Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I just got a PM from sammy:
"I just got a call, have to go to the ER now. My hgb and rbc are dangerously low, below transfusion level.
I'm so scared and upset. I really don't want to go but have no choice.
They are also making me stop all meds. Please pray and ask others to pray for me too."
I called and spoke with her; her LLMD has sent her to the ER and will speak with the ER drs. I also said to call the immunologist to speak with the ER drs about the effects of IVIG on the hemoglobin and red blood cells. So she is going ASAP.
Please send love and prayers her way. She has had to deal with way, way too much. I'll update as I get news from her. Thank you!
Mods: This would ordinarily go under General Support, but it's urgent, so I want people to see it right away. Thank you.
[ 05-23-2012, 03:38 PM: Message edited by: Rumigirl ]
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posted
oh dear. Rumigirl, please, please, let sammy know that prayers are being raised up for her as I type this.
Thanks for letting us know.
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Jane2904
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posted
Prayers for Sammy.
Please keep us posted.
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Carol in PA
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posted
Sammy, May the good Lord guide the nurses and doctors who treat you.
I pray that the transfusion will help you.
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sparkle7
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posted
I hope your suffering will be over soon, sammy! You have had more than enough. All the best to you!
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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Haley
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posted
Sammy,
May God bring you strength to make it through.
Will be thinking of you.
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glm1111
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posted
Sammy,
So sorry you are so sick. Sending HUGE thoughts and prayers yiur way.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Tammy N.
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Sending healing thoughts. May God give comfort to Sammy and much-needed wisdom to the docs so she can have the best possible outcome. Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
Sammy, Praying for you. I'm so sorry you're enduring so much right now. Looking forward to the time this will turn around and you will be healed!
-------------------- Ecclesiastes 4:9-10 Two people are better off than one, for they can help each other succeed. If one person falls, the other can reach out and help. Posts: 338 | From NEPA | Registered: Mar 2011
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Sammi
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posted
Rumigirl, thank you for letting us know this.
sammy, my thoughts and prayers continue for you. You have been through enough already! Please hang in there, we are all pulling for you.
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She's in my thoughts! She has suffered so &^*% much, it's horrible.
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Lauralyme
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posted
Sending healing thoughts your way
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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randibear
Honored Contributor (10K+ posts)
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posted
sammy I'm so sorry you're going through all This. Lyme sucks...
Get well soon and I'm praying for ya
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Dekrator48
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posted
Praying for you, sammy!!
Will be waiting to hear an update.
I'm so sorry that you are experiencing this.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Hope Sammy has thought of this question and asked -- is there any possibility that she is having internal bleeding as a result of the 2nd back surgery which I think was only a week ago?
Otherwise the low RBC could obviously be from babesia -- always so hard to say if that means the meds are working really well and killing infected cells or that the meds are not working and the babesia is multiplying and killing infected cells.
Sammy -- You are in my thoughts and prayers.
Bea Seibert
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Dogsandcats
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posted
Prayers for you Sammy - God sees all and can heal everything - praying for that healing touch now.
Keep us posted.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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Rumigirl
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posted
Thank you, everyone, for sammy. I will call her tomorrow and find out how she's doing. I almost called tonight, but surely she is totally caught up in dealing with it all in the hospital. What a shock. She was really upset, understandably!!
Bea, both ideas are real possibilities, I'll pass them on tomorrow. I also thought that it could be from the IVIG possibly, as my neuro was not worried about my continued low WBC, which he said IVIG can cause. I"m not sure if it can also cause low RBC, maybe not.
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posted
Prayers!
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sammy
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posted
I'm here
Thank you all so much, thank you everyone for thinking of me and praying for me.
God heard our prayers and answered the cries of our hearts. He definitely provided for me tonight.
I was truly blessed because the ER doctor that I know was working tonight. He knows my story, what I have been through with other doctors, and how I have struggled with these devastating life changing infections over the past couple years. I knew that I could trust that he would take care of me and not judge me.
So I was blessed that this doctor was working, blessed to be able to see/ request him because this ER is the busiest and largest in the state. I was blessed that my ER doctor was so willing to work with my LLMD.
After thorough history and exam, they decided to first check my labs. Thank God, they were better! Not nearly good but better than yesterday. So they decided that I wasn't actively bleeding to death and let me go home for now.
Who knows what tomorrow will bring. Maybe I should not answer my phone Just kidding!
