro.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
i always thought there was a connection between fibro and lyme! more research like this needs to be funded.
Posts: 9 | From Mesa | Registered: Jan 2014
| IP: Logged |
posted
We'll win - we're all different in how we recover, probably due to having different strains, different co-infections, different genetics, different weaknesses, etc.
I had a fibro dx for 25 years and I recovered instantly with 150mg oral clindamycin around the clock. It's bacteriostatic, not cidal, so doesn't kill the bacteria - it keeps them from replicating.
We are all different which means the clinda worked for me but not necessarily others.
It lasted 5 years and then didn't work anymore. I'm allergic to most antibiotics so I'm treating more naturally, especially with lots of turmeric to counter the inflammation.
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I got the old FMS dx. years ago, too. Fortunately, I only had that dx. about a year while continuing to search for answers and discovered it was really lyme disease and co-infections.
It's really sad how after all this time so many people are being medicated to death with little relief for Fibromyalgia, when they could be getting treatment to get at the root cause.
The symptom list for FMS and Lyme Disease are practically identical and yet it still goes unnoticed.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
| IP: Logged |
GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Me too. Fibro was one of my first (of many) mis-diagnoses.
I agree, abxnomore!
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic