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» LymeNet Flash » Questions and Discussion » Medical Questions » What was "The Thing" that helped turn things around for you? (Page 1)

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Author Topic: What was "The Thing" that helped turn things around for you?
Tammy N.
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Just curious to know if there was one stand-out, pivotal thing that helped set you on the path towards really feeling better.

Thanks,
Tammy

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timaca
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Treating Coxsackie B3 and B4 has helped me a lot. You need to test for it at ARUP lab:

http://www.enterovirusfoundation.org/chronicinfections.shtml

Oxymatrine is what I used to treat it.

Treating HHV-6 has also helped: www.hhv-6foundation.org (I was on valcyte)

Being on antibiotics has also helped.

Best, Timaca

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nefferdun
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Antibiotics made all the difference.

Not one antibiotic as I had three infections (at least).

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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CedarWidow
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There is a group of 3 things that worked as a team for ME, in order of power, though one may not have worked without the other. I will tell everything I did, it is very lengthy.

Sorry if I CAPITALIZE, I am PASSIONATE and this comes off unfortunately as INTENSE (and I tend to give more information than warranted, sorry).

1)PROBIOTICS: Accepting that health begins in the GUT and disregarding all other mumbo-gumbo (antibiotcs, herbs, vitamins, supplements, which are things that alter the gut, specifically pH, in one way or another). Life begins in the gut with our first dose of breast milk containing all the flora we will need for life. Consider that lyme bacteria, meningitis, MRSA, etc are found inside the throat and body of healthy individuals all the time-- YES, swab healthy individuals in the throat and you will see this is true-- some develop sickness, others don't. What's delegates that? The secret is the immune system, and the basis of that is the GUT. Some things supress the immune system, regard these: radiation, heavy metals, etc. After doing antibiotics, which did take the edge off I will admit, but left the gut even more altered and vulnerable than before, I changed my diet and started MEGA DOSING (you cannot overdose) on probiotics. I used these:

HLC High Potency Capsules 60 caps (HLC12) - 2 with breakfast and 2 with lunch.
http://www.emersonecologics.com/Products/EmersonMain/PID-HLC12.aspx

Flora 200-14 7 Day Intensive 7 Caps - 1 with dinner. Use beyond 7 days, you need trillions and trillions of good bacteria, not billions, if you are to amp your system and fight this off.
http://www.emersonecologics.com/Products/EmersonMain/PID-FLORA2.aspx

DIET: An alkaline intestine from eating alkaline foods (coffee, stress, sugar, wheat, meats/dairy eaten w/o alkaline balancing, chemicals & pesticides, estrogen pills, this junk is not hard to find, it far outnumers the opposite!) gives rise to an acidic body = bad for health in all major aspects, it proliferates bacteria, viruses, yeasts, and cancer and the majority of disease. You want your intestines slightly acid by eating acidic foods AND alkaline foods in balance (most acidic foods except for white vinegar - like lemons, limes, apple cider vinegar, fiber, bitter greens, mega-dosing on probiotics that produce short-chain fatty ACIDS)= slightly alkaline body. So incorporate alkaline-producing (typically acidic-tasting foods) but DON'T go overboard and get too alkaline in the body because too alkaline aggrivates Lyme too, especially Bartonella, which thrive in sectors of the body which become too alkaline via ammonia like the brain, liver, etc. The balanace of acid-producing and alkaline-producing with a slight favor in alkaline-producing will produce a slightly alkaline body-- and this balance is what you want. You will get in the groove and feel the ails at both ends and figure out the best balance by feel. The best diet for Lyme, time-tested, tried and true - High fat, moderate protein, low carb, which alone is acidic, but with the incorporation of the above alkalinizing foods, tips you to slightly alkaline on the scale.

3)NUTRITIONAL BALANCING: A whole other realm of information that I will not list, but basically this is the foundation. It chelates heavy metals and it kills off Lyme because it strenthens the immune system and with a strong immune system, you are IMMUNE to ANYTHING! This is the woman I am working with and the nutritional balancing supplements from Endo-met Labs, which are vitamins & minerals, I take 3 times per day. It has been more helpful than the Lyme protocol from ANY LLMD, in my experience, because it is a whole body program.
http://www.tvernonlac.com/healingchronicillness.html

SO! This gets your system back on track. Bacteria come in and out of your life all the time, it is the body's immune response that will delegate if you are going to suffer with ANY disease or fight it off!! This is verifyable by me, from being on the brink of death with Lyme and Bartonella for many, many years. Good luck.

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BoxerMom
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1. Diet, diet, diet. Find the appropriate diet for you. This kept me going for the 15 years before my Lyme diagnosis. I am severely glucose intolerant, so I eat low carb, but we all have different needs.

2. Fixing my HPA axis and adrenal exhaustion. I took D-ribose, 15g 3x/day, as per Dr. Teitelbaum's book From Fatigued to Fantastic. This gave me back my sleep, which had been missing for 15 years. I would not have made it through my first year of intense herxing without sleep.

3. Antibiotics and antimalarials. It took me 12 months to get rid of Babesia symptoms, but Lyme and Bart treatment were much easier once the Babs was under control. I am relapsing for Babs now, but herxing much less on my meds this time.

4. Regular exercise. I am not exercise intolerant. I feel much, much better with regular exercise at an appropriate level. When I miss too many days, I feel worse.

Oh, no! That's four things. But Lyme treatment is multi-faceted and you have to do it all.

--------------------
 - Must...find...BRAIN!!!

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sixgoofykids
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First breakthrough - parasite treatment

Second - Bionic 880

(not in order of importance, it's in chronological order)

--------------------
sixgoofykids.blogspot.com

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17hens
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In chronological order, each of these took me to a new level...

1. treating bartonella & babesia at the same time with antibiotics

2. diet (I felt best on tutu's yeast diet, but now I'm just careful about sugar and crappy carbs.)

3. parasite treatment

--------------------
"My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26

bit 4/09, diagnosed 1/10

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Robin123
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quote:
Originally posted by CedarWidow:
There is a group of 3 things that worked as a team for ME, in order of power, though one may not have worked without the other. I will tell everything I did, it is very lengthy.

Sorry if I CAPITALIZE, I am PASSIONATE and this comes off unfortunately as INTENSE (and I tend to give more information than warranted, sorry).

1)PROBIOTICS: Accepting that health begins in the GUT and disregarding all other mumbo-gumbo (antibiotcs, herbs, vitamins, supplements, which are things that alter the gut, specifically pH, in one way or another).

Life begins in the gut with our first dose of breast milk containing all the flora we will need for life.

Consider that lyme bacteria, meningitis, MRSA, etc are found inside the throat and body of healthy individuals all the time--

YES, swab healthy individuals in the throat and you will see this is true-- some develop sickness, others don't.

What's delegates that? The secret is the immune system, and the basis of that is the GUT. Some things supress the immune system, regard these: radiation, heavy metals, etc.

After doing antibiotics, which did take the edge off I will admit, but left the gut even more altered and vulnerable than before, I changed my diet and started MEGA DOSING (you cannot overdose) on probiotics. I used these:

HLC High Potency Capsules 60 caps (HLC12) - 2 with breakfast and 2 with lunch.
http://www.emersonecologics.com/Products/EmersonMain/PID-HLC12.aspx

Flora 200-14 7 Day Intensive 7 Caps - 1 with dinner. Use beyond 7 days, you need trillions and trillions of good bacteria, not billions,

if you are to amp your system and fight this off.
http://www.emersonecologics.com/Products/EmersonMain/PID-FLORA2.aspx

DIET: An alkaline intestine from eating alkaline foods (coffee, stress, sugar, wheat, meats/dairy eaten w/o alkaline balancing, chemicals & pesticides, estrogen pills, this junk is not hard to find, it far outnumers the opposite!)

gives rise to an acidic body = bad for health in all major aspects, it proliferates bacteria, viruses, yeasts, and cancer and the majority of disease.

