lax mom
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Member # 38743
posted
If any of you read the free ebook: "CFS Unravelled", you will realize that all of our weird symptoms and dysfunctions in every body system can be caused by ANS dysfunction.
If you've treated and treated and killed and killed bacteria, parasites, viruses, mold, fungi, heavy metals, adrenals, thyroid and on and on, and are still as sick as ever...maybe the bugs are gone and the problem lies in your ANS.
2 weeks ago, on Bicillin, Zithromax, anti-parasitics, anti-fungals, etc, I was bedridden, unable to hold my head up.
I have been taking 50 mg Mino and just 4ml Argentyn 23, but mainly working on my ANS, meditating, treating hyper-adrenergic POTS, listening to soothing, uplifting music instead of researching my symptoms, which you will find made things worse...
My sweating wasn't Babesia because a beta-blocker stopped it. Malarone, Mepron, Zith only made it worse and never helped.
My fatigue and inability to even stand in the shower was due to hyperadrenergic POTS.
The ANS controls every last body system. So, if you've treated and treated with no improvement. Been to the best. Seen LLMD after LLMD...maybe you don't need to drink Borax, maybe it's your ANS.
Remember, ANS dysfunction is one of Dr H's differentials in the MSIDS model of treating chronic disease.
Any questions about this? Contact Lymetwister or myself.
Tammy N.
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posted
There is no doubt in my mind that all of us who have been chronically ill has ANS dysfunction. The trick is in discovering how it got damaged (Heavy metal toxicity, etc.?? Emotional disturbances?? who knows?? one can only guess) and how the heck we can get it back on track and in balance.
Posts: 2238 | From East Coast | Registered: Jul 2010
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posted
I started looking into this guy because I don't want to go years and years and years treating.
I am going to read his book and then begin to employ his methods because it can't hurt.
I will also keep treating and I am hoping that the combination of the two modalities will get me back on track.
Posts: 538 | From kentucky | Registered: Nov 2011
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lax mom
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posted
You're right Tammy, who knows what the original insult was?? But we can do things to aid our ANS to try to get it back to a more functional state.
Soccermama: That's what I'm doing. I'm not dropping my LLMD...but like you said, it can't hurt.
I just replaced "CFS" with "Lyme" while reading and it all made sense.
CD57
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Member # 11749
posted
hi! we have talked about this a bit. What is the treatment for the screwed up ANS...just meditation? Without question we have messed up ANS, we know that babesia in particular affects that system. I haven't had the time to start reading that book, but doesn't it seem too good to be true?
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Tammy N.
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I'm with you on all of this. This has been in my thinking for some time. And I work at it....for instance I do Qi Gong every single day (but there is no question I can do more). It's hard to find the fix though. For instance if you are mercury toxic, or if you have detox issues and live in a moldy environment, there is no amount of meditation or hormone balancing or whatever that will balance our ANS until the ongoing assault is eliminated, imo.
Posts: 2238 | From East Coast | Registered: Jul 2010
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glm1111
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posted
Agree with Tammy and when you look up the causes of ANS dysfunction, Lyme disease is among them. If you have a hyperinfection of parasites, bb, co-infections etc ,getting rid of the cause will also help the ANS come back to normal.
If you are not treating with the right protocols, it would make sense then that the ANS will still be affected.
These infections can play havoc with our nervous system, especially when you consider that bb is known to invade the central nervous system and brain.
Okay, trying not to be skeptical and just subscribed to watch the video. What is this guy selling down the road? Books, seminars?? Not opening it, till I have a clearer picture.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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glm1111
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posted
Just to add, back in 2002, I went into a 4 mos meditation, literally, night and day. Juicing, alkalizing, new age type high vibrational music, Reiki, journaling, enemas, color therapy, acupuncture and more that I can't remember.
Had some incredible spiritual experiences, but NONE of this alleviated any of my infections.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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lax mom
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posted
This week I have had a quality of life that I haven't had since I got sick in 2011...I'll take it and run with it.
In my case, I need to work on the ANS dysfunction and my LLMD recommended that I do.
posted
I have a small tablet and downloaded the CFS Unraveled ebook.
The problem is that somehow I am touching the screen and I lose my place in the book and have to scroll tons of pages to find where I was.
Is there a way to use my normal laptop to down load and read this?
