posted
I have been sick for over 4 years now. Lots of neurological symptoms, severe anxiety, shaking, tremors, insomnia, body vibrations, pain, nausea, etc. Have been on disability. These symptoms are all day, everyday. They started after a cold turkey from benzodiazepines in 2007. I was put on them for insomnia which was my only most prominent symptom then. Then I had all of these other symptoms appear and never go away. Since then I have been on and off many, many psych meds to help with the symptoms which I know has complicated things further. Nothing seems to help much and then I end up physically dependent on additional med without much help in symptoms. I did do the Igenex testing for the Western Blot and also the CD-57 test through Igenex. It's been very questionable whether Lyme is the explanation for all of my symptoms or if there is central nervous system damage from the benzos and other psych meds. Here are the results and I appreciate your help. I did test negative through CDC and Igenex but wanted to post here anyway to get input. These are Igenex results:
IgM-negative-no positive bands except a weak positive for band 18.
IgG-negative-band 39 was IND, and band 41 was positive.
CD-57 result was very good/normal per Igenex with a result of 185.
Sed rate was normal.
Thanks for your thoughts and help.
IgM IgM-
Posts: 51 | From Indiana | Registered: Dec 2009
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Since Lyme is based on a clinical diagnosis you need an LLMD/LLND to diagnose you. You can post here in Seeking a Doctor for one in your area.
Your results do not indicate Lyme, but that is why a clinical diagnosis is so important.
Your presence of band 39 alone would make me question if you had Lyme, because band 39 can only react to the Lyme bacteria's DNA. It doesn't cross-react like some of the others.
Band 18 is an IgM which means it's a RECENT band, meaning a recent (or currently replicating) infection; this suggests something ongoing and not something of the past.
But the most significant thing to note is that all three of your bands react with a flagellum, and not many disease-causing bacteria have that as part of their structure--so that would suggest you have periodontal disease, syphillis, or Lyme disease.
But, again, band 39 can ONLY react to the DNA of the Lyme bacteria...
You do have enough symptoms for a clinical diagnosis... But I'd wonder if you additionally had an infection with bartonella becuase your symptoms are SO neurological--get much exposure to cats or fleas?
I think you owe it to try a round of Doxycycline (200-400mg a day) and see what happens--if you get much worse or improve, you'll know your answer!
Good luck.
little olive
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Hmmm... Band 39 is there and 18. Weak as the results are..those are specific to Lyme. My LLMD says that some of the sickest patients have the least positive bands, because their body can't fight enough to make antibodies that would show up on the tests.
I'd definitely see an LLMD (who would probably clinically diagnose you based on symptoms...I have had ALL your symptoms with more to spare!) The body vibrations really ring true for me as one of my first disturbing manifestations of LD.
I'd say to do an antibiotic challenge with an LLMD and test again later to see what else shows up.
Were you tested for co-infections?
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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posted
Thanks for the responses. No, I was not tested for co-infections. The odd thing is that Igenex said both Western Blots were negative and I talked with them and they said based on those results I do not have Lyme Disease. I would think they are pretty well respected as a Lyme testing center, etc. and would know some of the things you are saying about certain bands indicating definite Lyme. I don't understand how they don't know these things. I also wondered about my system or body being too weak to make the antibodies but the CD-57 result shows my immune system is functioning and not too weak. I do see a LLMD but they have left it up to me to decide if I want to pursue treatment and could not give me a yes or no answer about my results. Sooo confusing. Thanks again.
Posts: 51 | From Indiana | Registered: Dec 2009
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Maybe you could do a trial run of abx and see what your response is. My daughter had few symptoms and an ambiguous test but when we put her on abx, she responded well, so we kept her on them until her symptoms resolved.
She also had issues with heavy metal toxicity and that was treated also.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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If it were any of us, we'd do the trial run--200mg Doxycycline twice a day--and see if anything happens. Even the LLMDs use this approach when the tests are ambiguous. (Unfortunately all LLMDs aren't the same, just like there are knowledgeable and unknowledgable cardiologists, rheumatologists, etc.)
This isn't a disease you want to miss!
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Timaca would most likely say to check other infectious possibilities out like EBV, HHV6, Enterovirus, etc. since the Lyme results are very, very weak. Have you done all that? I guess it wouldn't hurt to try a trial of treatment, but those results sure don't scream out anything IMO.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by Loripink01: The odd thing is that Igenex said both Western Blots were negative and I talked with them and they said based on those results I do not have Lyme Disease. I would think they are pretty well respected as a Lyme testing center, etc. and would know some of the things you are saying about certain bands indicating definite Lyme. I don't understand how they don't know these things.
My first thought was, are they "required" to give this response when asked, so as to not jeopardize their licensing? Like, if they tell somebody with negative tests that they could still have Lyme, could that somehow get them in trouble? Because we know those IDSA twerps are looking for any reason to go after their licensing.
My other question is, why do so many LLMD's say band 18 is the only one you need?
Posts: 1142 | From South | Registered: Dec 2010
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posted
Thank you for the replies and all the suggestions. Are there other labs besides Igenex that you consider reliable or other tests you would request to have done if you had results like mine on the Western Blots and CD-57? This might be a silly question but who or what is "Timaca" that Seekhelp referenced in the above post? I do have chronic or late life EBV and also Herpes virus. I have also had Peridontal disease in the past but not at the present time. Would any of those effect the bands and results I listed in my first post above? Thanks again...
Posts: 51 | From Indiana | Registered: Dec 2009
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posted
Yes, the previous periodontal disease COULD affect your results, as far as IgG (which shows previous infections).
But the kicker is that you have an IgM band--so either you have active/recent periodontal disease that isn't gone, or you have active Lyme disease.
Periodontal disease doesn't cause chronic EBV or herpes infections, though, while Lyme disease can.
Then there's the fact that you still have an IgG band which shows exposure to Lyme disease without a doubt (band 39), so it WAS there at one point or another.
And also, chronic infections mean an unstable immune system, which may have trouble producing any antibodies at all. So I'd still consider a trial run with Doxy, just to see what happens. Those are the things I would personally consider if I were in your shoes.
Hope this helps~
little olive
(P.S. - Timaca is a user here on LymeNet )
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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posted
Thank you little-olive. So the very weak IGM band number 18 from Igenex is indicative of active Lyme or Peridontal disease? Just want to be sure I understood you correctly. So hard to figure all of this out. Band 39 was IND on the IgG. Take care and thanks again.
Posts: 51 | From Indiana | Registered: Dec 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Hi, I'm Timaca that Seekhelp referenced above. :-)
And "IND" simply means a weak positive. I think most all Lymies have that one, even I do (and I barely had any bands show up).
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I would challenge by finding a LLMD to help you and then retest.
Some of the sickest patients will not be making any antibodies and this is why it is neg.
I drank Colloidal Silver for 3 mths to keep me out of a wheelchair and this is what I got for it...
Don't give up--it could very well be Lyme plus a lot more it is capable of hiding....
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Thanks....I already tested positive for EBV and I have long standing Herpes Virus.
Posts: 51 | From Indiana | Registered: Dec 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Then I would treat the viruses first. But, be sure you also test for enteroviruses. It's possible to have those along with the herpes viruses, and the treatments are different.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Doc said herpes virus is not curable but it can lay dormant at times. Also said they do not treat EBV and must run its course.
Posts: 51 | From Indiana | Registered: Dec 2009
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posted
Doc said no cure for Herpes Virsu but it can lay dormant at times and that they do not treat Epstein Barr Virus..it must run its course.
Posts: 51 | From Indiana | Registered: Dec 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
It is possible to push the viruses back into dormancy. It's worked in me and others I know.
Do some reading on the websites I've posted. Your lab tests do not indicate Lyme and if you have high antibody titers to herpes and other viruses that could be the cause of your illness. To ignore that will only keep you in the sick house. I know....for treating viruses has helped me a lot.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Thanks Timaca...how did you treat yours? Do you have Lyme Disease or just other illness?
Little Olive...your WB results are a lot like mine...are you being treated for lyme and if so, do you feel better with treatment? Have you ever had any kind of a Lyme positive test? Thanks so much..
Posts: 51 | From Indiana | Registered: Dec 2009
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I do have a chronic bacterial infection. Some would say Lyme, some would say Cpn. Some might say both. I also have chronic viral infections...HHV-6, EBV (controlled), HSV1 and Coxsackie B. I've been on valcyte, lots of different antibiotics, and am currently on oxymatrine (for Coxsackie B) and acyclovir for the herpes viruses.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Hi Lori, yes my immune system is not the best and I had Lyme four years before it was discovered, so I'm lucky even THOSE bands showed up. My doctor decided to do a trial with Doxycycline because of my symptoms (and I had ONE band with a regular western blot), and I started herxing immediately. We also discovered I had bartonella, something that causes a lot of neuro symptoms, and the Doxy helped to treat that as well.
