posted
Praise be to God Almighty! After the worse herx imaginable, I am now free from the chains of Lyme disease. I had been admitted to the hospital again for uncontrollable and violent vomiting and unbalanced electrolytes. Placed on cardiac monitors due to the effects of the anti-emetics and scared to death, I found myself in an aweful place. I didn't think I would survive this episode. But I did and now I'm finally pain free for the first time in over 20 years. Totally symptom free other than some residual nausea due to withdrawal from stopping the pain meds. Thanks to all of you for your support and contribution during this difficult time in my life. You will continue to be in my prayers always. And thanks to a very special doctor, Dr. B in Southern California for being wise in her treatment. Yeah!!!
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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I would love to see more posts like yours here...I hope you continue
to feel well and take good care of yourself...thx for sharing the
good news...
-------------------- "Gratitude is not only the greatest of virtues , but the parent of all others "....Cicero Posts: 254 | From new jersey | Registered: Jul 2009
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daisyrlb
Frequent Contributor (1K+ posts)
Member # 15686
posted
"Pain free for the first time in over 20 years."
That's BIG!!! Praising God with you!!!
Posts: 2188 | From Oklahoma | Registered: May 2008
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posted
Praise the Lord ! I am thanking God for the wonderful healing he has blessed you with Posts: 198 | From Rhode Island | Registered: Sep 2010
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
So happy for you!!
Congratulations!
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
What a feeling this must be for you! Wishing you continued health.
God is good.
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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God is good.
Posts: 191 | From va | Registered: Sep 2008
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
So happy for you. Praise God; He still does miracles. You have given us all hope.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I'm very happy for you. Enjoy your life and stay well,
posted
Congratulations! God has healed you for a reason so celebrate that. I'm still waiting for the day when I wake up and am pain free. What an amazing day that must have been for you. As hard as it is to be sick I know that everything happens for a reason and God has a plan for me. Embrace life and enjoy every second of it. Thank the lord!
Best wishes and God bless,
Lindsay
-------------------- "One day at a time"
Current: -1.2 IM bicillin three times a week -1.25 IV Vancomycin every day -IV glutathione and IM B12 -Byron White since Jan. 2011 -ALA, Yasko protocal, Adapten-All, thyrosol, Pekano, phosphalipid exchange, probiotics, oregano... Posts: 390 | From FLORIDA | Registered: Jun 2007
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posted
God bless you always and the doctor who stuck with you!!
May you never have another bad day for the rest of your life!!!
I too will wake up dizzy free one day after 31 years of it!!! You have given me hope!!!!!!!!!!!!!!!!
-------------------- Diagnosed with chronic neuro lyme 12/10 after 30 years of vertigo.2 tick bites in 3 yrs from upstate NY. Was on omincef for nine mths..zith and rifampin stopped.Remission~ All the pain and symptoms are back and I am not treating now with biaxin. Posts: 788 | From New york..queens | Registered: Nov 2010
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posted
that's great news!! SO no more nerve pain or RSD pain either? Do you think the vomiting was the final trick, like your body finally got rid of whatever was poisonning your gut?... Thansk for your help!!
Posts: 723 | From Montreal | Registered: Oct 2010
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Hubby wanted me to ask what meds you were on that caused the herx and if you are continuining on the same meds. It just seems so unbelievable to him that a herx could cause so much improvement.
He has never really had a typical herx. He usually just feels better or no change or he ends up in the ER and/or hospital and the first thing they usually do is stop all antibiotics. But he usually ends up feeling way worse than where he started and takes weeks or months to recover.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
So you were sick and then suddenly not? What happened? How do you know you're healthy now?
Don't want to rain on your parade. I'm super happy for you, I just want to know whether you're just feeling free of the disease or whether you actually are.
I hope you continue to feel well and never feel bad again!
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am so happy for you that you are pain free. That is wonderful. Please share more about your story, the meds you were on and what you were diagnosed with.
Take care you do not relapse. I have had some good times when I felt confident I was close to well and quit the abx too soon. Here I am still posting away.
I thank God too, every day.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
My LLMD said I had the exact same experience as Dr. Barrascano did right before he healed himself. IV ABX all the way. And bio-film breaker every other month with treatment.
Zithro, Flagyl, Bicillin, Rifampin, Mepron on a very strict schedule. Never missed one treatment. A lot of PRAYER!!! And the herx from hell!
posted
God does things on his time table and not ours. We have to be strong to hold on and pray without cease.
I am far from being cured or well but God has brought me so far. I lay in bed 9 long years tormented in pain and unrelentless fatigue which I did not know was Lyme disease.
Today I am up and doing things although mornings are not my best because of arthritic inflammation. I manage to drag myself around the house until I can dress and do a few stretches.
I never fail to give God praise for what he has done for me.
Posts: 245 | From Texas | Registered: Jul 2009
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
ladjenie,
Ah, so true! I prayed without ceasing for ten years for my beloved daughter...she is in a totally better place now than she was then.
I have gotten terribly discouraged and scared many times throughout this journey, but am totally aware of His helpfulness and provision...could not/cannot do it without Him.
Sue
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
I just love this! Praising the God of Abraham, Isaac and Jacob right along with you!
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
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posted
My test results are back. The front office girl at my LLMD's called with jubilation confirming God's healing in my battle against lyme. I haven't received a copy of the results for myself and she couldn't "confirm nor deny" anything about the results until she had permission from Dr. B. I will be hearing from Dr. B within the next 24 hours with my final counts, but I could just hear the excitement in her voice and it was confirmation enough for me. Praise God. Apparently I can't post my blog site here because of a donation button on it. It's too bad because I'd love for all of you to read about what happened to me. Feel free to pm me for more info.
I will definitely post the results asap.
Keep up the good fight.
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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posted
Forgot to add to the last post....My LLMD gave me the green light to get my hickman line removed. Need I say more?
I'll still post the results for you as soon as I get a copy. The blood was sent to Fry labs for the reading of the cells. From what I understand, they can see the lyme & co we've killed, the ones that are still alive, and the ones in cyst form. How that exactly translates to me being healed, not exactly sure. But God sure knows.
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
Thank God for healing you! I am so happy you are well.
Let's still pray for all others here. God can truly heal us all!
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
I'm an atheist but congrats anyway!
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Praise be to GOD ! That is great news , I truely love hearing about the wonderful miracles Jesus is performing in the lives of those round about me .
Posts: 198 | From Rhode Island | Registered: Sep 2010
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momindeep
Frequent Contributor (1K+ posts)
Member # 7618
posted
I knew it!
Posts: 1512 | From Glenwood City WI | Registered: Jul 2005
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posted
This is truly a PRAISE Report! I am thrilled for you... May God continue to hold you in the palm of his hand... Blessings... and Happy New LIFE AHEAD!
Posts: 859 | From Southeast | Registered: Mar 2011
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posted
mcaringella - Can you tell us more about your treatment? I'm very interested. My LLMD (Dr. Brewer) is only interested in prescribing oral ABX - right now I'm on ceftpodoxime and azithromyacin. I feel like i'm just not getting enough.
Congrats to you.
[ 05-25-2011, 09:39 AM: Message edited by: thehause ]
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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posted
I was on i.v. antibiotics the entire time. I truly believe that made a difference because I have a chronic issue with vomiting and needed to ensure my blood levels stayed consistent. I did bio-film treatment everyother month to free up the infection protected by the bio-film. Lots of supplements to support immune system and diet to decrease inflammation is key. I did i.v. meyer's cocktail and IV glutithione every month.
My abx where first iv rocephin, flagyl, zithromax. Then dropped rocephin because of liver issues. I did zithro, flagyl, and bicillin injections for a long time and then added rifampin and mepron at the end. That's when I had the herx from hell and totally recovered. Similar to Barascano's experience.
Hope that is helpful. In my opinion, orals aren't enough for some of us. The iv was essential to my treatment.
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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posted
You did all these IV's at the same time for 2 years? God I wish I felt better.
Posts: 372 | From west of the mississitty | Registered: Jul 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
What did you use to clear biofilms? Oral or IV methods? How long did you do IV Flagyl?
Posts: 2232 | From USA | Registered: Aug 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
did your insurance cover all those IV's?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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quote:Originally posted by BackinStOlaf: did your insurance cover all those IV's?
I had no coverage at all. All out of pocket including supplies for picc line and then the hickman line. Claimed bankruptcy, drained mom's inheritance and my husband worked his butt off to support us. Did tons of fundraisers. God graciously provided for our needs, but I know you don't believe that. You do what you gotta do. I had to get better for my kids. My parents didn't want to burry me either. Tons of support from community. Lots of prayer!
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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quote:Originally posted by Shahbah: that's great news!! SO no more nerve pain or RSD pain either? Do you think the vomiting was the final trick, like your body finally got rid of whatever was poisonning your gut?... Thansk for your help!!
The pain is totally gone. I have been in terrible pain for more than half my life. This is the biggest freedom of all. I think that last big herx (vomiting) was the release of this evil disease. My llmd said Dr. Barrascano had the same experience before he got better too.
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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posted
Felizitaciones!!! How wonderful to see your success story! When you're in the nightmare, it's hard to imagine a day when you won't be in it any longer (especially if you've been in it for a long time). But you are proof that it DOES have an end, which I know that I forgot ALL THE TIME. Many, many congratulations to you; I'm sure that you earned your well-being. Enjoy your freedom!!!! Yeah!!!!
Posts: 116 | From North Carolina | Registered: Apr 2011
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quote:Originally posted by thehause: You did all these IV's at the same time for 2 years? God I wish I felt better.
Yah. I did a very strict, gnarly treatment. I felt aweful all the way through it. In bed or on the couch. Barfing all the time. Hired a nanny for two young kids. Lost my driver's license b/c of seizures due to neuro lyme. Terrible times, but I'd do it all over again for what I've learned through this trial. Several times I was convinced I was going to die. But God strengthened me and carried me.
I'll be praying for you all.
-------------------- Blessings to you! Posts: 141 | From Southern California | Registered: Mar 2010
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posted
Congratulations to you! I'm so happy for you. Thanks be to.Jesus the lord works in mysterious ways ... purging you body but literally vomiting it all out.. that's amazing I know jesus is healing me and all of us as we type.
-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Love to see good results. May you keep your happy pain free life from this day forward.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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