sammy
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posted
I'm interested in trying Iodoral. I have a bottle but haven't started yet because I'm not sure how much to take. I don't want to cause any detox or worsening symptoms.
I'm also on thyroid medication (Nature-throid). I'm concerned that the iodine might affect my lab results. I've just gotten the dose high enough to feel that it is helping. My doctor is very much a numbers guy so he will pull the med if my labs are even slightly off.
Do you all think it would be good for me to try a low dose? How much?
I know I live in the "goiter belt" so I should probably supplement with some iodine.
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James1979
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posted
sammy - it's always best if you have an iodine-literate doctor to help you. But TOO BAD those are even more rare than the lyme-literate docs!
Personally, I really can't offer you any advice, because everybody is different, and peoples' issues can be very complex.
BUT... if you were just an average person without any rare problems (which is doubtful), I would suggest to take 1 Iodoral pill (25mg) a day. You probably will feel SOME changes within the first few weeks, but then the body should stabilize some. If you start feeling too sick, then just back down or stay away from it. It doesn't hurt to try. It DOES hurt to not try, and you may end up regretting it later.
Dr. Brownstein frequently gives Iodoral along with natural thyroid meds. He says that approximately 1/3 of the patients on thyroid meds are able to slowly stop the meds after reaching iodine sufficiency. So basically it's not "unheard of" to take iodoral while taking natural thyroid supplements.
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James - I haven't read through all of this yet, but I wanted to tell you that my LLMD told me last week that everyone with Lyme should be taking Iodine.
-------------------- Take care -kelly --------------- Posts: 330 | From TX | Registered: Mar 2009
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sammy
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posted
Thanks James, I had been thinking of starting with one or half a tablet daily. I'll probably start with the half, see how that goes, and gradually work the dose up.
Thanks to all who have contributed to this thread. It's very informative. Something that we all should be more aware of.
Posts: 5237 | From here | Registered: Nov 2007
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posted
I just saw my LLMD, who went to the ILADS conference and met someone who was very big on iodine supplementation and "seaweed baths." My thyroid levels are normal and I have not been checked for iodine level. However, he recommended both to me I suppose on the idea that we're all deficient and I opted for the drops.
It's been almost a week and I can't tell if it's doing anything yet but I sure hope it will. I wonder if it will help slow down my PKD cysts from growing too; that would be awesome. Thanks for posting all this information.
-------------------- ------------ It took 20 years to find out I'm not crazy. New bite in 2010 pushed my body over the edge. Positive for lyme, babs, bart, and myco. I am not a doctor and happily offer only my own opinions. Posts: 357 | From The Beach | Registered: Feb 2011
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sixgoofykids
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posted
Who carries Lugol's? Or do you have to order it online?
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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17hens
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posted
I'd say order online, Six.
So, James, am I reading this correctly that w/ Lugol's iodine (12.5mg - 50mg.), one also needs to take a particular selenium (200-500mg), magnesium oil and himalayan salt in water (when bromide starts to exit the scene). (Bromide might be the wrong word, never know with my brain.)
Is that all? Am I missing anything?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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sixgoofykids
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posted
Thanks, Hens. I checked Whole Foods and they do not have it.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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James1979
Unregistered
posted
Sixgoofy - yeah, I would just stick with online. At Amazon it's free shipping and it comes straight to your door.
17hens - yep, you got it right. selenium, magnesium (can be oral, also), and sea salt. ALSO I highly recommend vitamin C. I think Dr. B said at least 3 grams a day (split up) when you're trying to detox bromine. I personally prefer higher amounts, and I think he says in other places that sometimes he does 8-10 grams a day.
Very good of you for learning all that! Remember that those extra supplements will greatly reduce the symptoms of a detox reaction. If you really feel like you're suffering from a detox reaction, I would highly recommend epsom salt baths. But you're probably already doing those, anyway.
Isn't it strange that so many stores don't carry Lugol's? It used to be on the shelves of every doctor's office, and it used to be considered THE universal medicine. Now most doctors think that it's not only unnecessary, but that it's also dangerous.
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17hens
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posted
Do you think the C could be sustained release?
And what are the symptoms of detoxing bromine? (Checking to see what your reading recall is!)
