lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I take them from 25 different bottles daily and I'm not sick any more. But, it was part of my regimen to get better, and I will continue to do so for the rest of my life if needed. I will do whatever it takes to not to go back there ever again.
Often we need to address issues other than just the bacterial infection in order to get better, as they ALL play a part in our succumbing to lyme and co's. Gotta fix it all. So, not you are not insane. And my cup runneth over as well.
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
At one point just before lyme was diagnosed, I was at about 80 different supplements. Probably down to about 30 these days.
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
I am taking over 150 pills a day. Or at least I am supposed to. I have a really hard time keeping up these days. At this point, I have a number of things that need to be 2 hours either side from any other supplements, and its hard. I need to sit down and rewrite my schedule.
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
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James1979
Unregistered
posted
s4t - I agree, it's very hard to schedule everything.
The most difficult, IMO, are the supplements that have to be taken on an "empty stomach". The strange thing is... if we're taking 15 pills at the same time which all have to be on an empty stomach... isn't the stomach full at that time? I've always wondered about that.
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posted
I wonder the same thing!! Scheduling is the hardest part. Isn't there an app for that?!
Posts: 427 | From Pacific Northwest | Registered: Oct 2010
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James1979
Unregistered
posted
quote:Originally posted by searching4truth: I wonder the same thing!! Scheduling is the hardest part. Isn't there an app for that?!
These made it a TON easier! I have 3 of them, for morning pills, mid-day, and evening. They're big.
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
hmm, at least 20-25, plus two bp meds, elavil for sleep and then the probiotics.
scheduling is the hardest.
when to eat, what to take with water, what to take at bedtime, it's a mess.....
i use a fishing tackle box. it's large and can be divided into larger sections. i have mine divided into 15 sections.
it's cheap at walmart but you can also get them at garage sales for a dollar or so. i can get an entire bottle of stuff in a larger section. course it takes up room when packing, but normally it's sitting on my kitchen counter. it also snaps shut pretty well too.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
I spend an hour a week filling pill boxes for 3 of us. My sickest child takes the most- approx. 50 pills/vitamins/supplements. He gets priority including the most expensive ones.
My oldest and the healthiest of us 3 takes maybe 30 and is weaning down and I take at least 40.
I figure I will ramp up once the boys are better and the budget will allow it.
I had no idea this would be my life. I am fortunate to be able to work through all of this and pay for treatment!
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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posted
I thought I was taking a lot until reading the above posts! I do get up though at night to take them as well to spread them out. As I have felt better I have stopped a few of the supplements, but I will continue to take vitamins and supplements especially probiotics. Feel all of these have truly made a huge difference in me feeling much better.
Posts: 376 | From New York | Registered: Jan 2011
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lululymemom
Frequent Contributor (1K+ posts)
Member # 26405
posted
I take between 10 and 15 per day but I am not really treating anything now. Just controlling and supporting.. I honestly think if I took anymore, I probably wouldn't feel that good from them all.. So I function pretty well on the ones I am taking.
Bartonella henselae 1:100 Posts: 2027 | From British Columbia | Registered: Jun 2010
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Lauralyme
Frequent Contributor (1K+ posts)
Member # 15021
posted
Total pill count is 80- 90 a day I'd like to focus on healing leaky gut so that I might absorb more of them and can cut down
-------------------- Fall down seven times, get up eight ~Japanese proverb Posts: 1146 | From west coast | Registered: Mar 2008
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ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
I vary as to how many I take and also my attitude to taking lots of things:
It's so easy with chronic illness to read a description of a supplement/herb etc or a testimonial and think 'I must try that to keep all angles covered' or 'that makes sense'. Since I have been ill for many years, this can lead to bankrupcy!
Sadly, you can't tell easily often whether something is making a difference, protecting you from further degeneration or just making expensive bathroom waste!
So sometimes I take lots of stuff and others, I try to cut down, but they always seem to creep up again!
Posts: 1647 | From UK | Registered: Nov 2008
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