Hopefully I will be allowed to restart my antibiotics before I start to relapse and my fevers come back. I tend to relapse and get sick very quickly when off antibiotics.
When I speak with my LLMD I will have to ask about the possibility of babesia flaring/needing more treatment (eosinophils are always high too). Also try to find out about the IVIG.
First I need to get some sleep.
Thank you Rumi for helping me with this post. I was way too upset to be able think clearly and write OK earlier.
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glm1111
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posted
Sammy,
Soooooooooo glad that you are okay!!! Just noticed that your eosinophils are always high.
That can be very indicative of a parasitic infection, and so can low rbc and hemaglobin. I forget....are you taking any antiparasitics? I was on 2 years of IVIG...did not help me, but everyone is different.
Maybe a combo of antiparasitics and abx could help you. Just thinking out loud. Really would like to see you make some progress.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Rumigirl
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posted
Yeah!! I'm sooo glad that your are home, and that you had an understanding dr, and that you didn't need a transfusion!!
More tomorrow.
xoxoxo
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Carol in PA
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posted
quote:Originally posted by sammy: So they decided that I wasn't actively bleeding to death and let me go home for now.
. Yayy!
Hope you can get some sleep.
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BoxerMom
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posted
Sleep tight, and keep us posted. I'm glad you got to go home.
nonna05
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posted
Lord cover Sammy tonight as she tries to sleep, watch over her, send your healing power to move throughout her body.
Give her the relief she so needs and protect her from anymore damage.
Bless her from head to toe. Let her feel the love from those that are praying for her. Move the mountains of doubt and give the doctor's clear direction for the best outcome .
We praise you and Thank you,, Amen & Amen
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Sammi
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posted
sammy, I am so glad your labs improved enough! This is what I prayed for. Thanks for letting us know.
You must be so exhausted. Take good care and get some rest.
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Dekrator48
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posted
Glad to hear that you were seen by a Dr you can trust, your labs were a little better and you are home.
I will keep praying for you, dear friend.
Hugs!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Jane2904
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posted
Glad to hear things are better. Hope your Dr. figures it all out.
Hugs and hope you get some sleep.
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Marnie
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posted
Get some good delta wave - ATP producing sleep! (Not kidding.)
May God bless you with a miracle.
What about:
A patient with acquired immune deficiency syndrome (AIDS) and babesiosis failed treatment with azithromycin and atovaquone followed by quinine and clindamycin.
The *addition of* atovaquone-proguanil (malarone) to the treatment regimen led to cure.
posted
If that's not an answer to prayers, I don't know what is!!
We'll keep praying!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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glm1111
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posted
VERY profound insight TuTu. I agree!
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Catgirl
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posted
Hang in there Sammy!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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momindeep
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posted
Whew!
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posted
Cool beans! Silver and I are keeping you in mind.
-------------------- I have a good time wherever I go! Posts: 665 | From Lost Wages, NV | Registered: May 2006
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RZR
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posted
Hope you are feeling better, Sammy. Prayers for you.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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sammy
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posted
Thank you for your prayers friends. They are very much appreciated!
Yesterday was really rough. I was feeling very feverish, woke up with a rash (little red bumps with lines) across my abdomen and chest, all my joints were stiff and painful, and I had an awful migraine.
I'm feeling slightly better but the crazy rash is still here. Weird. It doesn't itch or hurt. I'm stumped as to what it's from.
My doctor let me restart my antibiotics. He doesn't think that it is babesia causing this drastic rbc destruction/anemia. I asked if he thought it was viral and he said no. It is also not caused by the IVIG. All he could tell me was that he was very worried. I don't want to worry him.
Next week I will follow up with my hematologist. They gave me an emergency appt with him. When I first called they told me that the doctor was completely booked for at least 10wks. That's crazy! I told her that I'd probably be dead by then if my hgb keeps dropping... At least that got her attention and I got to talk to a nurse
I'm extremely grateful for the extraordinary care that my LLMD and his wonderful NP continue to give me. I'm so glad that they haven't given up on me yet. I hope and pray that they never will.
We are truly blessed to have our LLMD's on our sides.
Posts: 5237 | From here | Registered: Nov 2007
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posted
The rash almost sounds like shingles but I think that would itch.
Have you ever been diagnosed with ehrlichia, anaplasma or RMSF? All of those can cause a rash -- and they all can cause both low WBC, low RBC, low platelets and fevers.
