Back here after being diagnosed in 2006 with lyme. I treated for two full years one year on Rocephin IV and second year orals and bicillin shots.. I was diagnosed late(over 1 year) and by the time I took a simple blood test I had neurolyme.
Fast forward, I have not had to treat since 2012 and just got really ill end of April. It actually started with Sciatica in February and by March I had low back pain in my sacral area. By end of April I had severe rectal pain. I just had a colonoscopy one year ago and it was negative for polys, but severe diverticulosis.
By first week of May I ended up with severe Rectal pain and could not sit. I saw a colorectal surgeon at University of Pennsylvania who said everything looked fine. They thought maybe I had a divertiulitis episode and put me on flagyl/cipro. The pain was so bad they put me on Oxycodone. I have never taken pain meds ever..
Anyway one month into the rectal pain it is still there but I am able to manage with 800mg Motrin. Sorry for the long story but My Doctor thinks it could be lyme and I just can't believe it could cause nerve pain so deep in the rectum?? Anyone else have this?
I am doing three months of treatment with my Dr. since I have tested for everything else and it's all negative..
Appreciated any input...
Posted by lpkayak (Member # 5230) on :
I remember a pain and it was discussed on here as a rectal spasm. It was a longbtime ago. My main tx was 98-01. I maintained on herbs dter that and a few more times did abx protocols different than the first 3 yrs
The discussion was on here about the pain and i can could relate because i had experienced it but never knew how to describe it. For me it was like a spasm that got so bad it was a sharp pain
I never thought of diverticulitis cuz i didnt relate it to eating
I dont know if what i went thru is the same as what you are goin. Thru. Maybe you csn search it or maybe some of the other oldies will remember the thread. I dont remember mine lasting a long time but it hurt so it was scary
It sounds awful the way you are describing it...esp lasting so long
I hope you figure it out and get more replys
Posted by randibear (Member # 11290) on :
oh man i get those spasms occasionally. I can't even begin to describe the pain..gut wreching, take your breath away type.
i finally had surgery and they took out 12 inches of colon. not an easy recovery. worth it tho.
I feel for you. vaginal, bladder, and rectal spasms are part of pelvic floor dysfunction also.
they gave me muscle relaxers and increased fiber to help. magnesium works to keep mge regular too.
Posted by Lymetoo (Member # 743) on :
I have a friend who had Lyme and she would go through spells of having these .. very severely. They gave her Valium to take during those times.
It would come and go... I hope yours GOES soon!!
I have had occasional pains like this, but it never lasts long enough to actually do something about it. I'm glad you've had it all checked out.
Have you tried eliminating gluten and dairy to see if it helps?
Posted by Carol in PA (Member # 5338) on :
PEMF, pulsed electromagnetic field therapy, is excellent to stop spasms and relieve pain.
Posted by sfcharm (Member # 9392) on :
Thank you all for your replys.. I am still being evaluated. The fact that I was put on cipro/flagyl and the pain is down 50% tells us it's either lyme or now they think it could be a fistula..
A rectal/bladder fistula would cause severe rectal pain and the fact that I have protein in my urine is making them want to explore that. In the meantime I'm treating as if it's Lyme because my Lyme Dr. says it's a symptom of lyme.
Posted by steve1906 (Member # 16206) on :
***** These may be the posts lpkayak is refering too
"Painful rectal area muscle spasms in Lyme patients usually respond to alprazolam (Xanax) 0.25 mg (1?2 to one tablet) best chewed for quick relief and Natural Calm, a formulary of instant release, water-soluble magnesium. Rectal cramps probably can be prevented most of the time by using the highest tolerated doses of daily magnesium—slow release is the recommended approach but many patients also need the quick-acting powder at bedtime to prevent all kinds of Lyme-caused muscle cramping or spasms."
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by kgg: Rectal cramps probably can be prevented most of the time by using the highest tolerated doses of daily magnesium—slow release is the recommended approach but many patients also need the quick-acting powder at bedtime to prevent all kinds of Lyme-caused muscle cramping or spasms."
- Then I myself would up the magnesium and for the best results, go with ReMag. It is amazing.
PS .. REMAG .. NOT RNA drops...
Posted by lpkayak (Member # 5230) on :
I wonder how dr sherr is. I had a long conversation with her once. She was very kind when i was very scared
Posted by lpkayak (Member # 5230) on :
Thanks steve for being my personal secretary
When i read old stuff. Like that i know i wrote it...i sort of remember.. but without reading it i wiuld never remember the detail.
My brain has had a ruff time. Two closed head injuries, lyme and possibky mold damage
Crazy life we are all living. Its easier sharing it with my LN friends
Posted by sfcharm (Member # 9392) on :
Thank you all for your responses.. I have had five full days with no rectal/ lower back pain. I am five weeks into antibiotic treatment.. I have had every test/scan out there and at this point I have to assume it's lyme.
The fact that the pain is gone tells me the antibiotics must be beating it back.. I'll keep you all posted.
Posted by Catgirl (Member # 31149) on :
Yay sf (lyme does weird things)!
Posted by Lymetoo (Member # 743) on :
Hope that keeps up!
Posted by sfcharm (Member # 9392) on :
After a series of Catscans, Mri's and even a Petscan my Dr. is of the conclusion I am dealing with my Lyme disease. I was diagnosed in June 2006 and treated aggressively with IV Rocephin for one year and one year of bicillin shots and orals..
Since that time I have had to treat every other year for three months at a time.
I hesitated to blame this past bout of symptoms sacral pain, sciatica and severe rectal pain on lyme.. The rectal pain was nonstop for five straight weeks. The Dr. put me on Percocet for the pain... The goods news is after five weeks on antibiotics everything has gone.
I am even more aware of the fact now that I have chronic lyme and need to probably do yearly maintenance to ward it off..
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