posted
Does anyone else have problems with extreme heat? I live in NJ and we're having a huge heatwave right now. I was only diagnosed 10 days ago and have started treatement, but I feel horrific today!! I was wondering if the heat may have something to do with. Any input would be greatly appreciated! Thank you!
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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lpkayak
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posted
yes
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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seekhelp
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posted
I cannot tolerate it one bit. I couldn't walk outdoors at all barely the last three days. It's horrible.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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yup, I couldn't go outside for the last 2 days
Posts: 908 | From Albany | Registered: Nov 2008
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randibear
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Member # 11290
posted
Oh my yes.. Its starting to get hot here. It's already 97' and will be 104-105' next week
I cant be outside for more than a few minutes
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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Sammi
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posted
Yes, absolutely. Summer is very hard for me. It is worse when I am treating Babesiosis. Do you have it?
Posts: 4681 | Registered: Oct 2000
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Awful for me. It was in the mid 80's here today. I'll take it!! (PS.. I'm not in TX)
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
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- Yes. It's a dangerous thing for me. Not even extreme but if I get one degree too warm, some serious stuff happens. I have to plan ahead to try to NOT get too hot to begin with.
Anything over 82 degree, two days in a row is too much for me.
Take all precautions to stay cool.
Do not sit in a car, even in the shade. On an 80 degree day, it can still go over 100 degrees in just minutes, even in the shade with a window cracked.
Ice packs when you get into your car. Even with AC, it takes too long for it to cool down without you having some kind of ice protection. Better if you can park in the shade, of course.
Wrap ICE PACKS across your neck arteries on the side and around the back of the neck, wrists and small of back.
Take double freezer zip lock bags to get ice from a market or restaurant before you leave.
If you work or go to friends, put your ice packs in freezer and put a note around your keys (or your keys on top of the fridge to remember.
Windshield buffer when parked. I don't know what the call it but keep the sun from coming in if possible.
Open all doors for a couple minutes BEFORE you get it. EVEN if car is in shade.
Cool water - NOT ICE COLD, though. You can suck on ice cubes, though, but ice water in your belly can cause shock if you are already hot.
Put damp tee shirts in freezer and keep handy when home.
You might search for a "COOLING VEST" as used with "MS" patients
While I know "MS" is often misdiagnosed and it can be lyme, Cpn or other tick borne or chronic stealth infection, this is one thing that many with neurolyme have in common with those diagnosed with "MS"
Serious inability to tolerate even slight changes with heat (or cold).
PLAN AHEAD every step of the way.
For ease of searching, the term "MS" will help. Just know that MS is very often lyme so you are covered as long as you see a good LLMD. But the same heat damage that can occur with "MS" can occur with lyme.
Heat can cause a terrible set back, so I really stress, as much as possible, try to avoid getting too hot in the first place.
Do TELL your LLMD about this, though.
Google: MS, heat & also: MS, cooling+vest -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Catgirl
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posted
When it's humid like this too, it makes my breathing shallow, which in turn sometimes gives me headaches.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Razzle
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Member # 30398
posted
Yes. When the outside temps get above 65' (F), I feel like I'm going to explode.
Can't sleep if the house is warmer than 68' or 69' (and it heats up easily when it is sunny here)...
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Keebler
Honored Contributor (25K+ posts)
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- Razzle:
"feel like I'm going to explode"
Exactly. Thermonuclear. My skin can barely contain the heat but also like my skin is holding in the heat. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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mojo
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posted
Actually, any kind of heat is tough for me. When it gets this hot and humid I'm a mess!
Posts: 1761 | From USA | Registered: May 2006
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horrible...i hate summer, and i live in the south.
-------------------- Psalm 119:50 My comfort in my suffering is this: Your promise preserves my life. Posts: 292 | From Heaven | Registered: Jan 2011
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I agree with what everyone else has said. Heat puts me over the edge. Additionally, it doesn't take a lot to get me warm. I am freakishly warm-natured. I never use to be this way, but I have to have it freezing all the time.
I wonder if thick blood or biofilms contributes to Lyme patients being more warm-natured.
In case anyone wants an example: I went to Mayo in Rochester, MN in January during there snow storm with my sleeves rolled up--comfortably.
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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posted
The heat used the bother me terribly. Coeulddn't tolerate anything over 70 degrees.
Since I started chelating for heavy metals the heat doesn't bother me and my night sweats and hot flashes are gone.
I have no idea why.
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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posted
I can't handle the heat/sun either. I have to enjoy the outdoors in the mornings or evenings. No laying out by the pool anymore for me...at least not until I AM BETTER!!!
Posts: 463 | From Sandusky, Ohio | Registered: Jan 2012
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Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
My temperature intolerance started when I got RSD. RSD is known to involve damage to the temperature control area in the brain (hypothalamus, I think...). And RSD is also known to be associated with Bartonella and Lyme.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4167 | From WA | Registered: Feb 2011
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Catgirl
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posted
Ditto what doglover said (night sweats and hot flashes). My night sweats and hot flashes are diminishing (I'm chelating too).
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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posted
When it's hot, and yes, it does get hot here sometimes, I have to drink lots of water throughout the day to prevent heatstroke.
Posts: 13117 | From San Francisco | Registered: May 2006
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posted
Thank you everyone so much for all your respones! I'm already feeling crummy and it's barely 90 today, shooting into the upper 90s for the next 3 days so I guess this is how it will be. Nice to know i'm not alone and that i'm not crazy!! I hope everyone feels better and keeps cool!! :-)
Posts: 132 | From Central New Jersey | Registered: Feb 2012
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posted
Yes. I used to love the heat, now I cannot tolerate it at all. It was 117 here today with heat index and I couldn't breathe just standing out there for 5 minutes.
-------------------- Treating lyme, bart and babs Posts: 506 | From NE | Registered: Dec 2011
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MannaMe
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Member # 33330
posted
My husband is doing better this summer - its almost 1 year into treatment. We had a heat wave last week an he survived it okay! So hang in there - it does get better!
He didn't go out and do anything in the heat, but neither was he flat in bed in the air conditioning. He survived.
Posts: 2285 | From USA | Registered: Aug 2011
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It's horrible.
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