We have just moved to the Columbus area and I am looking for a doctor to help with what may be Lyme. Not necessarily looking for LLMD but a doctor who has seen Lyme or is able to diagnose the undiagnosable. Do NOT want a doctor who is only Lyme or convinced everything is Lyme. (Saw one of those, cost me lots of money and was no different than my experience at Mayo.) If they take insurance, that would be best.
Thanks!
Posted by bettyg (Member # 6147) on :
welcome 5
i'll let ohio folks help you find a REGULAR PCP vs. one of our llmds, lyme literate mds.
Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!
The following is some links that may be helpful to you:
People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.
The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.
This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):
ILADS The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org
They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.
Optional tests include: co-infection panel for your area of country and PCR whole blood
Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.
Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.
For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.
You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.
Go to left hand corner and mark box to receive `all replies', and click edit send.
Thank you for posting in a manner that makes it easier for all to read and help others.
Posted by Siciliano (Member # 15920) on :
PM sent
Posted by five4me (Member # 22843) on :
Deleted the duplicate that was annoying folks.
Still looking for info on either a good PCP who has experience w/ Lyme (or at least is willing to listen/learn) or an LLMD in Columbus OH area.
I worked with a PCP in our previous town who was good. After no luck with specialists, Mayo and an LLMD he researched Lyme, EBV, etc himself, made calls, read what I brought him from this site, etc. THAT'S what I'm ideally looking for. Will consider another LLMD but had a really rotten experience with the last one and honestly can't afford it unless they take insurance.
Any info would be greatly appreciated.
Posted by Abxnomore (Member # 18936) on :
Please don't stress over duplicate posts. Those of us who are on this site daily can navigate around such trivial matters.
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