posted
Regarding this 06 presentation I am keeping an open mind like a lot of others here.
I do not think Dr. K is a quack, and it is downright shameful that people here are using this label. His work and insight on KPU has undoubtedly helped many people. He definitely thinks outside the box which is so sorely needed in medicine.
"Quack" ought to be reserved for the so-called medical professionals who summarily and arrogantly dismiss CLD as "post lyme syndrome" "depression" "all in your head" "you need a vacation" "I don't know what's wrong with you but it isn't LD"
At the beginning of this journey I read that the gut is 70% of the immune system. I thought that was ridiculous. I read about kinesiology and thought that was ridiculous. I read about gluten-free diets and thought that was ridiculous. There are many other examples I could use.
The bottom line is that the things I thought were ridiculous and unbelievable turned out to be at the very least worth a second look.
I quickly realized that I had so much more to learn and I continue to learn something new every single day about this damn disease and its coinfections.
nybasketball...
Your neuro might be well-known and board-certified and have won a ton of awards.
I've been to many, many doctors offices where awards are plastered all over the place. It means nothing to me when they haven't been able to help my family (despite mega $$$ out of pocket).
The people who have helped us the most are what I call "working-class" medical professionals. They haven't necessarily won accolades and awards. They are humble. They aren't in it for the money. They are in it because they want to make people better. (OK, major tangent here, I know).
What study did your neuro show you re: less than 1% of MS pts have LD? How were these pts tested? What lab? Were they evaluated by an LLMD? The 1% figure you cited is no more or less believable than what Dr. K cited.
3030...
Ouch---"unsubstantiated claims made by...members of this website is jarring"
Do you expect that we should all do clinical studies to prove our personal experiences?? Yikes.
I thought the point of us all posting was to share our experiences to help and support others. I have surely benefited from the experiences of and help from people here and I hope I can return the favor.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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quote:Originally posted by seekhelp: I certainly don't buy into many, many things I read here. For those that doubt, your point has been made. Saying it 10, 20, 50x doesn't make it more known. It's understood. What's the point seriously? Do you ever think you'll change the super alternative-minded individuals? Likewise, do you think they'll turn you into believers of all of Dr K's theories? Insults don't help anything.
You're right.
I think the medical section of the forum should be broken down into Conventional and Alternative.
Ouch---"unsubstantiated claims made by...members of this website is jarring"
quote: Do you expect that we should all do clinical studies to prove our personal experiences?? Yikes.
That's not what i'm talking about. I've been pretty critical on here - but never in regard to ones personal experience.
Infact, i'm done talking about this. It's your time and money and you're more than entitled to spend it in any way you choose.
Posts: 339 | From Outer Space | Registered: Aug 2009
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Pinelady
Frequent Contributor (5K+ posts)
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Recon why they were and are being purged...You will have to put them together--something about parenthesis.
As for the vaccines--for over 10 yrs. they have been giving cattle a tick vaccine made from the saliva of ticks they now know carry over 120 different organisms.
Including Wolbachia-Dengue/ Coxiella-Q Fever/ Borrelia-MCIDS
Commercial tick vaccines for cattle based on the Boophilus microplus Bm86 gut antigen have proven to be a feasible tick control method that offers a cost-effective, environmentally friendly alternative to the use of acaricides.
Commercial tick vaccines reduced tick infestations on cattle and the intensity of acaricide usage, as well as increasing animal production and reducing transmission of some tick-borne pathogens.
Although commercialization of tick vaccines has been difficult owing to previous constraints of antigen discovery, the expense of testing vaccines in cattle, and company restructuring, the success of these vaccines over the past decade has clearly demonstrated their potential as an improved method of tick control for cattle.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
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I have more if you would like to see them. Most are posted here as well.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
Well then what the heck are you referring to when you say that unsubstantiated claims made by members of this website are jarring??