Are your platelets low? -- I think that can also cause a rash.
If it is not babesia then I think the next obvious thing would be one of the rickettsia diseases I listed above.
Have you changed any meds recently?
While you are waiting for your appointment with the hematologist I would suggest making a chart for the last 4 or 5 months of your routine bloodwork. I do this for hubby. I just list the key variables for him -- RBC, hemoglobin, hematocrit, platelets, RDW, WBC, bilirubin, AST and ALT. This way it is easy to keep track of any significant changes and then we can look at his med list and see if changes there are reflected in improvements or worsening bloodwork.
Hubby has bloodwork done weekly and I would assume you are having it done at least a couple of times a month since so many things are going on with you.
Does your doc order routine urinalysis? If babesia was very active generally I would expect to see a few RBC show on the urine testing. Or possibly elevated urobilinogen (excess bilirubin from destruction of RBC can spill over into the urine).
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Just wanted to add my prayers. If you can Press through then so can I It's been a really and week but not like this. Thanks for keeping posted
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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posted
Just wanted to add my prayers. If you can Press through then so can I It's been a really and week but not like this. Thanks for keeping posted
-------------------- Tick bite in 2006, bullseye rash, treated with 2 rounds of 2 weeks of doxy. (once in 2006, once in 2009) Dx with chronic Lyme May 2011. LLMD April 2012, Treating with omnicef/zith Lots of supplements! Posts: 640 | From Connecticut | Registered: Apr 2011
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nonna05
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posted
Sammy , praying and hope you're feeling a bit better every hour..
What's Stephen Johnson syndrome from/ what is it?
Was she on something that causes it?
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lyme in Putnam
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posted
Prayers up.feel better sammy
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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sammy
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posted
pme, I'm sorry you've had a really rough week too. Glad we've both made it through
Thankfully my rash and symptoms do not look like Stevens-Johnson syndrome. That is a really scary possibility that I had not even considered until Lymetoo mentioned it.
Stevens-Johnson syndrome is a serious skin condition that can be caused by medications and rarely even infections. Certain medications have a higher risk for this like Septra/Bactrim. Symptoms usually start with fever and sore throat then you will develop the classic blistery rash. This can be fatal.
I don't think my rash looks like shingles either. If someone can tell me how to post a pic, I'll put one up here and maybe you all can tell me what you think.
The only recent med change I've had was when I did a brief (10day) RX parasite treatment protocol. I finished it about 10 days ago. I still have elevated eosinophils so that probably wasn't enough to treat what was found by metametrix.
And yes, my LLMD wants my CBC and CMP to be done every 7-14days. So I'll have plenty of lab results to bring to my hematologist. I doubt that he will be interested though. I started seeing him this past winter, my labs were essentially the same. He ran all kinds of tests and decided that it was the infections causing my abnormalities and that I just needed to keep treating. I was released from his care in Feb. I'm kinda dreading this appt. I think the only test he didn't do was a bone marrow biopsy.
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glm1111
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posted
Agree with manybites as I have posted above, that PARASITES can cause anemia. Dr. K. says you have to get rid of G.I. parasites in order to get rid of babesia.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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sammy
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posted
I did test positive for a parasite through Metametrix, "taxonomy unknown". I also have a history of foreign travel and volunteer work what you would consider very high risk conditions.
I've had elevated eosinophils throughout my Lyme treatment. They drop down some but never close to normal.
My LLMD recently treated me for the unknown parasite with 2 days of bitricide, 1 day of pin-x, 1 day of ivermectin, and 6 days of alinia. That is all he feels is necessary right now.
He thinks that there are more urgent matters to take care of first. He is very wise and experienced so I can't help but believe him. I don't know if he has much experience treating parasites though.
I will try to ask for more treatment during my next appt. It is hard to know what is needed when we don't know what is causing the problems.
I've also done over a year of treatment with Mepron, Biaxin and Plaquenil + herbs and other Lyme meds. That combo was not enough to kick my Babesia. We are constantly trying to treat Babesia (with other meds now). We are trying.
Posts: 5237 | From here | Registered: Nov 2007
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Can't even imagine how frustrated you must be. I seem to somehow have lucked into a combo of meds and herbs that is definitely stirring things up for hubby -- hopefully we are killing things and they are not just replicating.