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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James1979
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posted
"Checking to see what your reading recall is!" ... hmm.... are you testing me?
Just search this page for "Supplementation and detox reactions" (it's in bold), and you'll find the answer to the detox question.
About the vitamin C, everyone has different opinions. Even though I've read a couple of books on vitamin C alone this year, I would definitely not consider myself an expert. But PERSONALLY, I prefer just the straight ascorbic acid (if your tummy can handle it). The vitamin C geniuses (like 2-time Nobel Prize winner Linus Pauling) always used ascorbic acid in their studies, so I figure it has enough experience behind it. My second choice would be slow-release ascorbic acid. Then last choice would be the buffered or less-acidic types (like ester-C). Some doctors say that the ester-C types have only half the antioxidant power. Of course it's debatable, but IMO their science sounded logical.
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17hens
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quote:Originally posted by James1979: "Checking to see what your reading recall is!" ... hmm.... are you testing me?
You betcha!!!
Thank you for all your work here (and all your recall), James!!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Brussels
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Member # 13480
posted
One yummy and easy way to get iodine supply is eating dry see weed, the ones used to pack the sushi (makizushi) in Japan, or the kimbab in Korea.
You open the pack and eat it like it is, usually it's salty, crunchy... My daughter, born in Switzerland, was afraid to try it first, now she's a fan.
Many children that visit us home, when they finally try a bit of it, they usually like the taste. So it's easy to give them, and full of benefits!
I know many Western families who lived in Korea and their kids get addicted to seaweed too! In these countries, they consume a lot for centuries, I don't think there can be intoxication, at least never heard of.
I also lived in Japan, and again, there's daily high consumption there too!
Posts: 6200 | From Brussels | Registered: Oct 2007
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James1979
Unregistered
posted
Brussels - that's very interesting! Do you know what kinds of dried edible seaweeds would be available in the USA? I like to use the Eden Organics brand, but I don't know if you're familiar with them.
I have dried wakame and kombu. I've never tried Nori. Is Nori a type they eat straight out of the bag?
What do you think about this one?http://www.amazon.com/Eden-Organic-Cultivated-0-6-Ounce-Packages/dp/B0012AL434/ref=sr_1_1?ie=UTF8&qid=1321024826&sr=8-1
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posted
When is the best time of day to take the iodine? With food, without food?
Posts: 77 | From USA | Registered: Sep 2011
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17hens
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posted
I thought seaweed only provides iodine but not iodide which was the point of Lugol's...?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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James1979
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posted
quote:Originally posted by elainer97: When is the best time of day to take the iodine? With food, without food?
IMO, it's best in the morning or afternoon, especially if you're deficient and/or haven't been taking iodine for a long time.
For the first few weeks of supplementation especially, there's a big chance that you'll get a big energy boost whenever you take the iodine. You don't want that energy boost close to bedtime. Usually that boost goes away after the first few weeks, but some people might have it for a longer period of time, especially if they were very deficient.
I don't think it matters if you take it with or without food. But it's best not to take it along with any antioxidants, because they change the structure of the iodine. I would space the antioxidants 30 minutes away from the iodine, but that's just my opinion.
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James1979
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quote:Originally posted by 17hens: I thought seaweed only provides iodine but not iodide which was the point of Lugol's...?
Seaweed has a lot of iodide, according to this link here (see #3): http://www.optimox.com/pics/Iodine/IOD-12/IOD_12.htm That's a good article. (I apologize if I gave any incorrect info about seaweed and iodide in the past... I don't remember).
The problems with using seaweed alone is that iodine is very volatile, so it evaporates into the air. Many factors affect the iodine levels in seaweed, including processing, packing, storage, etc. Also the seaweeds are able to absorb other toxic halogens, so that's another negative.
I'm not saying that seaweeds are not healthy. But even if I was eating a lot of seaweeds, I would still want to take Lugol's or Iodoral. That's what Dr. Brownstein recommends. He's tested seaweeds, and he's said that they usually have high levels of contaminants, and low levels of iodine. (I think Mercola also did similar tests). I think the youtube video with Mercola and Brownstein talks about this.
