Maya12
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And does anyone know if treating the parasites will get rid of the dp and dr and dark obsessive thoughts?
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dbpei
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This is a great thread! Like CD57, I would like to read everybody's history and symptoms and how the parasite treatment has been helping them.
I started Hanna Kroeger Wormwood combo a few weeks ago, but it made me very constipated, despite drinking tons of fluids and eating a lot of extra fiber. So I stopped.
I have just started cholysteramine (I think it is helping!) so don't want to treat parasites just yet - but I definitely plan on it.
I am so happy for those of you who are being helped by this treatment. I have a theory on this. I wonder if when we take all those heavy duty ABX, and lose all the good bacteria, we can no longer fight off the parasites like we did in the old days.
And so they start multiplying and before you know it, they are very comfortable in our bodies and feeding off the bacteria that we are trying to get rid of. Just a thought.
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CD57
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DBpei yes I have thought that as well as I initially did well on abx, then plateaued and backslid. I know my immune system was workimg going into this b/c I had a classic, organized herx with subsequent improvement, rather than the disorganized muddy picture it is now.
Can you post your treatment and diagnostic history?
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nefferdun
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Does protomyxzoa count as a parasite since it responds to ivermectin? If so that is my last infection and as it is incurable, my life long infection.
I do not know if I had any other "worms" because I never saw any but I do know when I worm my horses they do not show evidence of worms either so maybe they are dissolved before being expelled.
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MichaelTampa
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I would certainly put it in the parasite category.
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Maya12
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Hey cd you explained me to a t , at first I was responding to the abx , had a few good times and then went downhill and no abx were helping but I was worse than before starting treatment but am really wondering about the immune system theory that dbpei mentioned
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CD57
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How interesting....I wonder if that explains Gael and Tammy also....I think I remember them saying they were on abx and herbs and IVIG for a long time to no avail....
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MannaMe
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For those who want to rife for parasites - what would be good frequencies to start with?
My husband would like to try rifing parasites first, because his digestive system is sensitive to taking alot of "stuff".
He's been treating lyme & babesia for 1 1/2 years with a little improvement. Hearing your parasite treating stories makes us think it would be worth a try!
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Maya12
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for those with the deep dark thoughts and anxiety, ocd are the thoughts and anxiety constant but get much worse with treatment?
do they bother you on a daily basis?
i just worry that i am nutts because i always fight the deep dark thoughts and anxiety and ocd , just in varying levels
mine plague me most of the time but do back off or cause less anxiety when i back off anti-parasitics and get much worse on them.
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CD57
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Maya, you remind me of myself. Yes it's truly terrible, I spent a lot of time like that. YOU ARE NOT NUTS. The thing that I fell back on which helped me to feel better was reminding myself that the thoughts have NOTHING to do with ME. After awhile a thought would show up and rather than reacting to it, which made my adrenals shoot through the roof and pump adrenaline which turned on my CNS.....I would say, oh yeah, there you are, and then watch the thought go by. Same concept they teach in mediation.
Its much easier if you can detach from those thoughts and not hold them as truth. Have you ever heard of F.E.A.R: false evidence appearing real?
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lax mom
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quote:Originally posted by CD57: Would you believe I have this 24/7 with brief windows of not?
I believe it. I have lived it and it is the scariest **** I have ever been through in my life. I had it for at least 4 years straight. I seriously thought they were gonna lock me up and throw away the key because I thought I was going crazy.
The fact that you have brief windows of not having it means it is not permanent.
I never had brief windows of clarity, I constantly had it. I finally got to the point where I didn't let it scare me anymore. I would go about my day regardless of how weird I felt.
I can't really say what made it go away during treatment.
I just know that after the fact, I thought about it and realized it wasn't happening anymore. I'm still scared it could come back. Once you have experienced that (what I will call) horror, I think you're always fearful of it returning.
Also, no one knows what the heck you are talking about when you try to explain it, unless they've experienced it.
It doesn't mean you are on your way to becoming crazy, which I believed at the time, it just means your nervous system is overloaded and inflamed.
You nervous system can be calmed down and regulated once these bugs and toxins are taken care of.
CD57: I think I remember you said you did nebulized Glutathione before. Is that right?
I find that it really helps my thinking and brain to feel clearer because there is no blood/brain barrier in the nose. (I breathe it into my nose the entire time and just skip the mouth part).
Maya12
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Hey cd57 thanks for the reply
To be honest the fear isn't as bad when I am not treating but def flares more when I treat more
Has this gotten better for you over time with treatment?
I am trying very hard to let the thoughts go by but I wish they would stop all together
I have only been treating though for about 7 to 8 months
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lax mom
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Maya: Ok, I am going to be completely honest with you because I feel like it might help others.
There was one point where the anxiety and scary thoughts were so terrifying, that I had scary thoughts like "what if I flipped out and killed myself with that knife on the counter?"...I knew I would never do it, but having those thoughts freaked me out. I even had my mother come to my house and remove all the knives "just in case".
Needless to say, I've had my knives back for a long time now. Thise scary thoughts are just thoughts. The fact that they upset you means that you are NOT going crazy. Truly crazy people find those thoughts comforting.
Also, truly crazy people don't know they are crazy.
Your nervous system/brain is inflamed right now. That makes you feel terrible. I recommend getting something for anxiety in the meantime...no need to suffer while you wait for the long-term treatment to work. That healing will come...but it takes time and you don't have to be miserable in the meantime.
I have been on Klonopin since March. Of course, it's not ideal...but Gaba wasn't cutting it and each day was anxious torture added onto the torture of this disease and treatment. I just switched to Lyrica since I have face pain (it also calms my nervous system down).
15 ticks (including the one that bit me in 2004 and gave me lyme) I got from normal walks/hikes/etc.
The 200 ticks that bit me this September came from a walk I took on an already terrible day. I just wanted to be somewhere pretty in nature and de-stress.
And I was stupid, and there was high grass, which I walked through at one point and I did expect to see a tick or two, but when I looked down my jeans were red.
I had THOUSANDS of lone star ticks on me.
I ran back to my car and had to take my clothes off in front of an entire soccer team who had showed up while I was on my walk- including my shoes and leave them on the ground.
I know 200 were IN me because we kept count. By the time I got home I still had about 500 on me but only 200 were in my skin.
It took my husband 3 hours to pull them off. I had to get steroid shot and steroid pills and took 20 days of doxy.
I also had to have my vehicle professionally fumigated before I could drive it again.
I took photos of the bites later- not the ticks because I was hysterical- and I looked like I had hives all over my body.
Apparently this is called a "tick bomb". It is rare. And I am unlucky. It is still so upsetting to think about.
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lax mom
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I don't know if I had posted a treatment history:
2006-complete exhaustion, sensitive to light/sound, twitchy eyes, slowly became unable to work
-Drs told me I was Depressed and Anxious-tried every anti-depressant imaginable, couldn't tolerate most of them. Had so much therapy, I could teach a college course on it. Nothing helped.
2007/08-trigeminal neuralgia-treated with multiple rounds of antibiotics, ironically this made me well enough to work in 2008.
8/08-bit by something on my honeymoon (spider, tick, or something) had huge rash-ish thing that wouldn't heal.
Almost immediately I went downhill and could no longer work due to sound/twitchiness/exhaustion.
I was still told I just had Depression and Anxiety.
10/09 my son was born. He had autism traits.
3/11 started having fevers/extreme fatigue for no reason and sensitivity to light and sound and balance problems.
-I was diagnosed with Sensory processing disorder at 36 yrs old! I even started OT and Vision therapy because I wanted to get my life back.
6/11 ID Dr treatd me for Ehrlichia w/ 2 wks Doxy.
Felt great for 2 months. Felt better than I had my entire life. I even felt I no longer needed my therapist and psychiatrist...the "anxiety and depression" were gone. I never knew Doxy was an anti-depressant
9/11 had a flu shot...then slowly fevers/exhaustion returned. This time I started having brain fog and weird headaches. One night the brain fog was so thick, my little son was talking to me and I could not figure out how to say a word.