His LLMD was sick and cancelled his appointment this week so we are just continuing on with our experimenting.
In your situation I would probably be nervous about trying herbs and other things on my own as you already have so many issues.
You are dealing with pain, immune deficiencies and critical bloodwork issues. It seems like improving the bloodwork might be the first order of business. If the hematologist still says infection is the issue then it seems like the logical infection would be parasites (either G.I related or bloodborne -- such as babesia).
Maybe you could try adding alinia and or ivermectin to your current meds on a long term basis. Hubby took alinia at 1/2 dose for 4 months and then at full dose for another 4 months. At the time he was taking bactrim. I do think those 2 meds were bacteriostatic at the time for his babesia.
And the ivermectin really does seem to be helpful with hubby's babesia in combo with other babesia meds. It has just about one of the cleanest side effect profiles of any med I have ever seen.
I think you are going to have to speak up and insist the doc at least try something different. I don't believe everyone has significant parasite issues, but you do have multiple indicators that that could be your problem.
Good luck.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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sammy
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Member # 13952
posted
Hi friends,
I saw my hematologist yesterday. Was holding my breath because I wasn't sure how this appt was going to go.
The nurse drew my blood when I got to the office so that he could review my results before seeing me. My red blood cells and hemoglobin were even lower than before. Other things were abnormal but were typical for me, he says "signs of current infection".
I brought copies of my last couple months of labs CBC, CMP, and the osteoporosis work-up because some of it is endocrine/auto-immune/cancer related. I figured I had the labs so he might as well get a copy too.
He noticed that my iron levels were on the lower end of normal so he's thinking that they may have dropped since I'm now more symptomatic. I'm going to start IV iron infusions this monday. I'll get a couple and then we'll watch to see if my levels hold steady.
He thinks that this should fix my severe anemia problem and help with some of my symptoms. He was actually really nice. My last visit with him was not pleasant. I would not have chosen to see him again had this not been an pretty urgent situation.
So I left my appt feeling pretty encouraged. I hope the IV iron helps. I'd really like to feel better.
I know that I still need to talk with my LLMD about the parasite stuff. It is probably contributing if not causing some of my current problems.
Hoping at least that this is a step in the right direction.
Posts: 5237 | From here | Registered: Nov 2007
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posted
Hope the IV iron helps, I'm continuing to pray for you, as I know many others are too.
There are different types of anemia, and many different causes. Did the hematologist think yours is iron-deficiency anemia?
One thing I have not seen addressed in this thread is your kidney function. The kidneys make something called erythropoietin, which is essential for the production of new RBCs. If kidney function is compromised, production of erythropoietin drops, the body is unable to make enough RBCs to replace old ones (average life of RBCs is 90 days), and anemia develops.
Treatment of anemia differs depending on the cause, so I just wanted to throw this information out and ask if this angle has been addressed. How are your BUN and creatinine levels? That is one of the first things to look at to determine kidney function.
Posts: 962 | From Charleston | Registered: Jan 2002
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sammy
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posted
Thank you Lymetoo and Maryland Mom.
My hematologist does think that I have iron-deficiency anemia. My LLMD will disagree. So we will see if the treatment helps. It will be pretty clear because I have my labs checked every other week.
I know that this is the easiest and most obvious form of anemia. Maybe that's why the doctor is just going to try this first. Before doing more invasive tests.
No one has asked me about kidney function before. On my last set of labs BUN was 14 (norm 6-20) and Creatinine was 0.97 (norm 0.57-1.00). Bun/Creatinine ration was 14 (norm 8-20).
Usually my creatinine is lower but I know I've been dehydrated lately, not drinking enough because I don't want to upset my stomach. It was also elevated when this lab was drawn because I was taking an RX anti-inflammatory (not taking it now). My LLMD said the creatinine level was better last week but I did not get copies of my labs in the mail yet.
I know kidneys are delicate, I don't want to hurt them.
Posts: 5237 | From here | Registered: Nov 2007
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nonna05
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Member # 33557
posted
Hi there ! Seems like your doing better.... How's the back??
Glad to see your able to post and keep us up to date....
I have a PM out to you... Take care , Nonna
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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posted
Could you be having an allergic reaction to meds? When my eosinophils were high, it was caused by meds.
Has your body had any reactions to the osteoplasty? I haven't been on Lymenet since the first ones were done awhile ago.