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Thank you James! Posts: 77 | From USA | Registered: Sep 2011
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James1979
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posted
I just want to mention that I do NOT consider this "my" thread, and I do NOT think that I am some kind of an expert on iodine!!
If someone sees me writing something they disagree with, PLEASE share your opinion! Or if you see me writing something incorrect, PLEASE correct me! Don't be shy, anyone. I'm just repeating what I've read in a couple of books and articles. Not only might the books and articles be incorrect, but also my memory of them might be incorrect also.
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Catgirl
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posted
Wow, fascinating stuff, James!
A few years ago, I was bit, thought it was a spider bite and ended up in the hospital a few mos later. My dr said I had severe adrenal fatigue and told me to read the book, Adrenal Fatigue. It was big on rest, vitamin C and, you guessed it, iodine.
I didn't know I had lyme at the time and followed the book. I just changed my salt in the salt shaker to iodized (always ate too much salt), had lots of C, rest and incorporated some acupuncture and some diet changes. I felt sooooooooo much better about a year later. Never had abx until 2 years after I felt better (got bit again).
Lyme must eat iodine in us like it does magnesium and D.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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17hens
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posted
OK, I'm getting frustrated! I'm trying to order everything I need here (been working on it for over a week and keep getting side-tracked).
Can you please tell me what kind of selenium I need? And where can I get it? I know I read it somewhere but can't find it again. Thanks!!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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James1979
Unregistered
posted
Yo yo yo. James in da house.
Here's what I found:
quote:I found this on the internet and the people in the iodine yahoo list agree with this � The form of selenomethionine that the body can use is L-selenomethionine. L-selenomethionine is better absorbed and better incorporated into body components than any other known form of selenium.
Dr B recommends 100-200mcg of selenium a day, but not more than 400.
For the selenium, I personally prefer to just have a few Brazil nuts every day. 2-3 nuts gives you enough selenium for the day, plus a recent study has shown that the selenium from those nuts is the best absorbed. Plus it raises glutathione levels higher than any other form of selenium. There was an article on LN about this recently. Ah, here it is: http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=110861;p=0
It's a very good read. I highly recommend it.
Hens, I just have one thing to say to you: "Keep it real."
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17hens
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posted
"Keep it real?"
What, the selenium? I'd love to but...
OK, I dont mean to be a pain, but can you imagine how many brazil nuts I'd need for a family of 4? That would be up to 12 a day. 12 day for 30 days would be 360 nuts a month.
You got a rich brazilian, nut farming uncle I could call?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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Golly, hens. Maybe I should just come live in your house and Google stuff for you whenever you have a question? Just place a laptop in the dog house and I'll be fine. Does that sound good? But then you'd need 15 brazil nuts a day instead of 12...
Just kidding. I'm learning at the same time, so I'm glad to try to find the answers.
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17hens
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posted
Sure, come on over! No laptop in the dog house though, but the hen house is fully equipped!
I know I can do it all myself, but you're just lying around on your floor just waiting for some questions to answer, aren't you?
I do appreciate your help though. I like looking and talking and asking at the same time... and if you wait long enough, I'll likely find the answers myself!
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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James1979
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posted
"No laptop in the dog house"? What the heck?!??!!
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posted
I'm reading the Gerson book now regarding his treatment protocol, and he strongly adheres to a low-to-no-salt diet but does supplement with iodides and/or iodine--
It's interesting to read this thread and see the validation on how important iodine is (minus the sodium)---
Posts: 648 | From northeast | Registered: Feb 2009
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James1979
Unregistered
posted
The sodium issue is controversial, though. There are a lot of people here who would say that sea salt is very beneficial for many reasons. Even Dr. Brownstein (and the other famous iodine experts) recommend high dosages of sea salt when starting iodine therapy, in order to help safely detox the toxic halides that have taken the place of iodine in the body.
I've read the Gerson Therapy book also, and personally I disagree with some of his viewpoints. It seems to me that they are a little dated, and I wonder if he would change some of his viewpoints if he were still living today.