I felt TONS better after treatment. Just glad I had a doctor willing to try out the antibiotics. I have been tested for Lyme three times that I can think of with a Western Blot, more times with other tests. None of them showed positive, except the IGeneX western blot. Even all of my bartonella tests are negative, but I clearly have it and am responding to treatment for it! You really can't go by the tests; if you get a positive you're considered lucky. If everyone who had these infections showed a positive test, there woudln't be any controversy or problems treating it. As you can see that's completely not the case.
The only way you'll know for sure is to try. If nothing happens you've lost nothing, then you can move on to other causes
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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Just curious...you said you did show a positive test for Lyme with Igenex. Can you tell me which bands you had...was it just the 41 with Igenex and the rest were IND? Just wanted to be sure I was interpreting your signature line correctly. Thanks a bunch...good you are doing better.
Posts: 51 | From Indiana | Registered: Dec 2009
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posted
Yes that's "all" I had. That's common in chronic infections, not to mention I don't create antibodies like I should. If you want to bother you could go ask to have your Immunoglobulin G subclasses checked; mine are all on the lowest end of the spectrum and I'm deficient in a couple.
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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posted
I had immunoglobins checked in 2008 and they were all within normal range. I think they checked G,M, A..if that makes sense.
Posts: 51 | From Indiana | Registered: Dec 2009
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posted
Yes it does. But for me it turned out I was deficient in two of them that weren't marked, and I was actually NOT deficient in the one they DID mark. It was done by Quest and for some reason their reference ranges have changed within the past year or two (which I know by comparing my results and ranges to someone's who had the same test done several years prior). Sorry if this is confusing!
Are you planning on getting a round of antibiotics to see what happens?
Posts: 512 | From USA | Registered: Sep 2010
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Your presence of band 39 alone would make me question if you had Lyme, because band 39 can only react to the Lyme bacteria's DNA. It doesn't cross-react like some of the others.
Band 18 is an IgM which means it's a RECENT band, meaning a recent (or currently replicating) infection; this suggests something ongoing and not something of the past.
HOWEVER,
"With most infections, your immune system first forms IgM antibodies, then in about 2 to 4 weeks, you see IgG antibodies. In some infections, IgG antibodies may be detectable for years.
Because Borrelia burgdorferi is a chronic persistent infection that may last for decades, you would think patients with chronic symptoms would have positive IgG Western blots.
But actually, more IgM blots are positive in chronic borreliosis than IgG. Every time Borrelia burgdorferi reproduces itself, it may stimulate the immune system to form new IgM antibodies.
Some patients have both IgG and IgM blots positive. But if either the IgG or IgM blot is positive, overall it is a positive result.
Response to antibiotics is the same if either is positive, or both. Some antibodies against the borrelia are given more significance if they are IgG versus IgM, or vice versa."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
I was just reading an old post on LymeMd and he said he had a symptomatic female patient with only band 41 reacting. He did a few rounds of abx with her and retested, and suddenly she had 11 out of 14 bands positive.
She fully recovered with abx treatment.
Posts: 1142 | From South | Registered: Dec 2010
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posted
Hambone, I have only band 41 IGG and IGM positive and 58 was just IND..CD57 is normal. I have been on abx for over 2 months now. I wonder if I took the test again anything more would show up. If it did show up my insurance would allow me to have IV therapy. RIght now I am only on one oral abx, omnicef and nothing more since day 1 of treatment?
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
Wow..thanks for the responses. I have an upcoming surgery at the end of February and a recovery period of probably 4-6 weeks for healing. I think when I am through all of that, I will be contacting the LLMD that I saw the first time and discussing treatment options and doing a trial run to see if anything changes.
Because other things could be causing my problems I am on the fence about whether I actually have Lyme BUT I don't think it would hurt to start some treatment and see what happens. I wish the Igenex result could have been more positive but it is what it is.
I am curious annier1071 since you have been on treatment for a couple of months, if you have herxed or have noticed any improvement since your test results were similar to mine?
Does everyone have to have IV antibiotics?
Thanks again...
Posts: 51 | From Indiana | Registered: Dec 2009
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
quote:Originally posted by Loripink01: Does everyone have to have IV antibiotics?
posted
Thanks for the link...I'll have to read more about this...
Posts: 51 | From Indiana | Registered: Dec 2009
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
On the CD57, most comparisons and conclusions on this test are based on having it done by LabCorp. I would suggest using LabCorp in the future.
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
My CD-57 was done through Igenex.
Posts: 51 | From Indiana | Registered: Dec 2009
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chiquita incognita
Unregistered
posted
Hello Loripink I am so sorry to hear what you are suffering! I have some formal training in herbalism and let me offer this:
No matter what the diagnosis (none of us here are qualified to do that, unless we are MD's or ND's and even then one has to see a patient)....here is a tip which has really helped me.
I learned from a prominent naturopathic physician/researcher that the medium chain triglycerides (fats) from coconut oil are used for epileptic seizure control. So that means that they calm the nervous system down. Acting on that tip, I calmed down much of my own agitation and anxiety that you are describing above, by rubbing about a tablespoon of coconut oil all over my body. I buy it at Whole Foods for about $8 per pint-sized bottle. That's pretty cheap for therapy if you ask me.
For me, it has really worked. The horrible body vibrations, shaking, and agitation went away. If I had any negative thought my body would respond with horrid feelings like being hooked up to a generator, churning morbid dread: This went away completely with the coconut oil! Anxiety was so greatly diminished, and churning runaway thoughts calmed down. I had so much more choice where to put my mental focus, so much more control....all within days! Keep in mind though, that I am a very sensitive individual and tend to respond very rapidly to the most minute doses. So I dont guarantee the same fast result for everybody. But let me say, it surely has worked for me, better than any medication to boot! Not only did my thoughts calm down, but I got my laughter back too (I am a very enthusiastic person by nature).And the horrid sensations/shaking are GONE completely!
But people respond to different herbs. Here are a few more you can try if this interests you:
St Johnswort *oil* (not the same constituents as the liquid extract) is a marvellous topical nervous system anti-inflammatory. The drawback is that the herb will cause the release of liver enzymes (P450 and CYP 3A4) which interact with a long list of mainstream medications when swallowed internally. It bypasses the liver when taken in through the skin so it shouldn't interact/interfere as much, however I would definitely caution you to check with your doctor for his/her expert opinion about this. Very important.
A really high quality lavender essential oil, rubbed on topically in an oil base (make sure it is not too strong or it will be irritating, essential oils are very powerful!!!) can calm agitated nerves too. I really like the Hauschka Talma Moore Lavender Oil product, but it's also expensive. Worth its price however, works very well for those who respond to lavender. Again everybody responds to different herbs, same as with different medications.
I have found drinking Indian-style yogurt lassi's with orange blossom water (or mixing the latter with chamomile tea) to be extremely calming. It also seems to cause a herx though, makes me very dizzy, so careful here. The essential oils are strong anti-microbials and the citrus rank fairly well among those for that purpose.
I wonder if homeopathy would help strengthen your nervous system if it was indeed damaged by the meds you took. If it is lyme or co-infections then to strengthen immunity is key, regardless. Homeopathy is great for that but don't try to self-prescribe, EVER! And make sure your doc and homeopath both know which meds/remedies you are doing, so they know how they are mixing and affecting you. This helps them to make more accurate diagnoses.
Contrary to popular belief, herbs are being tested extensively in the clinical double-blind setting and logged onto the US Government's own medical database at www.pubmed.gov. There are more than 1000 studies for St Johnswort alone, not to mention dozens of new studies I receive daily by email.
The above information has not been evaluated by the FDA and does not diagnose, cure or prevent any disease (law requires that this be said). I add: Never self-diagnose and never rely on lay diagnoses. Many medical conditions mimic each other and a doctor is trained to tease apart the parallels, figuring out which diagnosis applies even when five or six could all match the same symptomatic picture. Laypeople can and do make inaccurate assumptions and this can be misleading or sometimes, even dangerous. Always check with your doctor (so long as you trust him/her thoroughly).
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chiquita incognita
Unregistered
posted
PS Friends Let me clarify: The symptoms disappeared after using the coconut oil on an ongoing basis. It definitely was/is not a one-time miracle cure. If I stopped using it, the anxiety would return. The body sensations responded beautifully in my own case (remember, everybody is different!) and have not returned even after stopping use. I took it daily, sometimes three times daily during acute phases, for a month or so. Response times will vary with each individual, and again some may respond better to other things. Trial and error is the key thing.
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posted
Thank you so much for the information. I truly appreciate that. It's so good you found things that work for you.