I was on antibiotics for 6 years and got sick every time I tried to get off. My LLMD told me that I would have to stay on them, possibly forever.
I went to a functional medicine MD who told me there was a withdrawal period for people who have been on antibiotics for awhile. He suggested I taper off, then expect a couple of weeks of not feeling well. He was right, and I have now been off for some years.
I found,once off, that the antibiotics themselves were exacerbating a lot of problems, including autoimmunity, and creating some as well, including massive food allergies from leaky gut.
Once off, my eosinophils went down. I also reduced inflammation by avoiding many foods.
Having health interventions from many directions, from providers with different philosophies on Lyme and co-infections, got me and my family into a lot of health troubles. Nowadays, I try to keep meds down and stay away from MD's unless absolutely necessary.
You don't have that luxury now, I understand.
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Sammi
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posted
sammy, I am so glad your appointment went much better than last time. What a relief!
Good luck with the iron infusions. Keep us posted on how you are doing.
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nonna05
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posted
I've only had an Iron shot once..from a doc that also did peroxide in blood and infa-red light sp?
All others have said you only take supplements to raise it....
What kind of place will do them,,,?/?///
There is no chance to go back to the original place, I spent over $4000 in 3 days for an Iron shot, massive Iv C, to the point of Hypoglycemic reaction sp?, two antibiotic shots and one back adjustment. Never felt one ounce better..
Actually that was about a year ago,,, I shouldn't be low in Iron , cause surgery etc, but I think I am,
Any other Medical/holistic places have always told me that you just have to supplement and it takes weeks if not months to feel better..
Think I better call Vitamin Cottage and ask their nutrition specialist..
I still don't think it was ever settled if we should eat liver etc...something about it feeding these bug's..
Sammy, You poor thing ,, I just can't imagine everything that is happening to you...It's crazy Domino's ..... I'm glad somebody is doing something to help..
It has been insightful ,through all this misery ,to watch Gods' hand move in your situation....
Have you had to work with a Hemotologist before Lyme??//
Did the vomitting settle down?// Anything new about the back...I hope the meds you got for that are still helping.
The idea that an infection is showing in your blood work, do you think it's new ? Kinda from the back ????
It's amazing with all the abx's we can still show that.....
I just pray the Lord will give you a few days of peace and healing rest..You've just had more than your share lately.
Praying for you.....Let me know if there's a specific request, OK ???? Posts: 2563 | From Denver,CO | Registered: Aug 2011
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poppy
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posted
Pug was lucky. Apparently the immune system is holding it down for now. Not everyone has a good outcome from stopping abx. Some people just keep sliding downhill. The consequences can be dire if meds are not resumed for those people.
Posts: 2888 | From USA | Registered: Mar 2004
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Sammy, you are in my prayers.....hope you will feel much better in the days ahead.
Posts: 574 | From New Jersey | Registered: Feb 2004
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A lot of my symptoms improved with IV iron infusions. My Dr. said a lot of my symptoms like chest pain could be from low iron. I think he was right because my chest pain has gone away.
My 5 year old also is getting IV iron infusions. It seems to be helping him too. he doesn't wake screaming with his legs hurting anymore.
Just some encouragement for you! I always like to hear there is hope for getting rid of these awful symptoms. Posts: 618 | From NC | Registered: Oct 2009
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nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
were do you get it done?/
I know a test is needed first..but not done at several places that do other IV supps
Posts: 2563 | From Denver,CO | Registered: Aug 2011
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Hubby just had the iron discussion with his LLMD Friday. Their opinion with which we agree is that you cannot starve out a parasite by restricting nutrients such as iron or folic acid (bactrim and daraprim use that method to kill babesia and malaria).
Hubby's ferritin is 30 which is low normal. His doc suggested adding iron supplements to get the ferritin up to at least 60 -- neurologists say that level will help eliminate some restless type neuro symptoms.
If you do supplement with iron then as long as you are treating for babesia if you have that infection it should not be a problem. Some docs even theorize that the supplementation will bring the parasites out of hiding as they go in search of the iron. If that is true then it should actually help with babesia treatment.
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Praying for you, Sammy.
Both Stevens-Johnson syndrome and lowered kidney function can be rare side effects of IVIG, but it sounds like those have been ruled out, which is great.
I'm so sorry you are going through so much! I will keep praying. Did the iron IV help you to feel better?
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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