IMO we all just posting based on our personal experiences and that should not be subject to biting criticism.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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posted
pinelady, thank you for all the links you have provided in this thread and numerous others.
and thanks gigi for posting this info.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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lululymemom
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posted
So even with tick vaccines, they are still finding lyme cysts in the milk??
Quote "You are not going to find a single cow in the US without having Ehrlichiosis, Babesia and Lyme Disease".
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Pinelady
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posted
lulu I am saying as they said--
Although commercialization of tick vaccines has been difficult
owing to previous constraints of antigen discovery,
the expense of testing vaccines in cattle, and company restructuring, the success of these vaccines over the past decade has clearly demonstrated their potential as an improved method of tick control for cattle.
Fact is they did not care then what they were capable of and now that we know they still don't care...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lululymemom
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As for the vaccines--for over 10 yrs. they have been giving cattle a tick vaccine made from the saliva of ticks they now know carry over 120 different organisms.
Including Wolbachia-Dengue/ Coxiella-Q Fever/ Borrelia-MCIDS
I was referring to this statement. Is this not the borrelia that is being referred to here?
One hundred twenty-one bacterial genera were detected in all the life stages and tissues sampled.
The total number of genera identified by tick sample comprised: 53 in adult males, 61 in adult females, 11 in gut tissue, 7 in ovarian tissue, and 54 in the eggs.
Notable genera detected in the cattle tick include Wolbachia, Coxiella, and Borrelia.
The molecular approach applied in this study allowed us to assess the relative abundance of the microbiota associated with R. microplus.
------------------------ They changed the name---but its the same tick. ---------------- http://www.parasitesandvectors.com/content/3/1/103 Anti-tick vaccines are an alternative method for the control of R. microplus. Bm86-based vaccines represent the first generation of anti-tick vaccines to be commercialized [12].
Identifying new vaccine targets and anti-tick strategies for cattle would benefit greatly
A ten-year review of commercial vaccine performance for control of tick infestations on cattle
* Article author query * fuente jdl [PubMed] [Google Scholar] * almaz�n c [PubMed] [Google Scholar] * canales m [PubMed] [Google Scholar] * p�rez de la lastra jm [PubMed] [Google Scholar] * kocan km [PubMed] [Google Scholar] * willadsen p [PubMed] [Google Scholar]
Jos� de la Fuentea1a2 c1, Consuelo Almaz�na3, Mario Canalesa2, Jos� Manuel P�rez de la Lastraa2, Katherine M. Kocana1 and Peter Willadsena4
a1 Center for Veterinary Health Sciences, Department of Veterinary Pathobiology, Oklahoma State University, Stillwater, OK 74078-2007, USA
a2 Instituto de Investigaci�n en Recursos Cineg�ticos IREC (CSIC-UCLM-JCCM), Ronda de Toledo s/n, 13071 Ciudad Real, Spain
a3 Facultad de Medicina Veterinaria y Zootecnia, Universidad Aut�noma de Tamaulipas, Km. 5 carretera Victoria-Mante, CP 87000 Cd. Victoria, Tamaulipas, Mexico
a4 CSIRO Livestock Industries, Queensland Bioscience Precinct, 306 Carmody Road, St. Lucia, QLD 4067, Australia
Abstract
Ticks are important ectoparasites of domestic and wild animals, and tick infestations economically impact cattle production worldwide. Control of cattle tick infestations has been primarily by application of acaricides which has resulted in selection of resistant ticks and environmental pollution. Herein we discuss data from tick vaccine application in Australia, Cuba, Mexico and other Latin American countries. Commercial tick vaccines for cattle based on the Boophilus microplus Bm86 gut antigen have proven to be a feasible tick control method that offers a cost-effective, environmentally friendly alternative to the use of acaricides. Commercial tick vaccines reduced tick infestations on cattle and the intensity of acaricide usage, as well as increasing animal production and reducing transmission of some tick-borne pathogens. Although commercialization of tick vaccines has been difficult owing to previous constraints of antigen discovery, the expense of testing vaccines in cattle, and company restructuring, the success of these vaccines over the past decade has clearly demonstrated their potential as an improved method of tick control for cattle. Development of improved vaccines in the future will be greatly enhanced by new and efficient molecular technologies for antigen discovery and the urgent need for a tick control method to reduce or replace the use of acaricides, especially in regions where extensive tick resistance has occurred.
