posted
The discs on my emem5 have turned black. Is this normal? They used to be white.
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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D Bergy
Frequent Contributor (1K+ posts)
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posted
It should not make any difference.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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I do seem to be seeing some very slight improvements.
Just seems to be going so slowly.
Wonder if I should get a stronger machine. One that does higher frequencies.
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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D Bergy
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posted
What frequencies are you using?
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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D Bergy
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posted
I would use less frequencies myself.
For Lyme I used 2016 and 612 Hz. Maybe throw 432 Hz in there once in a while. 2016 Hz is the single best frequency I ever used.
For Bart I would run 832 Hz and maybe 357 Hz.
I would work up to twenty minutes per frequency, over time, for Lyme and Bart.
Babesia I would continue to use all the CAFL frequencies, because I have not identified specific frequencies that work better than others.
I do not have any experience with the others.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
How long should I use them once I reach 20 minutes?
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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D Bergy
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posted
I would run them once or twice a week or whatever is tolerable.
At some point, you will hit a plateau, but you should be substantially better by then.
At that time, you may need a more powerful machine, but I don't think you are at that point yet.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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By herx i mean varying degrees of pain, sometimes old areas where I' ve had pain before and some new areas. My spasticity gets real bad, my legs will stick straight out and sometimes my whole body will become ridged causing me to almost slide out of my wheelchair. This last for about a week.
I have seen very small improvements.
Better balance, slightly more strength in legs, less air hunger, less brain fog, but I hoped that after 8 months I would see more.
Linda
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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D Bergy
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posted
I would do all you can to reduce inflammation and to detox.
It sounds like you have a very large burdon of bacteria, and it will take a lot to get it under control. There is the long slow road to begin with. It seems like you are not progressing but just holding your own. Then one day you start progressing faster. I do not know why it works that way, but it often does. I think at some point the immune system gets the upper hand and speeds progress.
Since you have been diagnosed with MS also, you might have other pathogens to deal with. It may actually be Lyme. They are often misdiagnosed one for the other.
I cannot predict the speed of your progress, but if you have seen progress, then I would continue as it is working albeit slowly.
Low Dose Naltrexone may be a good option for you since you may have MS and a boost to your immune system will help either way.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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D Bergy
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posted
I hope you take a lot of Magnesium. That is a must for Lyme.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
I have been on LDN several times. It does nothing for me.
I do not take any magnesium. What amount should I take and what does it do?
I must have a huge load of bacteria. I have been sick since I was 17. 44 years. So I guess if its slow I should be glad it is doing something. Just wonder if a more powerful machine like the GB4000.
Linda
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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D Bergy
Frequent Contributor (1K+ posts)
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posted
Magnesium is used by most every cell in your body and even most healthy people are deficient.
Lyme is unique in that it feeds on Magnesium instead of Iron like most bacterium. This makes anyone with Lyme automatically deficient.
I do not have Lyme, but I still take Magnesium every day. Magnesium Citrate is one of the better forms of Magnesium.
If you have never supplemented Mg you may feel better just by doing so now. You certainly have to be severely deficient.
The GB-4000 and MOPA would be much more powerful, but your response to the EMEM is severe enough to tell me you do not need more power at this time.
When you can run the EMEM and it does not cause you much of a reaction, then you might consider a more powerful machine.
I am surprised LDN had no effect. I can only speculate that your immune system is too suppressed from the bacterial load to respond.
I think you can get much better, but it will be slow.
For sure get the Magnesium. I can't believe you can even function at all given how long you have had Lyme and not supplementing with Mg.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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I started taking liquid minerals that have daily amount of 250 mg of magnesium.
Is this enough? I read somewhere that magnesium can be a laxative so I don't want to overdue it.
Linda
-------------------- diagnosed with MS, 1988-Diagnosed with Lyme Disease 2009. Also babesia and bartonella. Currently not on antibiotics. Taking Metalloclear for high lead and mercury since October 2012. Rifing since June 2012 Posts: 148 | From usa NH | Registered: Mar 2009
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The RIGHT KIND of magnesium will not act as a laxative, in the right formula, the right balance.
Work up to bowel tolerance and then just back down a bit. Always in divided doses, 3 x day, never all at once. And:
Magnesium: Meet the Most Powerful Relaxation Mineral Available - by Dr Mark Hyman
A DEFICIENCY IN THIS CRITICAL nutrient makes you twice as likely to die as other people, . . .
Search: magnesium L-threonate -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- From CarolinPA's past posts: ---------------------------
There are some good brand of liquid magnesium. Cardiovascular Research (brown glass bottle) is one.
If you buy liquid (anything) it's best in GLASS rather than plastic.
Magnesium citrate (as in NaturalCalm power you put in water) is best 3 x a day.
Some like magnesium glycinate better. Citrate and Glycinate have slightly different effects so if one causes too loose bowels, switch to the other form.
Never take the full day's dose of magnesium at one time as that can stress the kidneys. It should always be taken 2 - 3 times a day and,
yes, on a daily basis. Magnesium helps the liver, helps nerve fibers . . . and so much more. It's one of the best support supplements for lyme treatment.
You would take it to bowel tolerance, some take about 200 mg 3 x a day -- but many do better with up to 1,000 mg - or even 2,000 mg a day (especially those with neurological issues).
Take up to the point of loose bowels and then back down a bit.
Calcium and other minerals need to be in balance, too. Hopefully, your LLMD has advice on brands.
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