posted
why you say it doesn't work? when you stop taking it comes back? or even when you take it it doesn't work? what are your symptoms once you get off ABX and what are the symptoms when you take it
Posts: 14 | From rochester | Registered: Jul 2011
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
I was biaxin,'cipro, levaquin, you name it. Did burner, cowden etc. My symptoms are All classic Lyme and I tested positive per igenex. The abx dis nothing but totally destroy my gastro system and leave me sicker than before. I did abx for over 2 years and saw no improvement. I don' t believe that abx will ever "cure" Lyme. So what I'm asking is relatively simple. Is there something out there that will permanently kill lyme?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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sixgoofykids
Honored Contributor (10K+ posts)
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posted
I've been well for two years since treatment with the Bionic 880
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
sorry forgot. my symptoms were worse on abx and stayed worse never getting better. Headaches, burning feet, rashes, insomnia, you name it I have it. But I will say I herxed longer and harder on diflucan thanmny other thing I have done And I've Spent thousands.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
wondering. Can candida present like Lyme. I've read the Symptoms and Most are identical. Will treating yeast Make the symptoms go away and how long can you be on diflucan, the liquid did nothings for me
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Symptoms are nearly the same .. just different causes.
Liquid?? I've been taking Diflucan for months now. You have to keep checks on your liver though.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
randibear, I feel for you, as you have been with this far longer than I and I feel as thou I have done far more to gain my life back then any other illness in my 55 yrs of life... What Kills Lyme ? We are thrown into a nightmare with medical professionals saying we are crazies, We are trimming everything that cost dearly, $$$ We are dieting and micro managing our foods and supplements.. We are our own advocates, God Bless the many folks here that have fought so we can press on. We have tested our will against all odds - Taking in every bit of info that is possible,when we can't read or comprehind anything. What Kills Lyme ? Your own inmune system... thats what ! supporting our inmune system to defend against the unknown bacteria, that is suppose to mimic good micros in us... Listen to your body and do it... I have all but, drank whiskey untill i am no more.. Then The Lord reminds me, stay the course, accept Jesus and when this physical torture ends, the Heavens will open and all illness is forgotten. I hope you find an edge of accepting what we all have (whatever they want to call it) and live. Live as gentle and as joyfull as we can mustard up as human beings.. Love one another. If it wasn't for lymenet, I would not be. The Lord has a plan, find His Will and follow His path, He alone nows the cure.. and when He decides, there will be no more lyme net, no more pain, and life will be yours again... Believe and take our Blessings daily. wayne
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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posted
well said Wayne! I am trying so hard to accept HIS plan for my 17 year old daughter who has been dealing since she was 14.
Very hard..I only wish it could have been me and not her.
Thank you for your words....
Debg
Posts: 499 | From Malta, NY | Registered: Dec 2008
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payne
Frequent Contributor (1K+ posts)
Member # 26248
posted
yes debj, thank God, I am only a lighten rod,
I hear people say I want my life back and one of the most hurtfull things I feel is..
when you are a parent
How dose your child know what life back is..?
-------------------- TULAREMIA/rabbit fever ? Posts: 1931 | From mid-michigan | Registered: Jun 2010
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randibear
Honored Contributor (10K+ posts)
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posted
I meant the liquid stuff what do you call it? The yellow stuff that tastes like bananas umm nystatin maybe? It's for thrush..but didn't do a thing.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Have you looked into Phytostan to treat yeast?
One of the LymeNet members told me about it in the chat room. He said that his doc suggested it after two prescription products failed. It worked so well that he was annoyed the doc hadn't told him about it first!
It has caprylic acid, undecylenic acid, and grapefruit extract with Pau D'Arco.
quote:Originally posted by randibear: [QB] I meant the liquid stuff what do you call it? The yellow stuff that tastes like bananas umm nystatin maybe? It's for thrush..but didn't do a thing.
- Probably because it contains sugar!
Carol.. I can't tolerate those ingredients. I sound like a broken record.
Randi.. how about you?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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posted
Randi, ever tested for mold exposure? Symptoms are a lot like Lyme and mold halts lyme treatment.
Posts: 671 | From Fort Myers, Florida | Registered: Jun 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
umm how about me what?? I forgot the question.. Nope not tested for mold. How do you do that?
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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I think the other members are on to something - you may have a secondary challenge - hope you can find it with help from LymeNet and address it properly and start feeling like you are on the way out of this mess
I really feel for you
having said that, in answer to your original question, I think the abx I am on are owrking for me (previously doxy and now Minocycline 200mg/day plus recently Bactrim DS 2/day) and I think those drugs ARE killing Lyme dead, just not all individual bacteria at once (thank God - my body would die of toxins)
I do feel liek I Herx and then actually get better, and I am so glad and I am sorry you are obviously not getting that experience and I would be upset, too, if I did not get some hope that I am on the right track
hope you can look into the yeast or mold or metal or parasite or immune support or someother aspect and get well!!!!!!
do you have a good doc who has done tests on your immune system / metabolism to detect possible weakness that could be supported to give you a better edge so that you can get better? like adrenal glands, deep sleep, Mg/D/B12 levels, thyroid, inflammation, etc.
good luck!
-------------------- Persistence, persistence, persistence!!! "Nothing in the world can take the place of persistence... Persistence and determination are omnipotent." attributed to Calvin Coolidge Posts: 599 | From USA | Registered: Jun 2011
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posted
elaine, how do you test for mold exposure? is it covered by insurance?
Can my llmd do it or does an allegy specialist deal with this.
thanks.
