posted
ive also been treated for co infections in the past
year. is it possible it could be from an over
stressed liver? adrenal fatigue? something other
then lyme? i just don't see how after a year or
treatment this one symptom lingers.
Posts: 132 | From jersey | Registered: May 2010
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
IMO and experience that sx is lyme. Could be something else but I don't know if it would be good to stop tx and find out it is lyme and more.
I did 3 yrs+ of abx early on or maybe within 6 mths of sx. Other things including more tick bites set off a chain reaction which turned me chronic.
You don't sound like you hit bottom. Good for you. But I would be so afraid to stop them to early.
I've had sx that have lingered for 12 yrs. I would rather be safe than sorry. There are many options that might keep immune system fighting like herbs, supps etc. I switched to alternative tx years ago.
Lyme is slow multiplier? But wonder if suddenly you got the flu or something that overloaded your immune system?
Only you can make that decision. You might want to do search on this site using "relapse" and read some threads from those that quit and won or quit and lost.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
when my LLND treated adrenal fatigue I came out of that predictible afternoon slump.
And out of the crushing fatigue as well.
so it may be as other posters have said..persistent infection...but that does not mean it cannot also be need for adrenal support...or more than you have had. I have regular adrenal herbal support tinctures from LLND plus a supplement from the EDS practioner.
Within 36 hours of that herbal support I felt a big change.
it made all the differenc e in the fatigue. I still need to keep gaining endurance...still fighting active infections but steadily improving.
From what some say,too, each bite can deliver a different load of infection so that might be part of your answer too.
Just my two cents.
-------------------- Not everything in life that can be counted counts and not every thing that counts can be counted...Albert Einstein Posts: 208 | From Northeast | Registered: Aug 2010
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
Sounds like a bart symptom to me.. Try taking RNA (ribonucleic acid) and see if you have any improvement. Take it 3 times a day with meals. Eleuthro(Siberian Ginseng) really helps with the fatigue.
I had many more symptoms than you but didn't get the brain fog thing until I had a relapse from going off abx too soon-- I was not seeing an LLMD at the time. Misguided PCP!
Anyway, after 7 months of treatment with an LLMD who I am still seeing (still on abx) all symptoms are nearly gone--
-- except (and as you describe)this late afternoon foggy feeling and tiredness.
I think (mine) is a Lyme symptom still hanging in there. I read somewhere (can't remember where) that this weird 'head' symptom/fatigue is often the last one to clear up and can take quite a while.
If your symptom has lessened over time-- foggy feeling lasting for only 20 minutes or so instead of for hours or a day, then that sounds like progress has been made.
When you get to the point where it's only lasting for a few minutes and then there are days that you don't have it at all, then that's even more progress. IMO....and my LLMD's.
I know this symptom is frustrating! And my LLMD says that I must go at least a month with NO symptoms before I can consider going of ABX.
I'm going to stick it out and continue abx until this symptom is gone too. Hopefully this will be soon!
It's such a downer to have a great, symptom free day and then feel this weird, relentless fatique and foggyness later on. Mine still lasts a few hours.
I'm seeing my LLMD today and will ask him more about this.
Posts: 29 | From New York | Registered: Dec 2010
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lymeinhell
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Member # 4622
posted
I had this too - and it was caused by yeast, not Lyme. This was right around the time my LLMD weaned me off abx. I was a bit fearful we were stopping too early, but my LLMD was correct.
The yeast caused me to become reactive hypoglycemic - hence the tired drunk feeling that would hit right after lunch time. It also messed with ATP production - the fuel power source for your cells.
Once I aggressively treated yeast, added a high quality CoQ10, and started taking NADH (which blasts oxygen into your cells), I got over this hump. It took a couple months.
Lyme does more than introduce a foreign bacteria into our bodies, and sometimes the treatments themselves mess up other functions in our bodies. Without addressing these other disfunctions (yeast, parasites, mineral deficiencies, toxicity), you will never be 'symptom free', regardless of how long you stay on abx. The abx themselves contribute to the mess (but are a lifesaver).
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Yankee, I believe that I first got lyme fall/winter 98, sx that came and went like knees, fatigue, wrists problems, little stuff.
Summer '99 I was attacked by 12 bites I thought were chiggers. Covered with clear nail polish like my sister said. When I got lyme educated my LLMD said nope, those were deer ticks/nymphs that you blocked with nail polish.
Exactly 3 weeks later, the flu-like illness from he!! sent me to my knees. I knew day 1 that this was not the flu.
42 year old woman know what flu feels like. 10 days later I went to my PCP and told him I had food poisoning. He said nope, your sx say to me lyme disease. Abx were started immediately. I was already chronic.
I took abx from 7/99-5/03. I changed treatment in 03, if abx hadn't killed it by now? I went alternative.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
lymeinhell and kd....your posts made me feel better......
lymeinhell please let me know what else your llmd
says about the brain fog feeling...and by the way -
that is a great way of describing it "drunk" -
thats exactly how i feel. ive actually gone weeks
without having it recently - but unfortunately i
got sick each time and then it resurfaced Posts: 132 | From jersey | Registered: May 2010
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lymeinhell
Frequent Contributor (1K+ posts)
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posted
Yankee, glad to give you a bright spot.
Brain fog has many causes. For me, it was a rule out and fix, little by little.
I was SOOO yeasty, that I literally would get drunk after eating. The candida would turn the food to alcohol.
And it messed with my blood sugar ( would drop to the 40's after eating), so #1 was fix yeast, and start taking cinnamon pills after each meal to help balance sugar.
I took diflucan, Oil of Oregano, and grapefruit see extract.
The drunk feeling started to go away after 2 mos or so, but I would still hit this really tired omg I have to sit down patch mid day. (Which was awfully inconvenient since I worked throughout this. )
And that's where NADH came in extremely useful. We reasoned that my cells were literally running out of energy before my day was physically over (was shown some good research on it but can't recall right now from where).
So added in CoQ10 from Allergy Research (big $$) and NADH (from Enada), and within a couple weeks, it didn't happen any more.
So if it's only happening sometimes, perhaps you could correlate to your dietary intake? Do you keep a food log? It might be extremely helpful to you to do so. Are you eating to your food type and condition? Meaning, low carb, high protein, sugar free?
If it were me, I would examine your diet and see if there is a pattern, and then address yeast. But that's just IMHO.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
yankee, I'm sorry I didn't have a feel good story for you. This is my experience therefore I'm not so sure it's all gone if there is still sx.
Yes, stopping abx and doing things like super detox, herbs, attacking yeast, grapefruit seed is all good ideas.
I'm saying don't loose site of sx, no matter how sutle they are. Drunk feeling reminds me of babs sx. Foggy head is lyme, IMO.
I only have brain fog, fatigue, knee pain, neck pain on my lyme cycle. Or if I let myself do too much life for a couple days.
I took rifampin in '10 to see if I could get rid of bart sx in GI. It did while I was on them for 3 mths and then came back within 2 weeks of stopping abx.
Lyme sx on Rifampin was daily battle. Lyme doesn't like me to treat bart with rifampin. Rifampin also is known to hit lyme forms.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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