Topic: anyone with psychiatric disorders from lyme?
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Just wondering to how severe can the memory probs be with lyme? I literally have trouble remembering things from one second to the next which drives me nutts and makes me feel so confused.
How bad can memory probs be?
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
I will also forget what I am saying mid sentance , go from room to room forgetting what I went there for
Also can't remember thoughts from like a minute ago
Forget how to perform tasks etc
Is all this normal for lyme when it is this bad and can the memory also come back fully?
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
posted
Well, I haven't officially been diagnosed. But, I forget a lot of things and have problems finding words. I think this is normal with lyme???
Posts: 98 | From Ontario | Registered: Feb 2012
| IP: Logged |
posted
Did you get an appt yet?
Posts: 98 | From Ontario | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
No not yet I am emailing the paperwork today. Is it only the patient questionnaire that needs to be emailed back?
Can lyme really obliterate the memory , I have trouble even remembering what I did earlier today is this normal?
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Also trouble remembering names dates what day it is just feel like I am suffering some form of amnesia uggg is this normal for lyme can mamory get better again
The poor memory makes me feel so stupid and confused
Keep feeling like I have no grip on day time etc
Just feel so out of it and confused
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Days also seem to flow strangly like they are broken up into gaps of time
By the end of the day the morning feels like it was ddays ago
Has anyone felt so mixed up and out of it that they have trouble percieving time and days normally. It is like you just aren't quite with it and because memory is so bad you feel like you are stuck in the present
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
posted
The symptom sheet and the questionnaire has to be filled out. Fill it out soon so you can get an appt.
Posts: 98 | From Ontario | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Anyone else felt like what I have described above with memory and perceptual problems?
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Maya,
ALL that you describe is absolutely common with lyme, other tick-borne infections and certain nutritional deficiencies.
We have to learn how to operate our bodies differently.
PACE yourself.
PLAN each segment before you get up from a rest period.
PRIORITIZE
VISUALIZE what is to be done next and see yourself as if on a movie screen, smooth sailing, so to speak. That way, your brain and body have a clue as to what you are asking.
DIVIDE and CONQUER. Divide tasks into more manageable parts, rest &/or do gentle exercise between.
WILD Salmon, sardines, walnuts, can help. WATER. WATER. WATER. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
I certainly don't feel normal but is it possible for the abx to make me feel ever so slightly better?
Just started taking clarithromyacin yesterday and seem to be having a slightly better day than I have had in a while , mood seems slightly more stable
Don't know if this is just coincidence or placebo just wondering if you could feel slight improvement after only 3 pills of abx or is this more than likely just placebo?
I am just wondering too if feeling slightly better on abx is further corobiration that it is likely lyme it just seems unbelievable that I would feel slightly better after only 3 doses
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Hey keebler thanks again for the reassurance and also I have started on the magnesium , omegas and liver detox
These may be what are making me feel the slightest bit better
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Q: Is it possible for the abx to make me feel ever so slightly better?
Yes. I felt much improvement the first two rounds of Biaxin for sinus infections (before I knew I had lyme).
Unfortunately, though, a candida infection took over my whole brain and body from that because then I had never been told how to help prevent or address candida. You have that knowledge now, so be on guard.
And remember, though, things can change. We are all sort of in a canoe on a river and the waters' flow, the wind, & all aspects of weather will shift. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Hey keebler how soon did you feel better on the biaxin for the sinus infection ?
Is it silly or more likely placebo that I would feel slightly better after 3 pills
I am really sorry about the candida I am making sure to stay on the nystatin and sporonox while on abx
How did you feel better from the biaxin ie what symptoms improved? Did mood improve
Thanks so much for all your help and wisdom keebler you are a wealth of knowledge and so very helpful
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Sorry for all the questions keebler you just seem to know so much
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Maya,
No need to be sorry for questions. If I keep replying that "all you describe is very common for lyme & co" it is to reassure you.
I probably have been replying too much but if I see something that strikes me, I pipe up. You also have other good replies here and we're all pretty much on the same page.
I also hope that others' experiences will help you spend less time than I did early on wondering and worrying and trying to connect all the dots -- and that can take time away from the task at hand.
I do tend to come down hard when I see anyone post about it "being all in their head" or
wondering if, after 3 doses, feeling better is also all in your head, wondering if it could be "placebo" effect, then.
