posted
I know people here have been helped with Levaquin, but everyone needs to be very careful while taking it.
My mom was put on Cipro for seven days for a urinary infection. On the third day she started having leg pain in her muscles. She finished the seven days of Cipro with legs still hurting.
The day after getting off seven days of Cipro she got a bad respiratory flu. Her doctor put her on ten days of Levaquin.
I threw a fit and said her legs are hurting from Cipro!!!!! Doctor said pneumonia could be far worse then leg pain. Her legs got way, way worse on Levaquin. After 6 days of it she could no longer walk and was taking presciption pain meds for the pain. Doctor switched her to Zithro after six days.
She is now in a nursing home with severe weakness and pain in her legs!! My family and her doctors wouldn't listen to me.
They are now saying though that they think it was the Levaquin! She was in the hopsital for 4 days on neuro floor and they ruled that it was not neuro.
My mom could walk before Levaquin. It takes two people to carry her to the bathroom now!! She has had to move into a nursing home and no one knows if she will recover from this.
So be very careful if you are taking Cipro or Levaquin!!!!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
That's horrible! I have stated to all doctors and hospitals that I am "allergic" to quinolones. Not exactly true, but I had increased nerve pain from one of the quinolones and I refuse to take any more.
How awful that your mom is now in such bad shape! Do they think she can recover use of her legs??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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posted
Her new doctor said there is a bunch of stuff written about how that class of antibiotics can damage you but she couldnt find much on recovery. Scary stuff!! Hope and pray she gets better!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i took cipro in the beginning for several weeks. my legs got so sore i could not even climb steps so i stopped on my own.
so far no damage. the doctor insisted that it was not the cipro but i new differently.
i would say for some people it is deadly, for others it's ok. it's hard to say.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Just to let you know I've been on it for several months with no side effects.
Posts: 844 | From CA | Registered: Apr 2010
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
OMG! Thanks Aiden for the warning! I hope your mom gets better.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
I think the fact that she's 76 didn't help. I thought I read that people over 60 were at a higher risk for problems. Think if they had just stopped it right away when the pain and weakness started she would of been ok.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
[QUOTE]Originally posted by randibear: [QB] i took cipro in the beginning for several weeks. my legs got so sore i could not even climb steps so i stopped on my own.
That's how my mom's started. First she just got sore. Then after about a week she was extremely painful and weak in her legs.
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
I'm sorry Kathy. I hope she recovers soon.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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posted
Thanks! I was hoping that if anyone else had any serious problems with quinolones they would let me know if they recovered. Hoping so!!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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posted
Sorry to be responding so late to your post. I showed this thread to my wife who has severe chemical sensitivities and is allergic to nearly all antibiotics and this was her response.
Ask the lister to seek assistance from an environmental medicine specialist who uses the Rinkel technique. A good place to start is the American Academy of Environmental Medicine to locate a doc in your area. This may be reversibe by this method.
ts
Posts: 4 | From The High Plains of Wyoming | Registered: Sep 2011
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
I also tell them I am allergic to the quinolones. Levaquin screwed up the tendon in my left heel, and took a year to recover, but I did recover.
They put me on it in the hospital for a kidney infection. I was very sick, so maybe the trade-off was worth it. But I sure wouldn't take it again.
What is the alternative to this class of drug for kidney and UTI infection anyway? I am also allergic to every abx that I know of.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
How is your mother doing now, Kathy? Hope she is getting better!
I had horrible pain all over my body after 4 weeks of Levaquin, could hardly walk. Also neurological problems, couldn't tolerate food, chemical smells, not even my perfume.
This diminished over weeks and months. After 1 year I was well exept intolerance of almost all antibiotics.
Posts: 269 | From Germany | Registered: Jul 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
its good to hear some have gotten better
i had a scare and stopped on my own
something similar happened from lipitor
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am really sorry this happened to her. I got tendonitis from it. I was in pain for 8 months.
Finally I ordered a supplement called Rapid Response and the pain was gone the first night. I normally do not recommend commercial products but when you are in that much pain, it might be worth the try.
It clearly states that side effects are much more common in elderly people. She should never have been given Cipro and then to give her Levaquin on top of that was unbelievably negligent.
There are class action lawsuits against the makers of levaquin.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i wonder what is in rapid response...and where do u get it? thanks
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
My mom hasn't gotten any better. It's only been a month and she is 76, so I'm thinking it could take months to see any improvements.
She is very upset. She went from walking fine, to not being able to walk at all within about a week. Her legs hurt really bad and give out when she tries to walk.
I'm glad that people can get better over time!!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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I had achilles pain from less than 2 levaquin pills, and even my llmd didn't believe me because I didn't even reach "blood level" at that point. Took about 7-8 months to go away.
Posts: 175 | From SW PA | Registered: Mar 2008
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