Early winter 2011-started seeing an LLMD. I kept getting sicker and sicker. I thought it was the LLMD's fault. (was on oral abx and many supplements)
Took son to see LLMD as a shot in the dark. He was IgG positive for Lyme. Within 1 month of tx he was speaking conversationally and making eye contact.
Then took husband to see if his "auto-immune" issues were related. He was IgG and IgM positive for Lyme and bunches of other infections due to prednisone and cellcept use. In fact during his first 3 months of treatment, he was weaning off of the immunosuppressants.
Spring 2012-My husband and I went to the best of the best. My husband was on orals and then IV. He kept making amazing progress.
However, from Spring-Nov 2012 I kept getting worse and worse the more things they would add. (was on many, many oral abx and Bicillin LA, Glutathione IV and suppositories, B12 injections, and on and on).
11/12-hospitalized with sepsis. Immune system now shot. I now have recurrent UTI's.
Started seeing a Dr K trained ART practitioner who diagnosed parasites, viruses, mold, Lyme, Ehrlichia, Babesia.
When I did a 2 day round of Biltricide, I passed liver flukes and felt pretty good those days.
Did 14 day round of pyrantel-wiped me out.
I am now beginning my second round of pyrantel pamoate, started Valtrex and Lyrica.
I cannot detox at all.
I am grateful for Gael, Catgirl, Tammy N and the others who kept screaming "treat parasites!"
lax mom
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Maya: I can remember being wiped out for no reason in high school. Just a normal school day would wipe me out. So, I bet I had something back then...I'm 38 now.
When I was a kid, I played with our animals like pets. One time I had ringworm looking things all over my body from the cows.
posted
CD57, what does cholystramine do for lyme.? When I looked it up its given for cholesterol. I am assuming its given for detox in Lyme is that right?
laxmom where do you get nebulized glutathione? Does this work better than oral? I take oral but only notice effectiveness during a flare if a take multiple tablets. Do you find it helps wit herxes? Thanks
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dbpei
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Yes, BBinme. I have a hard time detoxing, so the cholestyramine is used as a binder to help get rid of the toxins that have been recirculating in my body. I tested high in a marker that indicates my body was not detoxing well(TGF Beta 1).
Some of your stories are incredible. I can't imagine having that many tick bites. So frightening.
I think that I have been infected since summer 2006, but it could be earlier. I had a mysterious summer flu followed by intermittent low grade fevers. I actually tested positive with ELISA but negative with WB that summer following my flu.
Developed migrating joint pain and more sleep problems, but never thought about lyme. I was out in the gardens a lot and had 4 cats. Lots of exposures to ticks and a few untreated tick bites through the years.
I suddenly lost most of my hearing in one ear in early 2011. MRI of brain showed a lesion but I tested negative for lyme with WB - so they ruled out. After hearing loss, the doc put me on prednisone and I started to have these buzzing/electrical sensations (internal tremors) in my head and extremities. Horrible tinnitus, vestibular damage and sound sensitivity followed the hearing loss.
Then I had crazy mood swings, anxiety, and depression. Fatigue set in and then I developed strange bug crawling sensations and odd head aches. It took me almost a year to discover that all of this was caused by Lyme disease.
The ABX never made me feel better. Only worse. My hearing improved slightly until I took zithromax and went totally deaf in bad ear when exposed to loud music at my daughter's wedding. Other sensations never improved while on ABX.
After 1 year of ABX, I went off and instead started herbs. Immune system is now starting to work again since off ABX and using herbs.
I now take Samento and Banderol and am chelating heavy metals with chlorella and cilantro. Taking many nutritional supplements as well. And just started the cholestyramine (CSM).
CSM has quieted my tinnitus quite a bit! I never would have expected this. I hope it continues. I still am afraid that parasites might be in the picture for me and will treat soon.
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CD57
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BB in me, CSM is a binder....binds up neurotoxins from Lyme and mold. A lot of stuff you killed may not have been able to get out and this may help (I have not done it myself).
LAXmom, thanks for posting your story. And quite a story it is! Did the famous LLMD have a theory why you were getting worse and worse or no? How interesting that your husband was just making gains....it seems like the men have an easier time.