I'm not saying he wasn't good at curing cancer... On the contrary, I have full faith that he was VERY good at curing cancer. And maybe low sodium would be beneficial for that specific illness, I don't know. But it's also possible that maybe his success rate wouldn't have been lowered (and possibly it would have been increased) if he didn't stick to the "low sodium" regimen.
sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
Interestingly, my sodium has always been low. I've had three doctors over the past 20 years tell me to salt everything. We need salt. It's a macronutrient.
The probem is Americans tend to eat too much processed food, which is very high in sodium. I eat little processed food, so my sodium is generally low even though I use salt.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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posted
Great thread James, thank you for all the information.
As someone who has thyroid nodules, cystic breasts and uterine fibroids....I went on the Lugols 5%, I haven't been tested or had Ultra Sound since so not sure of how well it is working for the cysts or nodules. Hoping to see some improvement on next mammogram in couple months.
My improvements to thyroid, feeling about 70% better since taking Lugol's and T3.
Growing up in Nova Scotia as kids we ate bags of locally harvested dried dulse from the ocean like one would eat potato chips....think that kept iodine levels up butleft NS and different diet, prob. aided in being iodine deficient.
For a toothpaste recommendation, I use a neem toothpaste purchased from the health food store
As for Edgar Cayce, I read the book you mentioned many years ago and visited his Center for Research and Enlightenment in Virginia Beach, Va in the 1970's......I received a book today from Amazon "The Edgar Cayce Remedies" about his medical readings also wool pack and Castor Oil to start castor oil packs hoping to aid detoxing.
-------------------- I am not a Doctor and I never played one on TV, I'm just a lab rat with Lyme trying to rid myself of this horrible disease. Posts: 88 | From Florida | Registered: Apr 2010
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posted
I don't have an opinion yet as to the yay-or-nay regarding sodium (or iodines for that matter), since I've only just recently started reading the Gerson book. But, this topic is interesting.
Many of Gerson's hypotheses make sense to me, but it seems that I can read very convincing literature that can sway me to either side--Fortunately I am a natural skeptic, so I do try to hold off making any rash decisions either way.
I think Gerson's take on it is that the salt should come only from non-processed organic fruits and vegetables and that illnesses arise when the salt displaces the necessary potassium--again, not sure yet if this works in reality, since I'm just starting to read this book due to some people here on Lymenet having had success with his treatment.
I've always found nutrition very fascinating--I know that when I followed the raw diet, I felt great--unfortunately my 14 dd can't be convinced to eat anything like a raw diet. But, I'm happy to see that she is finally coming around to drinking her raw, fresh juices and green smoothies--
Guess next, I'll have to learn more about Lugol's.......
Posts: 648 | From northeast | Registered: Feb 2009
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
I started putting iodine on my skin and my temperature came way up, 2 whole degrees.
Recently it has been brought to my attention that breast and other cancer patients are using high dose (300mg) iodine to fight it and it's working. Why wouldn't it also not work to kill bacteria like BB and bart etc?
Posts: 3528 | From US | Registered: Apr 2007
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Jane2904
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Member # 15917
posted
DD has low Iodine and ND wants her to take one tablet 12.5 MCG's of Iodoral.
DD seems to react to most meds, supplements etc. Not sure if detox related.
I was thinking of giving her about a third of a tablet to try, hoping no detox reactions.
She does have positive thyroid antibodies, but no treatment as Doc's say it will go away with Lyme treatment.
Dr. J also told us Thyroid antibodies would go away in Lyme treatment. They came down alot, but not able to treat with antibiotics now, so antibodies are alot lower but still testing Positive.
We have just a LLND now and daughter's case is so complicated.
I just do not want to add any more problems for DD, but want to try Iodoral if it will help raise her Iodine levels.
Thought I would post in case anyone had real problems with Iodoral.
Also , when Dd put liquid Iodine on a sore piercing, it caused pain in nose and ears. So not sure if supplementing the Iodoral wil be okay.
Many thanks
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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-------------------- Psalm 46 1 God is our refuge and strength Posts: 1367 | From North Jersey | Registered: Sep 2010
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Abxnomore
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Member # 18936
posted
I read though this thread but have specific questions.
Who is taking Iodoral? I no longer have lyme but I am hypothyroid. I was tested for iodine and it was low, not surprising. My doc seemed to think that the does of Iodoral is too high.
