posted
Has anyone experienced neuropathy with bartonella? What helped?
Posts: 33 | From Silver SPring, MD | Registered: Sep 2010
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I haven't but the supplements Alpha Lipoic Acid and Acetyl L Carnitine are recommended for diabetic neuropathy so I imagine they would help neuropathy in lyme etc.
You can buy them together in one capsule from vitacost. 600mg alpha lipoic acid and 1000mg of acetyl l carnitine. The alpha lipoic acid is also a powerful antioxidant and helps detox the liver and kidneys.
The acetyl l carnitine also improves memory and stamina.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
I have neuropathy, and Bartonella is actually the only infection I tested positive for. I am taking Doxy, and I hoped with treatment it would improve. Not much help, anyone else?
Posts: 199 | From Niagara Falls | Registered: Dec 2009
| IP: Logged |
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I have very bad Bartonella, still positive despite long treatment with Levaquin, then Rifampin (and developed tendon problems with Levaquin and vision problems from Rifampin). I've been on Doxy five times. My last hope seems to be herbs, unless I can tolerate Septra/Bactrim which I may be allergic to so it's risky for me.
I had no success with Alpha lipoic acid or N-Acetyl Cysteine which are supposed to help neuropathy. Couldn't tolerate Neurontin. I have the combo of alpha lipoic acid and L-Carnitine so I may try that again.
I've tried a lot of topical things but that hasn't helped, but some people have had relief from B-12 injections. Again, I've tried, but haven't gotten relief. But neuropathy is one of my worst symptoms so I'm probably dealing with a lot of inflammation/irritation.
The nerves are supposedly very slow to recover from any type of injury or condition, so I'm still searching!
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
| IP: Logged |
Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
I developed small fiber neuropathy from Bartonella and Lyme. It was diagnosed by a punch skin biopsy. It was really bad. I now get IVIG for it.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic