posted
My daughter was just prescribed Tindamax to break up the cysts and L-forms. She is also taking Zith and Mino.
I research all her medications/suppliments and although I know all pose a risk Tindamax concerns me a lot.
This is the documentation I have found from many sources:
WARNING: POTENTIAL RISK FOR CARCINOGENICITY (HUGE CONCERN)
Carcinogenicity has been seen in mice and rats treated chronically also with metronidazole, another nitroimidazole agent.
Neurological adverse reactions (child already has neuro enchalpathy, PANDAS, OCD, High D1 Receptor)
Convulsive seizures and peripheral neuropathy, the latter characterized mainly by numbness or paresthesia of an extremity, have been reported in patients treated with tinidazole.
Vaginal candidiasis (not as big a concern)
Blood dyscrasia (child has anemia and Babesia Duncani) Tinidazole should be used with caution in patients with evidence of or history of blood dyscrasia.
My first question is: would you feel comfortable (given her symptoms) giving this medication to a child of thirteen or would you choose something more natural like GSE?
Second, has anyone chosen natural over Tindamax...and if so, do you think it has been just as effective as pharmacuticals ?
Would love and appreciate ALL feedback before I decide to fill or not to fill...very grateful for all your suggestions!
Posts: 166 | From USA | Registered: Feb 2010
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I try not to read into anything tooo much or we would all be worrying all the time, right?
It's just that she has so much working against her already I hate to take a chance...but sometimes the risks do outweigh the benefits.
With that being said, if they do well, would they need to repeat?
Posts: 166 | From USA | Registered: Feb 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My son and I take tindamax two days a week so I don't think it can build up. He is 15. He has been on it for 3 months and is doing fine. We both have mild herxing from it. Worse in the beginning and not much now. We take artemesia too. I think that is a cyst buster also. I'm pretty sure we take it for babesia. Too many meds and supplements to keep straight plus there are 3 of us. We hit the probiotics hard since we are on 3 antibiotics and we drink Kefer. Not problems with yeast so far. My son takes nystatin daily also. Best of luck!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I am not sure we did it long enough for my daughter. We switched LLMD's and the new one put her on something else. That is why I would like to see her on it again.
I also took it for a month before my LLMD switched me to babs treatment. I felt like it was making me herx so I would like to get back on it, too. My herxes are almost always very mild so I actually like them. I feel like I am making progress.
My daughter has been in her bed for 3 years, so I weigh what *might* happen with what already *has* happened.
Posts: 984 | From US | Registered: Dec 2007
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posted
My son and I have been on GSE for months, we have not seen alot of improvement on it.
Posts: 448 | From minnesota | Registered: Feb 2010
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posted
LymeXtu, how much do you know how to take? How can you tell if it's working?
jkmom, do you think your new LLMD will prescribe it or is she against it? I have been praying for you and your daughter. I was hoping she had improved some, I'm so sorry
Thanks for all the feedback everyone...I'm going to talk with the pharmacist today.
Posts: 166 | From USA | Registered: Feb 2010
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MariaA
Frequent Contributor (1K+ posts)
Member # 9128
posted
This particular med seemed to really clear up brainfog for me.
-------------------- Symptom Free!!! Thank you all!!!!
posted
I think the Tindamax worked on brain fog for my daughter, too.
The new LLMD is the one that prescribed it for me, so she isn't against it. She is just going after other things for both of us now. I don't disagree with this, but I do want both of us to take Tindamax again at some point.
When I say she did well on it, I mean she showed some progress on it. She was a long, long ways from being well.
When I talk to the LLMD again, I am going to ask about Tindamax again because it did look promising.
Posts: 984 | From US | Registered: Dec 2007
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Just have not noticed any difference on it good or bad.
Also it is about $10 a bottle for 60 capsules so it adds another $30 a month for us out of pocket.
Posts: 448 | From minnesota | Registered: Feb 2010
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onbam
Unregistered
posted
It may just be a toxic preservative in GSE that does the killing. Look up benzethonium chloride on google.
As with everything else, they don't know, though.
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