posted
I have read that lyme can cause dementia alot
So what exactly is dementia from? no one seems to have any idea. its just not even treatable, the brain just stops functioning right for no reason?
Do you think dementia is nothing more than undiagnosed/untreated TBI?
how many of people with dementia do you think really just have lyme and cos?
My boyfriends grandma has dementia BAD. I feel so bad for her. she doesnt even know who her own family is and cant even talk
Posts: 995 | From somewhere out there | Registered: Oct 2010
| IP: Logged |
lymeboy
Unregistered
posted
Alzheimers has been theorized to be linked with Lyme. Lyme attacks the brain, the spirochetes physically get in there. I cannot give a good scientific explanation, but this link could maybe shed some light.
-jmb Posts: 208 | From Maryland | Registered: Dec 2008
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I didn't know he died.
My mother in law just got diagnosed with Alzheimers and of course I don't think her daughters(that take care of her) would listen if I told them it could be an infection. Makes me sad.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
posted
I think he did die of Alzheimer's, how tragically ironic. I wonder if it was actually Lyme, contracted through his research?
My 65 year old father has been DX'd with Alzheimer's, but I wonder if it is Lyme. He has many SX as does my mother.
On the other hand, I wonder if I am thinking everybody has Lyme? The more I research it, the more people I think have it.
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
| IP: Logged |
sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I'm not even thinking that Alzheimers has to be lyme, but maybe just some type of infection. There are some clinical trials going on where they are treating Alzheimers with antibiotics with good results. Of course Dr M's research pointed to lyme being the cause of Alzheimers in 7 out of 10 brain samples.
Posts: 4035 | From Mississippi | Registered: Jul 2008
| IP: Logged |
posted
I had a "false positive" result from a lyme disease test about 20 years ago. Since then, I have been diagnosed with RA, Fibromyalgia, carpal tunnel, neuritis, and tendonitis....Help. I am in so much pain. I recently rescheduled with my Dr. to discuss alternative pain management and a re-test for Lyme Disease.
Posts: 1 | From Northeastern PA | Registered: Aug 2011
| IP: Logged |
James1979
Unregistered
posted
Tama - oh my goodness, it's so sad to read that! There's only a 1-3% chance of getting a false positive using the two-tiered testing, so most likely you were a "true positive". You can't trust any "regular" doctors concerning what they say about Lyme disease.
I highly suggest you start your own threads. Make one in the "doctor's requests" forum asking for a LLMD in your area (include the state name in the thread title), and make another one in the "Medical questions" forum asking for opinions on your situation. You'll get a lot more help and a lot more answers that way.
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
tama, get igenex testing. it's pretty much the only one to trust. your doc and send off for it. ain't cheap tho, i had to pay 400 out of pocket and insurance would not reimburse.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
tama, to post your own topic look at the top of this page in the middle, right above "your profile" - you will see POST NEW TOPIC. It is in kind of funny writing. You will get more responses. Sorry you have suffered so long.
About dementia, I have worried I had it with this disease. I couldn't remember practically anything and my thinking was sluggish and confused. It was alarming. After treating babesia (and Bb and bart) my mind is clearer.
Some people with alzheimers do have lyme. They have found the spirrochetes in their brains after death (in an autopsy). But there are probably other reason people get dementia beside lyme. My mother had it and it wasn't just sad seeing her decline because I could relate to her fear of what was happening. It was terrifying.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
| IP: Logged |
posted
Dementia is a term that describes a collection of symptoms that include decreased intellectual functioning that interferes with normal life functions and is usually used to describe people who have two or more major life functions impaired or lost such as memory, language, perception, judgment or reasoning; they may lose emotional and behavioral control, develop personality changes and have problem solving abilities reduced or lost.
There are about 50 diseases or causes of dementia, Alzheimer's is just the one most known.
Syphilis is a spirochetal bacteria very similar to Lyme BB. If it can cause dementia in the late stage, why couldn't Lyme?
-------------------- Down on her knees, she wept on the floor. This hopeless life, she wanted no more. Dead in the mind and cold to the bone, She opened her eyes and saw she was alone. ~Seether Posts: 427 | From Rhode Island | Registered: May 2011
| IP: Logged |
Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
Dr. M didn't die, as far as I know! But he does have Alzheimer's. He worked with the brains and the spiro's unproctected, at least that's how he was in Under Our Skin.
Dr. B, who discovered the Lyme spirochete, now has Parkinson's---same deal---he was exposed. In fact an infected rabbit he was working on peed into his eye!!
I think many, many cases of dementia are caused by LD and other infections, I'm sure.
Posts: 3792 | From around | Registered: Mar 2008
| IP: Logged |
ukcarry
Frequent Contributor (1K+ posts)
Member # 18147
posted
Mercury too has been linked with dementia.
Posts: 1647 | From UK | Registered: Nov 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/