Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I just got a PM from sammy:
"I just got a call, have to go to the ER now. My hgb and rbc are dangerously low, below transfusion level.
I'm so scared and upset. I really don't want to go but have no choice.
They are also making me stop all meds. Please pray and ask others to pray for me too."
I called and spoke with her; her LLMD has sent her to the ER and will speak with the ER drs. I also said to call the immunologist to speak with the ER drs about the effects of IVIG on the hemoglobin and red blood cells. So she is going ASAP.
Please send love and prayers her way. She has had to deal with way, way too much. I'll update as I get news from her. Thank you!
Mods: This would ordinarily go under General Support, but it's urgent, so I want people to see it right away. Thank you.
[ 05-23-2012, 03:38 PM: Message edited by: Rumigirl ]
Posts: 3792 | From around | Registered: Mar 2008
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posted
oh dear. Rumigirl, please, please, let sammy know that prayers are being raised up for her as I type this.
Thanks for letting us know.
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Prayers for Sammy.
Please keep us posted.
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Sammy, May the good Lord guide the nurses and doctors who treat you.
I pray that the transfusion will help you.
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
I hope your suffering will be over soon, sammy! You have had more than enough. All the best to you!
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"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Sammy,
May God bring you strength to make it through.
Will be thinking of you.
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sammy,
So sorry you are so sick. Sending HUGE thoughts and prayers yiur way.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Tammy N.
Frequent Contributor (1K+ posts)
Member # 26835
posted
Sending healing thoughts. May God give comfort to Sammy and much-needed wisdom to the docs so she can have the best possible outcome. Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
Sammy, Praying for you. I'm so sorry you're enduring so much right now. Looking forward to the time this will turn around and you will be healed!
-------------------- Ecclesiastes 4:9-10 Two people are better off than one, for they can help each other succeed. If one person falls, the other can reach out and help. Posts: 338 | From NEPA | Registered: Mar 2011
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
Rumigirl, thank you for letting us know this.
sammy, my thoughts and prayers continue for you. You have been through enough already! Please hang in there, we are all pulling for you.
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She's in my thoughts! She has suffered so &^*% much, it's horrible.
Posts: 161 | From vancouver island | Registered: Feb 2012
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Sending healing thoughts your way
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
sammy I'm so sorry you're going through all This. Lyme sucks...
Get well soon and I'm praying for ya
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Praying for you, sammy!!
Will be waiting to hear an update.
I'm so sorry that you are experiencing this.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Hope Sammy has thought of this question and asked -- is there any possibility that she is having internal bleeding as a result of the 2nd back surgery which I think was only a week ago?
Otherwise the low RBC could obviously be from babesia -- always so hard to say if that means the meds are working really well and killing infected cells or that the meds are not working and the babesia is multiplying and killing infected cells.
Sammy -- You are in my thoughts and prayers.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Prayers for you Sammy - God sees all and can heal everything - praying for that healing touch now.
Keep us posted.
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Thank you, everyone, for sammy. I will call her tomorrow and find out how she's doing. I almost called tonight, but surely she is totally caught up in dealing with it all in the hospital. What a shock. She was really upset, understandably!!
Bea, both ideas are real possibilities, I'll pass them on tomorrow. I also thought that it could be from the IVIG possibly, as my neuro was not worried about my continued low WBC, which he said IVIG can cause. I"m not sure if it can also cause low RBC, maybe not.
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posted
Prayers!
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sammy
Frequent Contributor (5K+ posts)
Member # 13952
posted
I'm here
Thank you all so much, thank you everyone for thinking of me and praying for me.
God heard our prayers and answered the cries of our hearts. He definitely provided for me tonight.
I was truly blessed because the ER doctor that I know was working tonight. He knows my story, what I have been through with other doctors, and how I have struggled with these devastating life changing infections over the past couple years. I knew that I could trust that he would take care of me and not judge me.
So I was blessed that this doctor was working, blessed to be able to see/ request him because this ER is the busiest and largest in the state. I was blessed that my ER doctor was so willing to work with my LLMD.
After thorough history and exam, they decided to first check my labs. Thank God, they were better! Not nearly good but better than yesterday. So they decided that I wasn't actively bleeding to death and let me go home for now.
Who knows what tomorrow will bring. Maybe I should not answer my phone Just kidding!
Hopefully I will be allowed to restart my antibiotics before I start to relapse and my fevers come back. I tend to relapse and get sick very quickly when off antibiotics.
When I speak with my LLMD I will have to ask about the possibility of babesia flaring/needing more treatment (eosinophils are always high too). Also try to find out about the IVIG.
First I need to get some sleep.
Thank you Rumi for helping me with this post. I was way too upset to be able think clearly and write OK earlier.
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Sammy,
Soooooooooo glad that you are okay!!! Just noticed that your eosinophils are always high.
That can be very indicative of a parasitic infection, and so can low rbc and hemaglobin. I forget....are you taking any antiparasitics? I was on 2 years of IVIG...did not help me, but everyone is different.
Maybe a combo of antiparasitics and abx could help you. Just thinking out loud. Really would like to see you make some progress.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Yeah!! I'm sooo glad that your are home, and that you had an understanding dr, and that you didn't need a transfusion!!
More tomorrow.
xoxoxo
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
quote:Originally posted by sammy: So they decided that I wasn't actively bleeding to death and let me go home for now.
. Yayy!
Hope you can get some sleep.
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BoxerMom
Frequent Contributor (1K+ posts)
Member # 25251
posted
Sleep tight, and keep us posted. I'm glad you got to go home.
nonna05
Frequent Contributor (1K+ posts)
Member # 33557
posted
Lord cover Sammy tonight as she tries to sleep, watch over her, send your healing power to move throughout her body.
Give her the relief she so needs and protect her from anymore damage.
Bless her from head to toe. Let her feel the love from those that are praying for her. Move the mountains of doubt and give the doctor's clear direction for the best outcome .
We praise you and Thank you,, Amen & Amen
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Sammi
Frequent Contributor (1K+ posts)
Member # 110
posted
sammy, I am so glad your labs improved enough! This is what I prayed for. Thanks for letting us know.
You must be so exhausted. Take good care and get some rest.
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Glad to hear that you were seen by a Dr you can trust, your labs were a little better and you are home.
I will keep praying for you, dear friend.
Hugs!!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Jane2904
Frequent Contributor (1K+ posts)
Member # 15917
posted
Glad to hear things are better. Hope your Dr. figures it all out.
Hugs and hope you get some sleep.
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Get some good delta wave - ATP producing sleep! (Not kidding.)
May God bless you with a miracle.
What about:
A patient with acquired immune deficiency syndrome (AIDS) and babesiosis failed treatment with azithromycin and atovaquone followed by quinine and clindamycin.
The *addition of* atovaquone-proguanil (malarone) to the treatment regimen led to cure.
posted
If that's not an answer to prayers, I don't know what is!!
We'll keep praying!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
VERY profound insight TuTu. I agree!
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Hang in there Sammy!
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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momindeep
Frequent Contributor (1K+ posts)
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posted
Whew!
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