Is there anyone that would be willing to post an outline of this book and the order he thinks is appropriate to treat the issues at hand?
I would really appreciate it.
I have brain terrible brain fog and a challenge for me to be able to stick to it and focus long enough to absorb the info.
Posts: 620 | From Ks | Registered: Oct 2011
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posted
I am still treating also but still feel my ANS is damaged from the infection. I need to go in a different direction because I herx and herx but never get better...I am reading the book and I feel he has more insight on what is wrong with me than the doctors and I have been to some of the best.
Posts: 343 | From North Carolina | Registered: Oct 2008
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lax mom
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posted
cozynana: Download the free Kindle for PC and you can read the book from your computer.
ktkdommer
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posted
Thanks, Lax. There are two posts going on about POTS so people need to read this post also.
I am so happy that you are getting relief in any way that you can. You deserve it!
I will give the book a try as my youngest still has strong ANS issues that are not clearing.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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Rivendell
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Lax Mom,
I'm glad that you are improving. I've have ANS so bad that has disabled me. It has been going on for over 10 years.
I doesn't happen when I first stand or sit upright, but rather slowly over the next several minutes. Blood leaves upper part of body and brain and goes into feet. It is slow torture.
Nothing has turned it around. I am helped somewhat by licorice root and florinef and increasing salt and potassium.
Beta Blockers made me feel worse.
I have gone to two different cardiologists who just sort of gave up on me. I know my LLMD is puzzled as well.
I am still on dial-up, believe it or not, to save money, so probably won't be able to read the above.
But, if there is something I have missed in my treatment that you think might help, please let me know.
(I used to meditate for hours, but when I hit bottom with this disease, meditation was not possible. I hope to be able to meditate again someday. It was wonderful to feel bliss.)
So glad you are improving.
Posts: 1358 | From Midwest | Registered: Apr 2009
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TF
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posted
Rivendell, I have been researching orthostatic hypertension for a friend who has POTS. Her blood pressure soars when she stands up and this is a real concern.
I wonder if you have ever tried prazosin or clonidine. These drugs work on the sympathetic nervous system which evidently is overreacting and causing this condition.
My research shows that this is because her blood is pooling in her lower legs, therefore making her heart go crazy trying to pump enough blood for the rest of the body.
I found this article which she is going to take to her doctor. Hopefully, one of these meds will control her condition as it controlled it for those in the study. Just thought it might happen to apply to you also.
She is going to put on compression stockings when she first wakes up to also try to stop the blood from pooling in her legs when she stands up. We found an article that recommended that. Hope this idea can help you also.
Posts: 9931 | From Maryland | Registered: Dec 2007
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lax mom
Frequent Contributor (1K+ posts)
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posted
I agree with TF. Hyperadrenergic POTS requires different treatment than regular POTS.
My Cardiologist RX'd TED stockings like TF mentioned. It helps the blood flow around my whole body instead of pooling.
Rivendell
Frequent Contributor (1K+ posts)
Member # 19922
posted
Actually, I have othrostatic hyPOtension, blood pressure slowly drops while standing or sitting upright. During a tilt table test years ago (don't want another one, but should have one) my blood pressure went from 120/80 to about 70/60 over a period of about 8 minutes. (It just takes a drop of 20 in the blood pressure reading to be positive for this condition. Mine went much lower.)
The compression hose 30/40 helped me some, but was allergic to the bands on the top (raw welts), and the pantyhose or garder belt puts pressure on my stomach, making the acid reflux so much worse. (the relux could be part of the autonomic dysfunction, who knows.) The hose are way too hot in the summer.
So I wear compression knee highs, better than nothing.
Not sure what clonidine is. Haven't tried that one. I will have to research it. Also the metopolol. (Other Beta Blockers made me worse as did midodrine.)
I will save this thread.
I am in a real funk right now about going to doctors. Just absolutely SICK OF IT. (Part of the reason is having to sit upright in the waiting room. by the time I get in to see the doc, I am so foggy and "our-of-it, that I can't remember what I wanted to tell them, even with it written down. You would think the doctors would "get this", but they don't seem to.)
So when I'm ready, I may try yet another cardiologist and mention the clonidine, or mention to my endocrinologist, who does just as good with the Orthostatic HyPOtension.
Hope you all improve with the meds and hosiery.
Best wishes.
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