GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Argh.
I am feeling disheartened. Just when I thought I had both feet out of the pit, I am sliding back into it.
My fatigue has been terrible. A month now.
Anyways, I am trying ALCAR, 4,000 mg per day as instructed by my LL.
It has been 10 days. No change.
Did it help you with fatigue, and how long did it take until it started to kick-in?
I am also trying Provigil, but it isn't helping either and I don't like the idea of it.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Up.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Dogsandcats
Frequent Contributor (1K+ posts)
Member # 28544
posted
Are you trying provigil and ALCAR at the same time?
How much Provigil are you on?
Sorry to throw questions out, I am trying to figure out where you are at.
Provigil can work but when it starts to fade out of your system it can leave a fatigued state in the middle of the day.
Just my humble opinions....
-------------------- God will prepare everything for our perfect happiness in heaven, and if it takes my dog being there, I believe he'll be there.
Billy Graham Posts: 1967 | From California | Registered: Oct 2010
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
ALCAR did nothing for me. It might help your muscle problem though so I would continue it. I also tried NADH and it didn't do anything.
You just have to treat the right infection. This is such baffling disease trying to figure out what is causing what.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Provigil 5am and ALCAR at 9am and noon.
It gets me through the work day, but barely.
These infections are so frustrating. Just when I get used to feeling better, one leg slides back in the pit.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
What is ALCAR? I gather a supplement.
Posts: 3771 | From around | Registered: Mar 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Greta,
Dieoff can make you feel fatigued. Please try not to get too down. You know the cliché "One step up, two steps back." Keep moving forward and keep working on getting rid of these infections especially the parasites and you will feel better and better.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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GretaM
Frequent Contributor (1K+ posts)
Member # 40917
posted
Thanks Gael,
You are so sweet. Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013
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