Posts: 40 | From northern nj | Registered: Mar 2011
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
Randi,
the moldtesting is a good idea. It is the number 1 in lyme treatment. Elaine can help you, pm her for details.
Number2: You know that any lyme treatment starts with the Dr K protocol. Diflucan is now used as an antiparasitic and not anti yeast only. That's why you feel better on diflucan.
Posts: 1834 | From US | Registered: Oct 2008
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randibear
Honored Contributor (10K+ posts)
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posted
i've got a doctor who does not believe in candida or lyme. remember -- no lyme in texas. i can't travel.
i understand there is a holistic doctor here, dr. s, i think but he takes only cash and is really outrageously expensive. like 1700 for the first visit....wow
i can't get diflucan from anybody, including my gastro, caused i've specifically asked for it and explained my reasons. their rational -- there is no such thing as candida.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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klutzo
Frequent Contributor (1K+ posts)
Member # 5701
posted
Hi Randibear,
Pleo Alb knocked my candida on it's a**. I took a huge overdose the first day by accident when I couldn't get the dropper to work correctly, and woke up next morning with what looked like a whole teaspoon of yogurt on my tonuge. After that I stayed on the regular dose.
It's a homeopathic remedy, so it's very safe and I've seen it available online, though mine was prescribed by a Naturopath.
The Naturopath also told my husband that his persistant tennis elbow was caused by yeast and put him on Pleo Alb. He had tried every conventional tx over a period of several years, including cold laser = $$$, with no luck. Pleo Alb cured him in 2 weeks, and it's been almost 10 yrs. now with no reoccurrance.
Prior to this experience, I thought homeopathy was bunk. Live and learn!
klutzo
Posts: 1269 | From Clearwater, Florida, USA | Registered: May 2004
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
What is pleo alb? I've nev heard of it
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Deb and payne - hoping your kiddos get into remission soon. It's not right for kids to deal with this crud.
Posts: 707 | From Colorado | Registered: Jul 2010
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jackie51
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Member # 14233
posted
randi--how is your dental health?
Posts: 1374 | From Crazy Town | Registered: Dec 2007
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
dental is ok. But I've had a root canal and had to have a bridge put in. No cavities at last check up. Have alot of tmi pain tho. My splint finally broke and the guy charges 3 Grand so right now am not wearing one. I do have lots of fillings tho but dentist charges a ton to have them removed cause I asked and he said mine are not the old metal Mercury compound but the new composite stuff
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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posted
Thank you for your thought jlp38. It is the hardest thing Ive ever faced. As a mom you feel so helpless. It really is a nightmare that I am praying one day to wake up from.
Deb g
Posts: 499 | From Malta, NY | Registered: Dec 2008
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Rivendell
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Member # 19922
posted
I read an article about an avid hiker (the AT trail, Pacific Crest Trail, etc.) who developed Lyme Disease. He took years of antibiotics, including IV's. Nothing worked. Discouraged, he quit the antiobiotics and started taking Probiotics. He gradually began feeling better. He is back hiking again. He doesn't have the stamina he originally had, but says he continues to improve as time goes by.
So why did the Probiotcs help him so much and the antibiotics did not? Did the probiotics help improve his health and immune system to kill the Lyme. Obviously they helped with candida.
I have read that yogurt, kefir, etc. contain Lactoferrin which is supposed to kill so many things as well as destroy some types of Biofilm.
I will try to find the article and post it on the board. Should provide for a good conversation.
Posts: 1358 | From Midwest | Registered: Apr 2009
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P.S. - I asked my LLMD if they could test for mold and they said that it is not part of their practice.
Hope you can help!
Posts: 348 | From NJ | Registered: Sep 2011
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momlyme
Frequent Contributor (1K+ posts)
Member # 27775
posted
When I suspected mold, my son's LLMD said there was no way to test the body for mold... so I did an ERMI on my house and then air testing. These 2 tests cost me over $2,000.
If I knew then what I know now, I would have spent $250-300 on the urine testing for mycotoxins.
There are a couple of labs that I know of that test the urine for mycotoxins... which are actually the bi-products of mold... the thing that makes you sick is not mold, but mycotoxins.
PM me if you want names and addresses for the labs. I know a few mold friendly doctors too.
We had to switch LLMD's... if you suspect mold and you also have lyme, I would look for a doc who can put all the pieces of the puzzle together.
-------------------- May health be with you!
Toxic mold was suppressing our immune systems, causing extreme pain, brain fog and magnifying symptoms. Four days after moving out, the healing began. Posts: 2007 | From NY/VT Border | Registered: Aug 2010
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Bionic 880 treatment worked for myself and my two children. We went to Germany in October, 2009 to be treated by Dr. W.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
what is the bionic 880 treatment and how does it work?
-------------------- my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that. Posts: 30 | From NJ | Registered: Oct 2011
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posted
what is the bionic 880 treatment and how does it work?
-------------------- my wife and I and all 4 of our children have chronic lyme disease. My mission is to fix that. Posts: 30 | From NJ | Registered: Oct 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Randibear: I think it's a combo of abx., a LOT OF REST, diet, and anaerobic exercise.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
the answer is 40.000$ and india stem cell therapy.
Posts: 140 | From Germany | Registered: Feb 2011
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sixgoofykids
Honored Contributor (10K+ posts)
Member # 11141
posted
quote:Originally posted by phil C: what is the bionic 880 treatment and how does it work?
Phil, basically it's a light treatment with nosodes. There are a few active threads on it that you might want to take a look at. Look on page one and page two of medical questions for the threads. I went in Oct. 2008 and have not been on abx or killing herbs since.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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