dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Have any of you with neuro symptoms (numbness, tingling, tinnitus and vestibular issues, mood swings, etc) been helped with just the oral ABX? I would like to hear about some success stories without going the IV route but not sure I will. Thanks.
Posts: 2386 | From New England | Registered: Aug 2011
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posted
I've been treating with orals, my neuro sxs have largely been eradicated.
Posts: 386 | From Southeastern PA | Registered: Oct 2007
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posted
I have every neuro symptom you can imagine... I tried treating with orals for almost two years with little improvement.
I started IV treatment December 1st and am already seeing a huge improvement. I still have a long way to go, but the IV route is definitely helping me more.
-------------------- Lyme918 Posts: 188 | From Massachusetts | Registered: Dec 2010
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
IV was huge for me too although I did get a lot out of ceftin and zith for 12 months straight (I was preggo).
Posts: 1104 | From N.California | Registered: Jan 2008
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
Those on IV TX - how long have you been on IV? Have you ever stopped? And how was it for you then? Sorry for all the questions, but I have a big decision to make.
I have only been on oral ABX 4 months and my daughter's wedding is coming up in June. I'd like to give it some more time but my LL NP says start now. Other LLMD I went to for second opinion (who is more old school) does not think it is a good idea.
Posts: 2386 | From New England | Registered: Aug 2011
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
I went on IV abx for 2 months, then stopped due to insurance disapproving IV abx, and eventualy restarted a few months later on oral abx. I'm still not completely well, but off abx for over a year now and still seeing improvements. Abx did a lot for me and are not a help anymore.
Posts: 1927 | From se usa | Registered: Mar 2010
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ktkdommer
Frequent Contributor (1K+ posts)
Member # 29020
posted
My son did IV rocephin for 10 months and he improved a lot. Went from bedbound to back in school. I would make the same decision again only keep him on it for longer.
-------------------- Things are never dull. After 3 fighting Lyme, 2 are in remission. Youngest is still sick, age 22. He has new diagnosed Chiari Malformation and Ehlers Danlos Syndrome. Posts: 1366 | From Perrysburg, Ohio | Registered: Nov 2010
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