LymeNet Flash: physical therapy

This is topic physical therapy in forum General Support at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/3/29899

Posted by hezzer926 (Member # 17902) on :

Hello, I'm a 27 year old female who has been dealing w/lyme, bart, and babesia for a few years now. I've made great strides and my Dr want me to get reconditioned.

He gave me a prescription for PT, but said to try and find one that deals more w/athletes. I've done PT in the past and it wasnt very helpful. I'm at the point now where I can do weights and strength training etc (not just stretching type things)

Does anyone have any recommendation for this type of PT in the central NJ area-- If anyone knows someone who's worked with lyme patients before that would be great!!

Posted by Keebler (Member # 12673) on :

-
Is this your LLMD? Or your regular doctor.

Your LLMD should have some names of LL PT. I would NEVER, EVER see a PT who is not ILADS-educated and lyme literate. I had horrible errors from those who did not know enough.

I hope you can get some good names from people here.

You might also ask your local lyme support group leader / members for good PTs. If no luck there, find the CFS support group and ask for any PTs who have helped them.

While CFS can be undiagnosed stealth infection such as lyme, Cpn, etc., if a PT understands CFS, they are more likely able to wrap their head around what lyme can do to a body and the unique methods required for rehab.

=============================

http://www.ilads.org/lyme_disease/B_guidelines_12_17_08.pdf

Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses

Dr. Burrascano's Treatment Guidelines (2008) - 37 pages

------------
As important as any supplements, sections regarding self-care:

Go to page 27 for SUPPORTIVE THERAPY & the CERTAIN ABSOLUTE RULES

**** pages 31-32 for advice on a safe, non-aerobic exercise plan and physical rehabilitation. ****

An actual P.T. prescription / outline is here. But, remember, it should be individualized to your needs, at each moment.

----------------------
This is included in Burrascano's Guidelines, but you may want to be able to refer to it separately, too:

http://www.lymepa.org/Nutritional_Supplements.pdf

** Nutritional Supplements in Disseminated Lyme Disease **

J.J. Burrascano, Jr., MD (2008) - Four pages

==================================

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=077325;p=0#000000

Topic: To everyone with CARDIAC symptoms please read!

Scroll down in this thread. It includes - to help with endurance -

MITOCHONDRIA, MYELIN & ADRENAL SUPPORT

Various kinds of exercise are discussed such at Tai Chi, Qi Gong, Pilates, etc.
-

Posted by Keebler (Member # 12673) on :

-
Some insurance policies require faster improvement with PT than what many with lyme can muster.

If you feel pressured to meet the PT goals with benchmark improvements for each visit,

you might better enjoy and benefit from a "restorative" yoga class, or certain styles of Tai Chi, Qi Gong - or a Pilates class to match your needs.
-

Posted by hezzer926 (Member # 17902) on :

My LLMD did give me the prescription but he is an hour away in nyc and I'm in central jersey. Any names out there?

Posted by WhitneyS (Member # 25666) on :

Just make sure to be upfront with your therapist, and give him Dr B's recommendations for exercise.

Start with no cardio, low weight, high repetitions, no longer than 60 min....