Topic: Are your biofilm supplements REALLY helping you ?
annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
Can anyone share what they are using for biofilm sludge and what REAL improvement they see ?
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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WPinVA
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Member # 33581
posted
Boluoke. I have no idea if it's helping or not. I have had a lot of improvement these past few months since starting it, but that has also coincided with fixing my thyroid problems.
Posts: 1737 | From Virginia | Registered: Aug 2011
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annxyzz
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posted
Thank you for sharing.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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lymeboy
Unregistered
posted
Good question. I take Interfase plus, and I cannot say if it is making a difference or not.
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Carol in PA
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Member # 5338
posted
I've been taking Wobenzym for several years.
This is supposed to reduce biofilm, reduce inflammation, reduce fibrin. This results in improved bloodflow and more oxygen to the cells, so that they function better.
The first thing that I noticed was that I no longer woke up every day with a splitting headache.
I had less body and joint pain.
When I stopped or switched products, the pain returned. When I increased the daily dose, the pain level was reduced again.
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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posted
No. I have tried Buluoke/Lumbrokinase by adding it to and regimes twice and never noticed the slightest difference and relapsed just as fast.
Posts: 410 | From Victoria BC, Canada | Registered: Jul 2008
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annxyzz
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Member # 20404
posted
This is helpful . I have wondered if reducing biofilms w/ supplements would speed up killing infection, but like everything else it is a crapshoot .
I definitely think enzymes inhibit inflammation and pain assoc with it . I have to conjecture that they are not the missing link with our recovery in most cases .
Lymenet is valuable because we can learn more from one another than most med professionals we will encounter . Surely there will be a day when someone unravels the mystery for those of us w/ lyme CFS long term . That is my prayer !
I take bromelain when I have any pain in my back or when I have tendon problem with my knee . Along with magnesium, they make a BIG difference .
Until the mystery is uncovered, we can keep experimenting and "vetting " different approaches to wellness . I really appreciate all of the people on this site !
One " theory " thatI do think may have real potential is the parasite relationship . Many ticks are found with filaria , and many mosqiotoes also . That seems very credible. Also , Sparkle shared that many CFS patients were found to have another parasite , LUNGWORM . I googled that , and from what I found it does APPEAR a clinical study was done that observed a large percentage of CFS people having this parasite ( the "controls" ) did not have it at all . I would like to find out more about this and if anyone else knows more info, it could possibly help us all here . [ Thank you SWEET Sparkle !]
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
PS Maybe babesia is lungworm ? Just a thought - I am brainstorming as the symptoms would be very alike .
One thing we do know is that it seems most babesia treatments do not work any better than most ABX for a LARGE percentage . If we are targeting the wrong pathogen , then a med would not be effective if we swallowed a million pills .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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posted
Wobenzyme, nattokinase and lumbrokinase and even bromelain are not really used for biofilm.
Many people confuse biofilm with hypercoagulation.
All of the supplements listed above with the possible exception of bromelain are used for hypercoagulation. And if you have excess fibrinogen and hypercoagulation issues then these supplements can be lifesavers as far as reducing symptoms.
But if you start at too high a dose you could end up in the ER as hubby did years ago when trying wobenzyme. I have told this story here several times before.
Hubby was treating with herbs only with a chiropractor who has written a couple of lyme books and is located in Kansas City. He was advised to take 11 wobenzyme 2 times per day.
After 1 or 2 days he ended up in the hospital with what was most likely encephalitis -- he was unconscious for 15 hours one day and having seizure-like spells and mental confusion. His spinal tap showed elevated protein. IGeneX test results came back while he was in the hospital showing a positive PCR for lyme.
This was the first treatment hubby had for his tickborne illness -- had been sick about a year and a half and had had no antibiotics at that point.
Back then we knew next to nothing about lyme and tickborne illnesses and let a few docs talk us into taking meds and supplements and doing other treatments that we should not have agreed to at that time. Hubby has learned the hard way to question everything and start low and slow and try to make only one change at a time.
You can do the expensive test from HEMEX -- the ISAC panel -- Immune System Activation of Clotting -- or just try some of these supplements.
But before saying they do not work -- you need to get to a therapeutic dose. Hubby used to take 1 lumbrokinase capsule 3 or 4 times per day -- found it was more effective to take 2 capsules 2 or 3 times per day.
By taking wobenzyme and lumbrokinase hubby does not need to use heparin even when on IV meds.
As for biofilm -- EDTA is one possible supplement. But that is hard to fit in especially if you are taking mineral supplements.
This is not medical advice, just my opinion based on hubby's experiences.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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