posted
I had it done last week, and I was wondering about the reliability. I can't find much info on the web, but I did find a couple of people giving their opinions.
Both people tested negative for Lyme and coinfections that they were sure they had. But then again, both had been in treatment for a long time.
Has anyone had this test or know anything about its accuracy?
I get the results next wednesday and I don't want my LLMD to say "well, it was negative so you don't have lyme and we're stopping treatment"
Before the test, he and I were 100% positive I have it, in spite of a negative ELISA four years ago.
Help?
Posts: 107 | From Hesperia, CA | Registered: Feb 2011
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I was tested negative for lyme and I am sure it is right.
Let me know what other disease they find - if not lyme - and if the symptoms match with your problems.
They find some people being negative for lyme but then they find other diseases which are causing the problems. They test a lot of things.
You need both tests, venous blood and fingerprick.
Posts: 1834 | From US | Registered: Oct 2008
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
My LLMD uses this lab and finds it very useful. As with any lab, she understand that there are limitations re: accuracy.
She told me that she sometimes finds results she did not expect, and it is helpful in determining a treatment course.
So I think it's a good lab.
Hopefully your LLMD will treat based on your symptoms and clinical history - as well s/he should.
I have used Spiro Stat - my tests were negative. But that was after 4 years of treatment, and I believe it was accurate, that I had no active infection at the moment.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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