(Received November 30 2006)
(Accepted January 29 2007)
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
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posted
Most people don't realize McD's gets most of their beef from AU....
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lululymemom
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posted
I'm not a scientist and alot of this information is over my head. From what I understand these ticks have now invaded our food chain and nobody is safe from infection. Especially anybody who consumes meat or dairy.
I'm not sure what to believe at this point.
I suppose it just confirms my belief in a vegetarian diet.
Wife of White House Adviser Found Dead in Burning Car
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
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posted
Heres something else I think you should see. They are trying to pull the same stunts with this for profit...
http://www.ncbi.nlm.nih.gov/pubmed/21212089 Results: The study enrolled 204 patients, 80 in the non-MS and MS stable groups and 44 patients in the MS exacerbation group. Overall, 27.0% of patients were colonized with S. aureus
with no significant differences identified between study groups.
Now what really happens if you have stealth in StaphA? Is it really MRSA? Or something hiding in MRSA? I'm not saying MRSA is not very serious, what I am saying is I believe there is a lot more to it than just resistance...
This is the same resistance for which they are building their hopes on a new Malaria vaccine/TB vaccine/HIV vaccine and if it is hiding stealth...They are taking the public and the Govt. for a very long ride....
If it takes as long as Lyme is taking to get the public help--we won't live that long....
Until more data from well-designed controlled clinical trials become available, physicians should remain cautious when using current guidelines as the sole source guiding patient care decisions. ---------------
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
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New evidence contradicts World Health Organization breastfeeding advice. ---------------- Moveover Wakefield, companies coming...LOL
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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lululymemom
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posted
I have always been a big advocate of breastfeeding but yet again, not according to Dr. K.
Quote "You need to also be aware that when Mom has Lyme Disease and toxic milk for other reasons, it may be a good idea not to breastfeed. I am taking that position today, I may change it again."
"Breastmilk is fat, FDA study on it that shows in general American breastmilk is now so toxic that you are not allowed to flush it down the toilet."
Even though, his own wife breastfed 2 years prior.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Camp Other
Unregistered
posted
Pinelady,
For those reading along who are either limited by time or illness so that they aren't going to look at every reference you have cited, could you please offer a summary of your position?
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Pinelady
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posted
I believe everything Dr. K said is possible and most -- likely probable.
the majority (68%) of which had not been reported previously. ----These were not I.scapularis ticks!
This is more proof---the borrelia species is dependent on what it comes in contact with.
By watching them very closely they could avert a catastrophe.
But they have lied so long===
now that everyone is getting on board it is going to take a while to wake up the minds of those who don't want to believe.
I did not want to believe it either. And it took a while to sink in....I read everything I could get my hands on regarding the protein. And what happened in Europe.
I was scared to death, I was angry, I panicked, I cried. I even wrote researchers asking them to protect themselves on their travels because of their findings...
Now I have a even better understanding--that the worst patients have a lot more coming in contact with borrelia proteins...But one things for sure--we all need a lot better treatment--
Now I have work to do. The Autism epidemic is most likely being caused by live vaccines and other opportunistic organisms and they must get the word of what is happening...
Now it is not just Lyme patients we work to help---it is all syndromes of unknown origin who can be helped with this knowledge...
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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tick battler
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posted
Well said AlanaSuzanne...the word "quack" should be reserved for those who truly are...it is shameful for those on this forum to use that word for anyone who is dedicating his life to healing lyme and autism.
Seek - Those who believe Dr. K are NOT necessarily the ultra alternative...rather I like the think we are the ones who think outside the box and look at EVERY angle to heal ourselves and our families (as Dr. K does)...I gave my 3 young children 2 years of abx (3 drugs at once per Dr. J) which ruined their guts...now I have been forced to move to the alternative route...to heal them from the meds as well as the lyme...and that is what ultimately got rid of their lyme/coinfections as far as we can tell right now.
My husband did 3 years of abx as well...now we are looking at other angles to get rid of his unrelenting headache and insomnia...guess what...he is sleeping somewhat better since we have been turning off his fuses at night...he's not healed yet...but this we think is a factor in his healing. And guess which LLMD told us about this angle? Dr. K.
For those who choose to stick to only abx...good luck to you... it may work and it may not. What will you do if it doesn't? Stop looking at options? You may be eating your words.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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canefan17
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posted
^^^ What she said
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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Lauralyme
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posted
[QUOTE]Originally posted by lululymemom:
Even though, his own wife breastfed 2 years prior.
Lulu...she probably took chlorella. It is possible to clean up breastmilk
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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lululymemom
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posted
Yes, you're right Lauralyme, she probably did take that. I just don't understand why he stopped some of his patients from breastfeeding if it's possible to clean it up.
posted
the only issue i take with this is that where was this taken from? he has a lot published on his site as well as great DVD's i ve seen.
i am a little concerned with "re-printing" information one without consent and two having no idea what context it was written in... and we have no real idea that he said exactly what was printed.
i think it is great to share information ....we need it and i am not saying gigi's intent was bad but .....
when you are posting things as "the way it is" without the context the footnotes the permission it makes me question the validity of the information.
Posts: 161 | From sonoma county | Registered: May 2009
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seekhelp
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posted
I think about this a lot and what baffles me is how any man/woman on the face of this Earth could really be as smart as we think Dr K is. I'm not saying for a second he may not be brilliant. He obviously has credentials.
What I mean is this guy is a proclaimed expert in damn near everything: heavy metals, Lyme, autism, morgellon's, EMF, methyl cycles, neuro issues, KPU/HPU, parasites, dental, and how much more? Do you realize it would literally take hundreds of years of experience to acquire this much? Even the smartest men in the world strive to become experts in their individual fields (i.e., parasitology).
In light of all this knowledge, he has managed to find time to develop his own ART system too! There's another on here much like Dr. K with knowledge. Her name is Marnie. She has posted endless excerpts of information on how to battle Borellia in the greatest level of detail.
This doctor has somehow become the end all be all on this forum many times for all of this. Tickbattler, I'm not disputing your comment for one minute that when Abx fails, we'll look for other means. I do right now in fact.
I just get the impression that whatever Dr K posts/says in whatever forum/seminar/book is taken as gospel. Questioning things doesn't make people naive or ignorant. Because conventional failed someone does not mean alternative won't as well.
I don't know what to make of it all....
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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canefan17
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posted
seek,
I think it's pretty simple.
No one is forcing you guys to read it and/or agree with it.
When I first dove into the Lyme Game I took a hard look at Rife machines and thought to myself, "what the hell is this?"
I thought it was a joke.
Now I've been in direct contact with people who've used and give credit to rife machines as the most important treatment on their road to recovery.
So at this point - I've learned to keep an open-mind.
And Dr K seems to be a wealth of knowledge (whether I agree with it all or not)
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
Opinions aside, I find the word Quack offensive.
Why?
It is "Lyme Quacks" that have helped me turn my excruciating days into days that are livable.
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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Tammy N.
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posted
What impresses me about Dr. K is that he has put together more pieces of the puzzle than most anyone else out there..... infections, Lyme, heavy metal toxicity, parasites, dental issues, hydration, HPU/KPU, etc etc etc. And the way the information has been conveyed makes it understandable how all of these elements are inter-related. At least for me anyway. KPU alone has been a HUGE breakthrough for many people. It has been THE pivotal thing to them getting well.
And, moreover, he is very generous with all of the information that he puts out for free, just to help people. Thanks to him, many of us are able to print out his presentations and protocols and bring them to our doctors. And I like that a lot of his protocols remind me of the oath "first, do no harm". He doesn't first reach for the heavy hitting pharmaceuticals that can be very damaging to us (plus, most of us who go off the meds end up crashing and needing to go back on; what kind of a life is that??). These meds have not been very kind to me and I'm looking for a well thought-out way to a different approach that covers all of the bases. Right now I've been very happy with what I have learned from him and am hopeful for better health in the future. There's no downside for trying.
Posts: 2238 | From East Coast | Registered: Jul 2010
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Amanda
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posted
well, I am a scientist, so here are my thoughts
1. First, thank you Gigi for posting this information.
2. I don't know if Dr. K is exaggerating or not. However, I DO believe that many of the people that go see him (now) suspect lyme. Therefore, it is more likely that his "sample population" will tend towrds being positive.
I think if you really want to know how many people with ALS or MS have lyme, you need to randomly select, from all over the US and many differetn MDs. 1,000 would be a good number. BUT, in order to do that, you need to have a test method that is at least 90% accurate.
3. I don't know what Dr. K means when he says a positive test. His idea of positive might mean coming up positive on one or two bands of the western blot. IF that is the case, then he would in fact see many more positives than others.
4. There are many excellent LLMDs out there that have had professional opinions about this disease that later turned out not to be the case for every lyme patient.
5. Science moves forward by people taking risks and pushing into the liminal space of what is known and unknown. Therefore, its risky because you have a good chance of being wrong.
Because of this fact, I am willing to cut Dr. K some slack, even though I don't agree with many of his assersions. Maybe something will trigger other ideas that bring medicine forward
6.
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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Camp Other
Unregistered
posted
Pinelady, I'm sorry, but whatever connections you are making with what Dr. K said to your citations are not obvious, and I am still hoping for a summary from you about your reasons behind why you think Dr. K is right about everything he said.
I just read the article you cited above, "Discovery of diverse Borrelia burgdorferi strains in a bird-tick cryptic cycle" and what it says is that they have found birds carrying many different strains of Borrelia that might be picked up by different kinds of ticks and passed to humans and other animals. Science already knows there are many different strains of Borrelia with varying virulence - there are just more we didn't identify before.
How does this study support your beliefs about Dr. K's transcribed presentation?
If anything, it could provide confirmation that Ixodes dentatus is responsible for transmission of more strains of Borrelia in birds and rabbits. From there, of course different Ixodes may be able to pick up the Borrelia and pass them on to other hosts.
Sorry if I am not following your reasoning here, but I would like a more detailed overview of how your citations relate to what you have decided.
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Pinelady
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posted
Camp they have used all kinds of animals rabbits/dogs/cows/chickens/etc. in our vaccines.
Plus what they have given our cattle as tick repellent.
If they refuse to find the protein now do you really think they knew what if anything they were seeing then?
It is in the eggs/ovaries/offspring. And there is no way to kill the protein nor do they know for sure how it is activated.
The present studies extended characterization of the B. burgdorferi EbfC protein,
demonstrating that this small protein both specifically and nonspecifically binds DNA,
can bind DNA independently of context
and alters DNA conformation.
Site-directed mutagenesis approaches were also employed to investigate the mode of interaction between EbfC and DNA.
Other studies have been done proving it binds non the less with everything they have put it up against...
Dr. K is right they have never seen what the borrelia is packing before and they sure don't know how to treat it.
Science has much yet to learn before we are through, and I don't think it will ever be through if we are given enough time.
But we are lucky...Those that have already given their lives for this ignorance when you can control it and send it into remission will help millions if we can make them accept this truth.
I have wrote asking for conference transcripts twice to where these findings were presented.
In fact they sat at a roundtable discussion with the good fellows at the IDSA and I cannot get a reply. But know this---I don't trust them for one second.