No. No. No. No. It is NOT a placebo effect. Three doses of a strong antibiotic for a sinus infection can, indeed, bring improvement.
Why in the world would we think it placebo effect that medicine works.
I suspect that so many of us have been so verbally abused by doctors that we have come to think far, far too little of our own innate intelligence and instinct.
Especially for women, it seems. I think it's a programmed, societal thing sometimes. And we have to get over that.
MOOD. Pretty much just accept that it's going to be out of sorts and all over the place for awhile. But, there are things that can help, even today.
Wild Salmon, sardine, fish oil. Magnesium, etc.
As for mood and Biaxin, well, if you feel better, you'll feel better in many ways. But, as any Rx can be hard on the liver -- and a stressed liver can cause depression, etc. - you MUST have liver support.
Hey, I'm not so much a wealth of knowledge, really. It's just that I had the same questions as you and spent way too much time dazed.
Hope to help others avoid that.
Now, it occurs to me that in your questions may be a call for communication that can't be achieved through a computer screen.
Be sure to connect to your area lyme support group -- and please call that LLMD with whom you've scheduled an appointment to see if
they can suggest a good LL psychologist/therapist/counselor. Some insurance policies cover mental health services.
This would not be "for lyme" per se as far as insurance is concerned but it is absolutely vital to find a professional who is ILADS-aware and LL.
It will help to TALK with someone. And a professional can also help you reframe some key elements and build on self-communication.
Through cognitive therapy, I learned so many solid skills for how to "talk to myself."
But, if that therapist is not LL, they will not have the knowledge needed to help you figure out lyme-related anxiety, etc.
(Again, salmon, sardines, fish oil & magnesium are key to helping your body be able to settle down.)
Some LL NDs or LL acupuncturists can be marvelous in this area, too. Not necessary so much with formal talk therapy, still, many are great at serious conversations and can offer ways to balance mood.
And do nurture and nourish yourself. -
[ 03-09-2012, 04:21 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Thanks keebler for all your help I do assume though that with the right treatment symptoms will go away. If that is the case that will help me alot
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- It may take a while but, yes, with the right treatment, anxiety, depression, "wired but so very tired" stuff most often disappears.
Still, for now there are things that are nearly required along the way:
Magnesium, Fish Oil, Milk Thistle, various key nutrients, avoidance of food triggers, etc.
Talk therapy with LL therapist can be a wonderful help, too.
Refer to past posts on this topic. You can see your posting history by clicking on your posting name.
WHEN IS YOUR FIRST LLMD APPT? -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
My first llmd aPpt may not be till june unless I can get a cancelation
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
posted
They will probably call you sooner. They are very efficient about getting people in as soon as they can.
I got in earlier than scheduled.
Posts: 98 | From Ontario | Registered: Feb 2012
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Would this antibiotic be hitting the lyme too?
I don't know if I have noticeed any herxing as I feel crappy all thE time
Am really shakey today
How drastic can the herx be? Can it sometimes be hard to tell if you are herxing?
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
quote:Originally posted by Truesun: Psych issues have always been one of the worst parts of this illness for me. They always get worse when I try to detox and during a full moon. Killing off the yeast with Diflucan helped alot with the the depression and some with the anxiety
Truesun hit the nail on the head. I felt so bad thursday night (3/8), I didn't realize it was a full moon. Insomnia all night. I just completed a week (previous week) of diflucan to kill the yeast but was not on it on the 8th.
Maya, yeast can mess with you too. Anxious, miserable feelings, like something is seriously wrong with you. We often overlook this in lymeland.
I'm no doctor, but girl, you have lyme and company. 99% of people here do too, so you're not alone. I am loaded with co infections.
It is a bit overwhelming, but it's also really important to stay positive.
Keebler (a gift from God), gave you fabulous advice. She mentioned American Indian drum music (Carlos Nakai). It really helps me. So does acupuncture.
I don't know how people with lyme get by without acupuncture. I actually get it almost every week, and my acupuncturist puts on my favorite Nakai song while I'm treated.
I suggest printing out all of the great info everyone has provided you above so you can refer to it daily (will help calm you down to have answers to your questions). The answers are there, you just have to let them in. :)
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
| IP: Logged |
Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
The only thing is I am treating the yeast with antifungal meds and I think I have lyme but don't have a diagnosis yet
Posts: 1632 | From Canada | Registered: Feb 2012
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic