posted
Well, it looks like it will be months before I can see a llmd in my area. I'm seeing my regular doctor on Monday. I've been seeing her for 15 years and we have a good relationship. I believe she will order testing for me if I ask her to..that way my bloodwork will be done when I go to see the naturopath that my friends are recommending. So, help me out. I know the lab to use is igenx in California. What tests should I ask for? My history is that I had Lyme in the early 90's. I removed the tick, had the rash, 30 days of dicloxicillin. Since than I've had body aches, diagnosis of FMS. Persistant, severe pain in all muscles for over 20 years, knee problems, fuzzy thinking, and so on. Thanks for any advice.
Posts: 4 | From New England | Registered: Jul 2012
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posted
I asked my reg doc for a lyme test...she could only do the cheap version..came out negative..twice!
She said her hands were tied and she couldnt give the decent test....she got upset...on the verge of tears actually....frustrating.
So..your lucky your doc can do that for you....but it may be because you have a history of Lyme.
Posts: 27 | From MN | Registered: Mar 2011
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posted
I thought IgeneX was over a thousand dollars? ..at least from the folks I talked to.
Not an HMO..just the clinics Alina protocol I guess. She needed decent proof the expensive test was necessary.
Posts: 27 | From MN | Registered: Mar 2011
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posted
I haven't seen the naturopath so I don't know if she can prescribe antibiotics or not.
Posts: 4 | From New England | Registered: Jul 2012
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I say you don't need any lyme test right now. You were bitten, got the rash, got diagnosed and received incomplete treatment.
THE RASH IS THE BEST TEST RESULT. If still ill, the infection was not adequately treated. Or, there could also be other infections.
So, I'd save money and not do a lyme test - as it's very clear that's still in the picture and a good LLMD will assess your history and symtoms - and consider the clinical diagnostics.
THEN, they can determine if you need another lyme test.
You are unlikely to get proper treatment with your GP, anyway, so spending hundreds of dollars to prove anything to them now can set you back in terms of getting a LLMD or LL ND's advice.
However, you might want to test for coinfections. Still, which ones might be best determined after seeing a LL doctor.
Right now, though, I would put the money toward finding a good LL doctor. Some LL NDs do prescribe antibiotics.
If you see a ND be absolutely certain they are ILADS-educated. Not all are and it matters greatly that they are lyme literate. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Infect Drug Resist. 2011;4:97-113. Epub 2011 May 3.
Evaluation of in-vitro antibiotic susceptibility of different morphological forms of Borrelia burgdorferi.
Excerpt:
. . . Conclusion
Antibiotics have varying effects on the different morphological forms of B. burgdorferi.
Persistence of viable organisms in round body forms and biofilm-like colonies may explain treatment failure and persistent symptoms following antibiotic therapy of Lyme disease. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL (lyme literate) doctor who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present.
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Integrative / Holistic M.D., etc. (Be aware that those in this category can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first.)
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links,
BODY WORK links with safety tailored to lyme patients,
LOW HEAT INFRARED SAUNA detail,
BIONIC 880 (& PE-1) links, and
RIFE links. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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