Esp. now that China says we only need one band.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I'm sorry. I still don't believe this man is truly trying to help anyone but himself.
Apparently that makes me an offensive jerk.
Without fail i get ostracized whenever i don't agree with a doctor or therapy.
I won't post on this thread anymore.
Posts: 339 | From Outer Space | Registered: Aug 2009
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canefan17
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posted
^^^ You start throwin the word 'quack' around and you're going to ruffle a few feathers. What'd you expect?
Especially when many on this board have been helped by Dr K - either directly or indirectly.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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posted
What I can say about Dr K is that his writings and transcripts have helped me to look at Lyme and the ravages it has done to my family and their health in a different way. I've learned that there are other options and other ideas to consider.
I never blindly agree with everything that any one person says. I have learned to look at the facts, do my own research and form my own opinions.
I try always to keep an open mind.
There is a saying from AA "Take what you need, and leave the rest."
This disease is hard, probably the hardest thing that my family has ever had to face. I am grateful to Dr's K, B and J and many others who have dared to stick their necks out in an attempt to get us well.
I think they all deserve our respect, even when we don't understand or disagree with their ideas and methods.
I wonder how many have gotten well under Dr K's care that weren't able to on abx and with more traditional treatments?
Posts: 333 | From Lyme Here Too | Registered: Mar 2010
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posted
3030, no one here called you an "offensive jerk" .. those are your words. And I don't see how you have been "ostracized" on this thread. Some here disagree with your position.
Like canefan said, when you start saying that a Lyme doc is a "quack" you are certainly going to ruffle feathers.
And you did ruffle my feathers when you said that "unsubstantiated claims made by members of this website are jarring"
Like I said previously, do you expect that we all should conduct clinical studies to prove our personal experiences?
Again, IMO we all just posting based on our personal experiences and that should not be subject to biting criticism.
So I disagree with you. That doesn't mean I think you are a jerk or that you should be ostracized. We are all entitled to our opinions. And our opinions and experiences are what shape this forum.
Disagreements or differences of opinion among us doesn't mean we are enemies. I believe that despite any differences we may have, we all wish each other the best.
So eventhough I disagree with you, at the end of the day I realize that you are going through your own personal hell and I hope and pray that you regain your health.
Tammy and Amanda I agree with you. Campother, thanks for requesting clarity. Pinelady, thank you again for the links and info.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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Hambone
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Member # 29535
posted
I think it was the second or third time I went to my LLMD, I met a man just a tad younger than me who was sitting in my doctor's IV suite getting IV's for Lyme. He was very sick ( I'm pretty sure he's a member here but I don't know his username. He actually referred me here ).
Anyway, he was so incredibly sick and had been for a few years. My LLMD finally encouraged him to go see Dr. K.
So he flew all the way across the country sick as a dog. This was in early December.
Dr. K diagnosed him with something completely different. Not Lyme.
He sent me an email a week or so ago and said he is about 75-80% better already and is starting to exercise again.
I do not think Dr. K is a quack at all.
Posts: 1142 | From South | Registered: Dec 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- GiGi,
Thanks for this thread. And keep posting, please.
Dr. K's work is extremely important. As I've read it over the years, bit by bit, even from a few years ago, this excerpt reminds us just how serious lyme is - and we need to keep that in mind as we hope to improve.
I wish more doctors had the sheer determination as Dr. K to find the real truths for each patient. He is an excellent role model for doctors. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
http://www.ncbi.nlm.nih.gov/pubmed/21251438 2010 Dec Because of the numerous cases observed in the region, new hospitals were opened in Dalmatian towns and the patients were hospitalized. --------------------- Can you imagine building hospitals to take care of so many with a spirochetal disease....Even if they were not positive on the tests..
My grandfather spent a whole year in one in Louisville for what they diagnosed as TB...After watching him die for 10yrs. I am not sure at all it was ever just TB..It is all too familiar.
We need a National Awakening of our Experts to come together on recognition of what this really is...
They are adding to the syndromes everyday, when we should have been living to be in the 100's with all the "Protection" they have given the public.
Yet more are dying before their time than ever before and not for reasons they died in the past.
For shame what they have done for a mighty dollar that has not even given us the time to enjoy what little we have.
Everything they say here can be refuted.
http://www.ncbi.nlm.nih.gov/pubmed/21258649 2010 I consider this overdone, and robbing the public in broad daylight. You and I dear friend just help pay JH.s who work for drug companies to hide from the truth while still profiting even longer... This review summarizes how mitochondrial pathobiology might contribute to neuronal death in AD, PD, and ALS and could serve as a target for drug therapy. --------------------------- You see as long as we let them get away with saying it is in our genes and it is our fault and nothing can be done to fix that we will continue to watch all suffer for their greed. http://www.ncbi.nlm.nih.gov/pubmed/21217173 2011 Feb Such patients usually have certain HLA-DRB1 molecules that bind an epitope of B. burgdorferi outer-surface protein A ...(OspA₁₆₃₋₁₇₅),
and cellular and humoral immune responses to OspA are greater in patients with antibiotic-refractory arthritis than in those with antibiotic-responsive arthritis. ---------------- This is what they want you to think.
The fact is all immune systems are different and you cannot compare mouse models to us...
That mouse has not been exposed to over 70 live/killed/genetically altered vaccine and immunizations,
and he may be one of those that gets Alzheimers down the road.
The robbing cheating stealing of lives for profit must stop. ----------------------------
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Pinelady,
Hey, thanks for all your links in all your posts.
We had a whole TB hospital in my town, too, just two blocks from my house.
In tonight's State of the Union address, I just kept thinking of what they are all missing: knowledge of lyme/TBD. That lack of knowledge is a national risk, a risk to the future of all citizens. How it can be ignored is just beyond comprehension.
Oh, not that I expected it to be mentioned but, watching from my world, it's a different planet, indeed. Not one LLMD in my state - or in many states. No country can be strong if people don't have doctors knowledgeable in stealth infections. -
[ 01-26-2011, 02:13 AM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
The big picture is that most people the usa and europe are actually relatively healthy. They are active, they are hard working, most people actually are able to work- indicating most are not critically disabled as DR.K says so many with lyme are.
Yes there are many with lyme who are sick. No lyme has not HIT everyone nor near everyone as some here would have you believe. If pinelady and others wish to tell us lymenet-ers that most people in the world are actually ill with lyme then they are losing tough with reality. J
Posts: 268 | From new york city | Registered: May 2008
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
You can walk around with Lyme and not have many symptoms from cradle to grave. The same thing is true with parasites which BTW, statistics say over 90% of the population has a least one parasite.
These pathogens become a problem when other factors come into play to stress the immune system.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I don't call a baby being diagnosed with "Autism" every 4 minutes losing tough with reality.
Nor one every minute from Alzheimers, or one every hour with MS.
I call it looking out for what's to come.
I call it a heinous crime right under our noses. And just who is going to pay for it. The 15 million Americans out of work? Yea right.
We know it is not going to be us paying for taking care of all of them...
Its going to be our kids and their kids, They are the only ones with the knowledge to survive,
everyone else thinks they are just stuck with their syndrome,
and I don't want to leave this world thinking we did nothing to give them a better life by making them pay more taxes for THEIR mistakes.
But that is just the way I think.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
Unfolding pathogenesis in Parkinson�s � Breakthrough suggests damaged proteins travel between cells
19 January 2011
The study, published in the Journal of Clinical Investigation, reveals that damaged alpha-synuclein proteins (which are implicated in Parkinson�s disease) can spread in a �prion-like� manner, an infection model previously described for diseases such as BSE (mad cow disease).