She thinks it should be in the mcg's not mg's but I can't remember what she said. At the time I could not find one in mcg's but did after I bought the Iodoral. Biotics makes a liquid drop forumala in low doses.
My questions are:
Who is taking Iodoral that is also on thyroid medications?
What does do you take?
How has it effected you?
What dose are you taking?
Do you take it with or without food?
Would love to hear specific from others, good or bad. Bad reactions, good reactions, etc.
I decided to take it today but cut the 12.5 pill in half. What should I expect?
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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sixgoofykids
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posted
Hey, abxnomore!
I am taking Lugol's, which is drops and less of a dosage than Iodoral. I am only taking one drop which is 3 mg. I am hoping that it helps me get off thyroid.
I had a bad healing reaction upon starting it as I detoxed heavy metals/bromine that I didn't even realize I had. At least that's what I think it was. I'm just pulling out of that, and I had the flu last week, so I'll let you know how I feel next week as I get 100% of my energy back (the whole family is passing this bug around, so I'm still tired since 4 kids have had it).
It is much stronger than I thought. I guess I'm much more depleted than I thought. And, given that it's been a long time since I've felt bad, the healing reaction took me totally by surprise. I didn't expect it at all. Start SLOWLY. Skip days as soon as you feel bad. No sense feeling bad over it!
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Abxnomore
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posted
Hi Six,
Thanks for the feedback. I started today by breaking the pill in half, so I'm on approximately 6mg. I was thinking about taking it every other day.
Do you take it with food or does it matter?
I would guess a.m is the best time?
Keep me posted. I hope I don't bring on other problems!
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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Jane2904
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Member # 15917
posted
Thanks Six for posting your experience. I think I will just try a tiny dose for my daughter.
Hope you feel better from the response and the flu.
Good luck Abxnomore, hope the iodine goes well.
Posts: 1357 | From Massachusetts | Registered: Jun 2008
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Abxnomore
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posted
Thanks but I hope someone will give some answers to my questions:
My questions are:
Who is taking Iodoral that is also on thyroid medications?
What does do you take?
How has it effected you?
What dose are you taking?
Do you take it with or without food?
Would love to hear specific from others, good or bad. Bad reactions, good reactions, etc.
I decided to take it today but cut the 12.5 pill in half. What should I expect?
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
Take the iodine at least 20-30 minutes before eating.
I started with 150 micrograms and worked up to 2.5 milligrams gradually and it blew me away.
If you start feeling bad you are likely releasing bromide and need to back off and then put up to 1/2 tsp of sea salt in filtered water and drink it. Then drink a lot of water to flush it through the kidneys.
I felt so bad I had to stop the iodine completely as I could not function at work.
I do not take thyroid medication, but thought this might help me release some more metals and it certainly has.
Personally, I would not try this therapy until my body was pretty strong.
Hiker53
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 10192 | From Illinois | Registered: Aug 2004
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Abxnomore
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Hiker, Thanks for this info. If you are taking a dose in mcgs moving up to mgs than you are probably not taking Iodoral which comes in 12.5 mg per tablet.
What brand are you taking. My doctor wanted me to take a small amount in mcgs but at the time I couldn't find a product but now I have (biotics mades drops) and also everyone seemed to be using Iodoral. I only took a half a pill today for the first time and have put off taking it. I feel a bit uncertain about taking it.
I no longer have lyme but I do have elevated lead, which I will start chelating in about two months. Do you think I should wait until I start the chelation?
When you say you felt bad can you tell me in what way? Was it fatigue or weird things.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
I used Biotics Research Liquid Iodine Forte where one drop equals 150 micrograms. Doesn't taste as horrible as Lugol's either.
Weirdly when I was first diagnosed with Lyme the LLMD put me on iodoral and I did not have this severe effect.
This time when I took iodine I got very very severe headaches, muscle twitches, nerve pain, and kidney pain. The salt dosing with lots of water stops the pain as the bromide leaves through the kidneys. No more fatigue than normal, but weird dreams when I slept.
Since I teach full time I decided to wait until summer to pursue this. However, the iodine did start releasing some metals and brought out the small amount of babesia that I have.
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