LymeNet Flash: Columbus OH area doctor

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Columbus OH area doctor

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Author

Topic: Columbus OH area doctor

five4me
Junior Member
Member # 22843

posted

We have just moved to the Columbus area and I am looking for a doctor to help with what may be Lyme. Not necessarily looking for LLMD but a doctor who has seen Lyme or is able to diagnose the undiagnosable. Do NOT want a doctor who is only Lyme or convinced everything is Lyme. (Saw one of those, cost me lots of money and was no different than my experience at Mayo.) If they take insurance, that would be best.

Thanks!

Posts: 9 | From OH | Registered: Oct 2009 | IP: Logged |

bettyg
Unregistered

posted

welcome 5

i'll let ohio folks help you find a REGULAR PCP vs. one of our llmds, lyme literate mds.

Welcome to Lymenet! I'm so glad you found us! You've come to the right place for education and support!

The following is some links that may be helpful to you:

Lyme Disease and Co-Infection Symptoms
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/81386

Dr. Burrascano's most recent "Diagnostic Hints and 2008 Treatment Guidelines for Lyme and Other Tick Borne Illnesses" http://www.ilads.org/lyme_disease/treatment_guidelines.html

Pages 17-19 discuss Adult and Kids Treatments
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/80440?#000006

Dr. B's Supplement List
http://www.lymepa.org/Nutritional_Supplements.pdf

``Making the most of your LLMD visit''
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic&f=1&t=020605#000005

New Member Learning links:
http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/29917

Link to Turn the Corner Foundation: Good info and contacts for finding a good LLMD. http://turnthecorner.org/lyme-disease-quick-facts.htm

People seeking doctors might be able to get help from their state online information and support group. Nearly 3,400 people belong to state groups. Some of the groups are small but more than 20 of them have 50 or more people and seven have over 100.

The groups are moderated and you have to apply. Most don't allow doctor names, but once on the group, you can ask for doctors in a certain area and ask people to email you privately.

To find your state group, go to
http://health.groups.yahoo.com/group/statenamelyme

Type your state name and lyme as one word, like this -
http://health.groups.yahoo.com/group/newyorklyme

South Carolina is the only state that needs a hyphen between the statename
and lyme, e.g. http://health.groups.yahoo.com/group/southcarolina-lyme

This explains the medical politics around Lyme, and why you need an ILADS-educated or ILADS-member LLMD (and there are also some ILADS-member LL NDs (naturopathic doctors):

www.clinicaladvisor.com/Controversy-continues-to-fuel-the-Lyme-War/article/117160/

You should also be evaluated for coinfections. Not all tests are great in that regard, either, but a good LLMD can evaluate you and then guide you in testing. www.igenex.com http://www.frylabs.com/; http://www.clongen.com/; http://focusdx.com

Dr C's Western Blot explanation is discussed here:
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=042077

ILADS
The International Lyme and Associated Diseases Society (ILADS) provides a forum for health science professionals to share their wealth of knowledge regarding the management of Lyme and associated diseases. www.ilads.org

Under Our Skin Lyme Disease documentary www.lymediseasefilm.com

Herxing Reactions: http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=041517

For the Igenex Western blot IgM and IgG blood test drawn on M, T, or W. Check current $$! Oct. 2008 Price List ... info only. Prices have increased on some! Call 1-800.832.3200 for current prices.
http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/78648?#000003

They will also send you a ``test kit'' with their required form, all the test vials, & box to ship it in. Be sure to download Igenex's required form. MD, DO, ND, AC, DC are all fine** must sign, date, and show diagnosis code on there why he's ordering the test.

Optional tests include: co-infection panel for your area of country and PCR whole blood

Igenex is pre-pay/out of network for most insurances. If you are on medicare, Igenex will file the paperwork & it's free to you.

Get copies of all of your special bloodwork.

Overseas instructions for sending to Igenex/Fry Labs (2-23-08)
http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=063751

Betty's suggested posting guidelines: Many of members have neuro lyme, and it is hard to read long solid block text and be able to comprehend.

For easier reading, please edit your post by clicking the ``paper pencil' icon to right of your user name, which opens up the subject line and body text.

You can break up your longer paragraphs into smaller paragraphs. Please hit ``enter'' key twice after each paragraph, also.

Go to left hand corner and mark box to receive `all replies', and click edit send.

Thank you for posting in a manner that makes it easier for all to read and help others.

IP: Logged |

Siciliano
Frequent Contributor (1K+ posts)
Member # 15920

posted

PM sent

--------------------
I'm sorry but I am no longer accepting any private messages due to my own battle with lyme.

Posts: 3897 | From New Hampshire | Registered: Jun 2008 | IP: Logged |

five4me
Junior Member
Member # 22843

posted

Deleted the duplicate that was annoying folks.

Still looking for info on either a good PCP who has experience w/ Lyme (or at least is willing to listen/learn) or an LLMD in Columbus OH area.

I worked with a PCP in our previous town who was good. After no luck with specialists, Mayo and an LLMD he researched Lyme, EBV, etc himself, made calls, read what I brought him from this site, etc. THAT'S what I'm ideally looking for. Will consider another LLMD but had a really rotten experience with the last one and honestly can't afford it unless they take insurance.

Any info would be greatly appreciated.

Posts: 9 | From OH | Registered: Oct 2009 | IP: Logged |

Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936

posted

Please don't stress over duplicate posts. Those of us who are on this site daily can navigate around such trivial matters.

We're more concerned about being of help to you.

I'll PM you some ideas.

Posts: 5191 | From Lyme Zone | Registered: Jan 2009 | IP: Logged |

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