You want your intestines slightly acid by eating acidic foods AND alkaline foods in balance (most acidic foods except for white vinegar -

like lemons, limes, apple cider vinegar, fiber, bitter greens, mega-dosing on probiotics that produce short-chain fatty ACIDS)= slightly alkaline body.

So incorporate alkaline-producing (typically acidic-tasting foods) but DON'T go overboard and get too alkaline in the body because too alkaline aggrivates Lyme too,

especially Bartonella, which thrive in sectors of the body which become too alkaline via ammonia like the brain, liver, etc.

The balanace of acid-producing and alkaline-producing with a slight favor in alkaline-producing will produce a slightly alkaline body-- and this balance is what you want.

You will get in the groove and feel the ails at both ends and figure out the best balance by feel.

The best diet for Lyme, time-tested, tried and true - High fat, moderate protein, low carb, which alone is acidic, but with the incorporation of the above alkalinizing foods, tips you to slightly alkaline on the scale.

3)NUTRITIONAL BALANCING: A whole other realm of information that I will not list, but basically this is the foundation.

It chelates heavy metals and it kills off Lyme because it strenthens the immune system and with a strong immune system, you are IMMUNE to ANYTHING!

This is the woman I am working with and the nutritional balancing supplements from Endo-met Labs, which are vitamins & minerals, I take 3 times per day.

It has been more helpful than the Lyme protocol from ANY LLMD, in my experience, because it is a whole body program.
http://www.tvernonlac.com/healingchronicillness.html

SO! This gets your system back on track. Bacteria come in and out of your life all the time, it is the body's immune response that will delegate if you are going to suffer with ANY disease or fight it off!!

This is verifyable by me, from being on the brink of death with Lyme and Bartonella for many, many years. Good luck.

Breaking this up for easier reading for many here - sounds very interesting!
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karenl
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Hydroxy B12 shots
parasite treatment

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Beachinit
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Antibiotics: up to 5 at a time, L-lysine (for HSV), DHEA combined with whey protein and weight lifting -High reps 3x/wk, carnitine, B12, vitamin C and sleep hygiene.

--------------------
Ideas not advice.

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canefan17
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Finding this website : )
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little_olive
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Ironically one of the things that truly started my improvement was taking olive leaf extract, 500mg three times a day, while on Doxycycline. Stopped and started it twice, and both times I restarted it, I began to see more improvement. I've taken it for years anyway, but when I took it consistently at that dose 3xs a day, it helped a lot.

Everyone needs to eat less sugar and everyone needs probiotics and everyone needs to be treating infections--it's why we're here--but for some reason taking that much OLE really did something.


little olive

--------------------
Myalgic encephalomyelitis, 2002 | Viral onset, following Hep B vaccine
Lyme since '06 | Bartonella since '08 (cured) | Mycoplasma pneumoniae since '08
IGeneX: IgM 31IND 34IND 41+ | IgG 39IND 58+ 41+++
IgG deficiencies and MTHFR 677TT mutations

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annier1071
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wow, no one felt best with abx?
I am being treated wtih oral omnicef and now zithromax and diflucan all at once.

My llmd feels I have babesia becaue of my muscle pain but said he doesnt want to attack it now. He feels it would be too much on my body at this point. He just ordered methylcoba? (B12) shots from a compound pharmacy that I need to give myself 3 times a week. He feels this will help greatly with my fatigue and brain issues.

I am on VSL# probiotics 425 billion each packet. Take one at night before bed. I pray that is enough and magnesium taurate and CoQCF for the nerve inflammation and more energy.

--------------------
Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin.

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little_olive
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Well I digress, it wasn't just taking olive leaf extract alone but taking it WITH the Doxycycline. I'd been taking OLE by itself for several years and it wasn't enough for those particular infections, but it definitely helped when I used the two together.
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Robin123
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1) oral clindamycin abx, 150mg around the clock for a month, then 1-2day - stops fibromyalgia pain, reduces joint swelling

2) mangosteen juice - stops all Lyme eye symptoms, keeps intestines regular

3) noni juice and grapeseed extract capsules - stops lipomas (fat tissue tumors)

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hadlyme
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B12 Shots.

Of course all the abx combo's and probiotics.

But B12 has been my life line to handle life.

--------------------
Lyme, Babs, Fry Bug..... Whatever it is, may a treatment be discovered to make us all whole again!

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Pippi
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two antibiotics in particular: minocycline, and most of all, flagyl.
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dyna3495
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salt/C protocol with 12ozs. of water with each dose , Methodically for 5 months.
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riverspirit
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~ meditation

~ being profoundly careful about what is taken in on all levels ( no t.v., reading inspiring books, environmental awareness/non-toxic products, organic hypo-allergenic, high-nutrient diet, care around who i spend time with, etc.)

~ gentle quiet walks in the woods

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Bugg
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IV Rocephin for severe cognitive dysfunction
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Tammy N.
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Thanks for sharing, friends.
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anemone
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Since I have problems with bart, Cumanda and the whole Cowden Protocol has helped the most with those symptoms (brain fog, muscle twitching).

B12 sublingual (Jarrow brand methylcobalamin).

No wheat/sugar diet.

Finding this community has done wonders for my state of mind.

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hiker53
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Bionic 880, Allergie-immun, and a Christian energy healer.

Of courses for me, the number one healer is GOD!

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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TF
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Finding an outstanding lyme doctor who treated me according to the Burrascano protocol.

Six years in March since I completed treatment. Praise God!

------------------------
God still talks to people today !

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seekhelp
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Hiker, wasn't there a point before in which you were totally against alternative treatment? Now it sounds like you've done a total 180 turn. [Smile] Am I wrong?
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hiker53
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SeekHelp--Yep you were wrong
[Cool]
I was never for antibiotics, although I did them for a year plus. They did not work. I am against some alternative methods such as ionic foot baths, ingesting nosodes etc., but I have tried many alternative therapies--most of which have not worked--including salt/C, Immune Response Therapy, laser treatments etc. But these three have helped me a great deal--bionic, allergie-immun, and Christian energy healer. I feel the borrelia is gone and I need to detox and heal the nervous system.

Hiker53

--------------------
Hiker53

"God is light. In Him there is no
darkness." 1John 1:5

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nefferdun
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I have to agree with canefan17 that finding the lymesites, (not just this one although it is my favoritie) literally saved my life. I owe my life to the people who generously share what they have learned, and support me through this difficult journey.

Thanks to everyone out there.

--------------------
old joke: idiopathic means the patient is pathological and the the doctor is an idiot

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willbeatthis
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I second this thanks... I do not know what I would do without this dear group of folks.... You all are my blessings...
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canefan17
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Coil machine
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lymeboy
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starting to become a true believer in high quality Probiotics and high quality, immune regulating supplements. and ABX of course.
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lymeboy
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starting to become a true believer in high quality Probiotics and high quality, immune regulating supplements. and ABX of course.

-But I have to rank this site as my # 1. I'd still be floating around being told I was fine. Or dead.

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glm1111
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Treating Parasites with antiparasitic herbs and salt/c was the biggest thing that turned the corner for me.

Gael

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*

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Brussels
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- finding dr. K's practioners: first big hit (I got my brain back)

- learning my own energy testing (the most precious thing I learned due to lyme)

- killing babs (big step up in energy)

- photon therapy (saved me years of fight with borrelia)

- dental work (took a heavy burden out of my body)

- allergy free diet (also helped with energy and brain fog)

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RC1
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Bicillin injections 3x a week for 5 months was the biggie, all of the time prior to that (6 months) I treated co infections.

Rifampin, Septra, Malarone, Mepron, plus Doxy, Zith, Amox, Not at the same time of course. Most of my symptoms when I first got sick were related to co infections, but when I got the Lyme load down is when I started to feel better.

I can't stress enough how much exercise and diet helped. I do strength based yoga and some weight lifting. My diet is low carb, gluten, dairy, and sugar free.