Posts: 51 | From Indiana | Registered: Dec 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I use the CC oil too. But like most things in Lyme you may have to start at pinches and ramp up..
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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chiquita incognita
Unregistered
posted
Hi Pinelady How interesting that you use cc oil too! Can you tell us what your experience has been with it (positive, negative or neutral)? It would be very interesting to hear about. Thanks!
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posted
Lori.. Don't ignore band 39 .. an IND is a weak positive.
"Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all."
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
I would bet you have lyme. You cannot rely on testing, even Igenex testing, to rule it out. Lyme is a clinical diagnosis. If you get a positive test, that is confirmation. I agree that a trial of abx is a good idea. If you can't get abx, you can try Nutramedix Samento...I am pretty confident you would herx on that if you do have lyme. (Make sure you know how to take it if you choose that route.)
As others have pointed out, often when you have been sick with lyme for a long time, your immune system does not produce the antibodies that it should and the testing is not accurate. However, in many cases, once treatment is started, tests often can become positive.
This happened with two of my three children. Only one had a positive Igenex but the other two were treated with only band 41 on one and the other had bands 39 and 41. My band 41 child never had a positive lyme test but later had high bart titers and two strains of babesia. My band 39,41 child later got a positive lyme test about 4 months into treatment. As soon as I saw a that band 39, I knew he had lyme. With my daughter having band 41, I was not so sure, but I started treatment feeling about 80% sure she had it. And she did.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Hambone
Frequent Contributor (1K+ posts)
Member # 29535
posted
This is interesting. I spoke to a lady who used to see my doctor ( now sees Dr. J ) and she never had a positive test.
She had IgM bands 41++ 31 IND
and IgG bands 41++ 34IND
She was near death's door and has been treating for 3 years now and is MUCH MUCH better and very functional. Just has a few residual things.
She said she kicks herself everyday for not getting retested later, to see if her tests ever turned positive, because her insurance company wouldn't pay since her tests were negative.
Posts: 1142 | From South | Registered: Dec 2010
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
@ chiq--Its been all pos. I used it on skin after every bath and eat it for virus'.
On the skin I have had massive peels. Not as bad as say someone with a bad case of Scarlet Fever peel but close.
And it stops my itching right away--no matter where it is.
I had several outbreaks between 3-6mths of virus lesions and it would clear them up very fast...
So I started eating it too...At first I has some really gross stuff/hard cottage cheese like/ I have no idea what it was coming out of my mouth/throat.
But It does not do it anymore. It also relieves annoying lesions that feel viral like but will not cure.
I know there are new reports in pubmed that some acids can be harmful.
All I know for sure is I don't think it has hurt me none...LOL
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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I find that very interesting what you said about some of the sickest people having the least reacting bands. I had only 3 or 4 bands test positive and but that was through the Mayo Clinic lab, not IGENIX. But I have been very sick! And my CD57 = 23. So obviously is Lyme but I've always wondered why no more bands reacted.
My sister just tested CDC positive but isn't nearly as ill as I am (she is still very functioning) and I was confused as to how that could be but this really makes sense!!
Posts: 265 | From Oregon | Registered: Aug 2009
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posted
The fact that someone can still create antibodies means their immume system is functioning enough to do so. Someone who is severely ill will not be creating that immune response, either becuase of previous immune system problems or because of the infection's (Lyme or otherwise) level of immunosupression. They're stealth infections for a reason!
-------------------- Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08 IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++ IgG deficiencies and MTHFR 677TT mutations Posts: 512 | From USA | Registered: Sep 2010
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I find that very interesting what you said about some of the sickest people having the least reacting bands.
Was true for me.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Coconut oil! Yes, a little goes a long way!
I tried eating it- cooking eggs and such with it, but that got old.
So I decided to wear it. Makes my skin feel nice too!
I even have the guys using it. During the hunting season they are getting harsh wind burn and dry skin.
They were whining that they wanted a lotion that would NOT make them smell nice, lucky me, so they could smell like dirt and the animals wouldn't notice.
Coconut oil is very lightly scented and absorbs quite nicely after a short time. I keep the tub in the fridge and dish out a small amount in another container as needed so it stays fresher. Once cold it is HARD to dig out of the tub.
I also use it so the skin around my eyes won't peel so badly. It does help, without any burning.
And it's cheap! Gotta love that!
PS. I dance better to my Jimmy Buffet music when wearing it too.
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