�This is a significant step forward in our understanding of the potential role of cell-to-cell transfer of alpha-synuclein in Parkinson�s disease pathogenesis and we are very excited about the findings�, says Professor Patrik Brundin at Lund University, Sweden, who led a team of investigators from research centres in Denmark, France and Portugal.
The theory has now been tested in several cell culture experiments. Dr Christian Hansen, one of the key investigators, explains the importance of the new findings:
�We have now shown that alpha-synuclein not only can transfer from one cell to another, but also that the transferred protein can seed aggregation of alpha-synuclein in recipient cells as well. This could be an important mechanism for the spread of the pathology.� ------------------ This is the same thing that is happening in borrelia. The proteins are being transferred in the tweezer like domain and misfolding with the other entities/coinfections to create disease.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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thank you so much for posting!
Posts: 442 | From usa | Registered: Oct 2010
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
glm,
The more I've researched parasites I'm quite convinced we ALL (100%) have them.
Some are friendly - some not so much. As you said - some people show signs from them - some live in a peaceful balance WITH them.
But if you've ever eaten at a restaurant or taken OTC drugs you have parasites to some degree.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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jackie51
Frequent Contributor (1K+ posts)
Member # 14233
posted
I tend to believe what Dr. K says. What we may find, if he is indeed wrong or has exaggerated, is that there are very similar yet not discovered stealth infections to borrelia that mimic lyme symptoms. I think he is doing all he can to help people. He has helped many, that is indisputable.
Why the medical community has many heads buried in the sand is simple. People are reluctant to change. I think until someone is affected personally, they just don't tend to care.
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Dr. K has never ever said that other stealth infections are not involved with lyme. We all know they are. As apljack says, I'd bet we will be discovering more as time goes on. We are learning more about XMRV/HGRM now. And I'm sure that will be helpful.
Still, along with Dr. K., many LLMDs has consistently given respect to many co-infections and co-conditions (mercury, parasites, etc.) that many others fail to consider, to the peril of patients.
Lyme has moved this from being "just" lyme to a "Lyme Complex" sort of puzzle (as another LLMD has termed it). Anyone who thinks lyme is ever just lyme is probably going to be very disappointed with the results.
Lyme is never just lyme. And nothing is ever simple where lyme is involved. Lyme, and all that comes with it, changes nearly everything - while not in every case - surely, most of the time, for most patients.
It's shocking, frightening and overwhelming to consider the full picture - and how that can differ from patient to patient - and the sheer complexity of it all but those doctors who are honest and courageous enough to keep looking, thinking and expanding awareness are the ones who are most likely to help us. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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tick battler
Frequent Contributor (1K+ posts)
Member # 21113
posted
jl123 - you talk pretty confidently about your knowledge with regard to the health of our society. What do you base this on? I frankly think the opposite is true.
What makes you think that not many have lyme? I think you need to do a bit more research on this one. Everywhere I look, I see sick people. I happen to live in an endemic area, but still...lyme is EVERYWHERE if you know what to look for. Most people I meet around here have migraines or digestive issues or sleep issues or arthritis.
I feel that most of us are infected but the range of symptoms in people goes from none to being bedridden. Whether you get really sick depends on genes, detox capabilities, environment and, of course, extent of infection.
I'm sure you won't believe in this, but our practitioner has the ability to detect lyme in people very accurately through bioenergetic testing. She sees it in over 90% of the people she screens with her machine. Some have symptoms and others don't (or don't realize that their mild health issues are related to lyme.)
I lived with aches and pains ans stomach issues for 25 years until I figured out what was wrong. But I had a full career and had three kids before I figured it out. I was very active and no one would have known I was not healthy. But I could have lived much more comfortably if I had known what was causing my issues and treated it. The only reason I figured it out is because my three young children and husband became much sicker than me.
tickbattler
Posts: 1763 | From Malvern, PA | Registered: Jul 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
I hope the above researchers don't end up like Wakefield and others without a country
for finding a organism without a home that wasn't supposed to be there.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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