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jkmom
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Dr. B style abx

giving up goat milk (was already GF and cow milk free)

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sixgoofykids
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Photon therapy

Treating parasites

Detox, detox, detox

Getting rid of mold exposure

--------------------
sixgoofykids.blogspot.com

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momlyme
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For me... and my son, who was ten times sicker than me... it was definitely getting away from the toxic mold exposure.

Then, detoxing.

And now, exercising.

--------------------
May health be with you!

Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began.

Posts: 2007 | From NY/VT Border | Registered: Aug 2010  |  IP: Logged | Report this post to a Moderator
blinkie
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Abx combo therapy. All of them but IV vancomycin was the best for my lyme.

Treating parasites aggresively and this goes hand in hand with babs treatment because babs is a parasite.

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JessJoy
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upping my doxy to 400 mg/day (I was on a lower dose for 6 weeks and didn't see improvement)

adding 500 mg of levoquin.

giving up sugar

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disturbedme
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The thing that helped me the most was going 100% gluten free!!! It helped so many of my symptoms, most of which were neurological. It was amazing!!!! It was like crawling out of a dark hole that I had been in for years. The other thing is probably finding out I have pernicious anemia and now have to take B12 for the rest of my life. B12 injections weekly really do help me. A lot of my cognitive issues are from pernicious anemia and when I start having really bad word finding problems or using the wrong words in my sentences, etc., it's usually around the day I need my next B12 shot.

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One can never consent to creep when one feels an impulse to soar.
~ Helen Keller

My Lyme Story

Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007  |  IP: Logged | Report this post to a Moderator
tickwhisperer
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Rifampin
Posts: 11 | From Orange County, CA | Registered: Jan 2009  |  IP: Logged | Report this post to a Moderator
Tammy N.
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Glad to see my old thread come to life again!

For me, a major step up was to have ozone treatments for some dental infections. I was incredibly ill after a tooth extraction, and spiraling downward. When I went for my first set of ozone injections, I felt tremendously better that night. It was like night and day. Amazing. I continued with several follow-ups and I think the infection is under control. If not, I will go back for more.

I was surprised to learn first-hand how important dental issues are. GiGi has been posting on the topic for a long time. Don't leave this stone unturned. It is a HUGE issue for a lot of us (often unbeknownst to us.)

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Haley
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1. Decided to stop being obsessed with Lyme and start focusing more on God.

2. Complete change in diet... low fat, plant based diet.

3. Buhner herbs possibly combined with Tindamax, Still experimenting. I personally think Buhner has this thing figured
out.

4. Getting oxygen any way I can. Through food, exercise etc..

Tammy, I would love to get those ozone injections. I know that I have issues with my teeth.

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Tammy N.
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Haley, go for it. You won't regret it. I'll send you a pm on the dentist Dr. K recommends. He practices in LA and Seattle.

Edit - Your mailbox was full.

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Pony
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quote:
Originally posted by Haley:
1. Decided to stop being obsessed with Lyme.

What a great, overlooked point!
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Haley
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Tammy - my mail box should be clear.
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annxyzz
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I am not cured , but my life is far better from treating with : rife machine
artemesia annua ( herb Pharm)
grapefruit seed extract drops

This helped much more than ABX for me.... I have a life at least .

--------------------
annxyzz

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t9im
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Tindamax

This one drug turned around our daughers neuro symptoms. We had to take her off it sooner than we would have liked and are on other meds but this was the one.

It took 3 months to start and see results and she was on the drug for 6 months. Due to alergic reaction (built up over time) and side effect (becoming anexoric) we had to stop.

For the full 18 months she has been on mepron and zith.

--------------------
Tim

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lauirel
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Methylation

--------------------
�Never doubt that a small group of thoughtful committed citizens can change the world; indeed, it�s the only thing that ever has.�

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ZachsMom
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Tammy, what an awesome question. I am printing this thread out!!

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"In the depth of winter, I finally learned that inside me there lay an invincible summer." Albert Camus

Posts: 24 | From Mentor, OH | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
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