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» LymeNet Flash » Questions and Discussion » Medical Questions » Intestinal Issues But Gluten Free Doesn't Help-I'm Lost (Page 2)

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Author Topic: Intestinal Issues But Gluten Free Doesn't Help-I'm Lost
Lymetoo
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Lauren.. thanks for the info. The Cayenne scares me! It didn't hurt your stomach? And apple cider vinegar.... eek.

I have some and bought it for the bone broth. Last time I tried the ACV it was hard on my stomach. Maybe I need to dilute it more like you did.

Talktel.. no, you won't get the runs. Sometimes the opposite happens! My stomach can't handle the parasite treatment right now either. Tried it years ago. So-so results.

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--Lymetutu--
Opinions, not medical advice!

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lymielauren28
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TuTu, the cayenne scared me too, but the more I read about it the more courage I got - I finally just bit the bullet and did it. I take the pills from solaray, and taking it in pill form does not burn or tear up my stomach. Read about the amazing benefits of cayenne - helps everything from ulcers to hemroids to cancer.

The ACV does burn a little going down and for a minute or two once it hits the belly, but it dissipates pretty quickly. If its too much for your stomach try mixing it with a little bit of honey - that's what the guy at the health food store told me.

--------------------
"The only way out is through"

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beaches
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Jess, Please ask your LLMD about the TPN. You need nutrition/fat/carbs/protein/calories ASAP and IMO this might be the best and fastest way to accomplish this.
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chastain
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Beaches-thanks for the suggestion but I DREAD the idea of TPN. I am doing everything to try to avoid it. I have really bad associations with TPN as I had a family member (by marriage only but she was like blood to me) die of ALS when I was a teen and she was on a feeding tube and IDK...I just have awful associations with a tube.

I am doing all I can to avoid the tube. I will of course do it if I keep losing weight and/or cannot gain weight, but it is my ultimate fear. I see it as a sign of terrible illness and it would make me feel so hopeless to be on a tube. Jess.

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beaches
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will send you a PM
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GiGi
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Chastain, A friend in a very similar spot like you was encouraged by Dr. K. to get an ultrasound of the gallbladder. Yes, she found she has many many tiny gallstones. She is now preparing for treatment - non-surgically.

I did not read all of the above comments and possibly someone mentioned this already.

Oh, she also tests positive (energetically) for parasites, but is addressing the stones first.

Parasite treatment requires a lot of energy on the body's part and it also is leaving the clean-up for heavy metals that were held by the parasite. The people who ignore this part of the parasite killing will undoubtedly face the toxic metals somewhere along the lines, possibly in a much more difficult body compartment.

Don't feel bad, Gael, I know people are joking about my toxic metal/dental alerts. But I know what I am talking about all too well. I am very close to the source where this information comes from, and I also lived it all. We learn more and more, as more and more people go through the various facets of microbial infections. See my Babuschka Principle post below.

The toxins and bugs all live together - http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/101357?

Best wishes, Chastain.

Take care.

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Cass A
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Dear Friends,

I have been very, very interested in the data provided in this thread!

Recently, I was looking at some "gluten-free" foods in the grocery store, and they were full of ingredients that are probably genetically engineered, and include the gene that causes a stomach-destroying toxin, Bt. It wouldn't surprise me a bit that someone on a "gluten-free" diet would continue to have serious problems!

Many of the solutions proposed on this thread avoid genetically modified organisms entirely, without even mentioning them.

I spent about an hour watching the movie, Genetic Roulette, and it was truly worth it! It moves right along, and gives things a person can do. The movie is free to watch online at this time.

And, the site Institute for Responsible Technology has a downloadable shopping guide to help with buying foods that don't contain GMOs.

This may well be an undercut for dealing with Lyme and co-infections. In fact, in the movie, many patients with chronic illnesses and their doctors state that going non-GMO was a very important first step in getting well.

Hope this helps!

Best,

Cass A

PS--this is not to make less of toxins, heavy metals, or parasites OR the bacteria themselves.

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Lymetoo
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Agreed, Cass!

here is a great GF bread that is safe:

http://canyonbakehouse.com/bakery-products/10/7-Grain.html#ingredients

--------------------
--Lymetutu--
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Messa
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Is Udis safe?
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Lymetoo
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Google it. It may not be organic. Check for GMO's.

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--Lymetutu--
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Lymetoo
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Chastain, are you currently working to get some bone broth into your diet??

--------------------
--Lymetutu--
Opinions, not medical advice!

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chastain
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Hi, yes I made some yesterday as a matter of fact. I am hoping it helps. Jess.
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Lymetoo
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YEA!! Cook it as long as you have time for! I think it's already helping me. Drink some each day. You can freeze it if you have to.

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--Lymetutu--
Opinions, not medical advice!

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chastain
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Thanks so much....I drank some a little while ago. I am glad you think it might be helping you...let's hope it works for both of us [Smile] . Jess.
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Ellen101
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quote:
Originally posted by chastain:
keebler, I appreciate the suggestions so much. I disagree with your take on Ensure, but I respect your reasoning behind it. My llmd is there for me and we collaborate on my treatment plans but to be honest-I think we are all obligated to try to figure as much of this out on our own as possible. I don't trust any doctor fully, not even my llmd. I feel a need to verify and to try to come to conclusions through my own questioning and research. I have lost blind faith in all doctors, llmds included.

Thanks again for the suggestions though. I think I will try a week without gluten restrictions to see what happens. I have been biopsied for celiac as well as blood tested and so far absolutely no evidence of it. There is no doubt that I have been gluten free lately especially as I have only consumed apples, eggs, cheese, quinoa pasta and chicken and kale in the past several weeks. Jess.

Looking at what you have consumed in the past few weeks there is no way you will gain weight eating just that . I would forget about worrying about gluten and just eat whatever you want. What is paramount here is putting on weight. Sticking with what you were eating you will lose even more.
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chastain
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Ellen, I could not agree with you more. Thanks. Jess.
Posts: 651 | From ct | Registered: Sep 2011  |  IP: Logged | Report this post to a Moderator
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