posted
My Elias came back negative my coinfections negative. However my WB had igg 41 and igm 23 present but the ID doctor says those bands are commonly found in the mouth so I'm negative.
Doxy is giving me some relief though but since he considers me negative he said finish the last 2 weeks and thats it.
Would an llmd consider this negative or positive? I dont know what to do now.
and that's it.
Would
Posts: 28 | From ogdensburg inject | Registered: Jul 2011
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posted
My daughter is treating based on only band 23 IgM on Quest Western Blot. (Other tests have since shown up things that make me feel more certain about this diagnosis). Don't trust the Elisa, it is often negative. Hers has been several times. Band 23 is very Lyme specific. (doesn't react to others things) I'm sure a LLMD would agree.
phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
Distresse, that is exactly what my bands were .. Did see a LLMD and she said Lyme .. Had the igenex labs and 18 igm positive and igm 41, 30 and 34.
The doxy gave me a fit with gerd so switched to clindamycin, along with supplements, diet etc.She wants to treat the inflammation and build the immune system. If I could be 100% I think diet is the key, at least for me.
Oh, all my co-infections, allergies and many more test negative thru igenex and the LLMD I think it was Quest.. Also negative for barts and babs.
I had been dx with fm/cfs for years. The LLMD said I had probably had lyme for many years..
I am not seeing any improvement as yet.. boo-hoo
What type of symptoms are you having? Mine were mainly like sinus/ear / vertigo/ balance/ aches / fatigue/ anxiety/depression.. I still have them.
Good luck..
Posts: 1058 | From VA | Registered: Oct 2010
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posted
Oh man my symptoms are insane. Ill list them.
TMJ Headaches nausea insomnia Tingling left leg and arm blurry vision back pain from neck to tail bone Hip pain and stiffness Knee and leg pain heat intolerance it makes me weak Dizziness Diahrea Rapid heart and irregular heart Weakness Numbness during sleep Extreme fatigue Heavy eyes
I'm sure there is more
Posts: 28 | From ogdensburg inject | Registered: Jul 2011
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posted
30 pound weight loss
Posts: 28 | From ogdensburg inject | Registered: Jul 2011
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phyl6648
Frequent Contributor (1K+ posts)
Member # 28522
posted
I am no doctor or even close but symptoms sure sound like lyme to me. I too have the heat intolerance, irregular heart bead , blurry vision like you there are probably more but just a few are too many..
Whatever, there is something going on. How long have you been feeling like this?
Do your symptoms come and go, how about anxiety?
Good luck to you and keep me updated.
Posts: 1058 | From VA | Registered: Oct 2010
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
Please go see an LLMD and get testing done through IgeneX.
Your symptom list could have been mine.
You should also consider Bartonella (another infection you can get from a tick bite).
And magnesium Deficiency (particularly bc of the heartbeat irregularities and the TMJ). Lyme depletes our magnesium in our bodies, and it is crucial to restore those levels. A lot of your discomfort will be alleviated if you address this issue.
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
My magnesium level is fine but my potassium level is always low. My cortisol level is high also.
As far as anxiety goes I Had a week out of no where that I was a complete anxious and depressed mess for no reason I thought I was crazy then I woke up one morning and poof gone.
My symptoms do come and go but many of them were constant. Before the dozy I felt like I was getting worse everyday.
Posts: 28 | From ogdensburg inject | Registered: Jul 2011
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posted
My symptoms started in the middle of may as a chronic headache with jaw paim for 3 weeks.
Posts: 28 | From ogdensburg inject | Registered: Jul 2011
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Band 23 = Lyme. Your ID is wrong. Time for a new doc. Keep those results though, that is actually a good blood test from LabCorp.
-------------------- Mathias Posts: 1242 | From New Jersey | Registered: Feb 2004
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posted
distressed, Not sure how your magnesium level was tested, but blood levels won't tell you if your body stores are adequate because only about 1% of your total magnesium is in the blood. Most people are deficient. I can't live without my Magnesium supplement.
Posts: 59 | From Seattle WA | Registered: Feb 2011
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posted
Hi - you will need some Lyme treatment; want to respond re a couple of your symptoms.
My chiropractor keeps my TMJ in check by using an arthrostim machine on it, it's the KST technique, if you want to check around to see if any area chiros do it.
For eyes, I drink mangosteen juice to stop all Lyme eye symptoms. There are lots of juice varieties - I like the Ultra and Mango-xan ones. If you try it, go slowly and drink water too.
For insomnia - do a search here for it and read about all the different remedies we do for it -
Posts: 13116 | From San Francisco | Registered: May 2006
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