I have a question: when you say getting sicker and sicker...does that mean you would herx and not get better, or just no reaction at all? I am SO GLAD the the DP cleared up for you. If I could get rid of that, I could handle all this other crap. I know it's CNS inflammation but since I don't seem to be killing bugs with my treatment I despair of it ever going away. So something in your Lyme and co treatment made it go away...wonder what that was. I will re-introduce nebulized glut. I didn't know that about the blood brain barrier and the nose! Really?
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lax mom
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BBinme: I noticed absolutely nothing from oral liposomal Glutathione. Then I had IV Glut...it was much, much better.
When I no longer had home health, my LLNP RX'd nebuilized Glut. I get better results than from IV. I get it from Infuserve.
I just read through many of these posts and felt so many things. Really helped me to understand what my son has been going through.
The scary thoughts thing was huge for him for a long time.
I also totally believe that the pathogens(parasites and bacteria) in him control his mind. In fact we often talk about the fact that they are tricking him as he has moments when he is resistant to treatment.
In fact the worse he feels the harder it is to get him to do treatment. I say sweetie they're fooling you, they have taken over, come on you have to treat, and he fights back and does the treatment he needs. He even talks to them and tells them to get lost!
As for parasites specifically we started herbals in November and it causes really bad symptoms, neuro to the point where he would pass out regularly and had uncontrollable anxiety.
Now we are only doing diatomaceous earth, which has been helping hisstomach feel better. I also rub clove oil on his feet.
He's been feeling pretty well lately so I'm been putting off adding back in the herbals, but I know it needs to happen soon.
To share he does photon therapy for the lyme, with EAV testing, muscle testing and supplements.
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Maya12
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So I guess it is very common then to have obsessive dark thoughts that cause anxiety, the only thing that sucks is that I have had them basically constantly for 2.5 years
Did you guys also obsess about your symptoms like how the dp and dr make you feel etc?
I just wish I could turn my brain off some days
How many still have te anxious thoughts now and for how long have you had them
I will find it very interesting if these go away with parasite tx
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surprise
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I did a 3 day fast in my 20's, and passed a whole large tapeworm. Freaked and didn't think about it again for years.
Before testing positive for Lyme/ Bartonella, I had just completed a full course of Humaworm. Now in my 40's.
Been on high dose antibiotics for 18 months now, have treated with RX parasite meds throughout- Albendazole, Alinia, Ivermectin, PinX, lots of Tindamax, cloves-herb tinctures.
all with continued release. I definitely watch out full moon times. Positive low protomyxzoa, although no babesia, and I am hopeful protomyxzoa can be eliminated- 1 Dr. is retesting and finding it gone.
Tapered down to almost off antibiotics, and am now on salt/C, and just starting ACS 200 silver spray.
I don't regret all the antibiotics for a second. Glad I did them, and it was hard. Treatment is hard. Chronic case here, had no clue.
But ready to get off the drugs. May mix in BW A-P herbal for parasite near future.
Hoping for the best here.
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Maya12
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Basically I just want to know if it is normal to have daily And sometimes constant obsessive thoughts with this disease. Because for me knowing his is normal helps me to rationalize having it
It is also reassuring to know others experience this and have gotten it to I away
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lax mom
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quote:Originally posted by Maya12: Did you guys also obsess about your symptoms like how the dp and dr make you feel etc?
Absolutely! The focusing on the symptoms was like a vicious cycle. I would have the symptoms, freak out about them, wonder what they meant, then that would worsen the symptoms.
I truly felt like I was crazy...but I wasn't and you aren't.
It was kind of like the story of chasing the Woozles tracks in Winnie the Pooh.
You are not coming on here posting about purple unicorns with green wings biting you and giving you a disease.
Your posts are very coherent...with a lot of anxiety...which is absolutely to be expected with all that your brain is dealing with.
posted
Wow. I have a lot of these anxiety/brain issues.
I take L-theanine, 5-htp, L-taurine and magnesium for the anxiety.
I don't know if I have parasites but I am starting to treat with parasite herbs to see if I get results.
I too have issues with knives (bizzare!). I don't understand it, but I will have a brief flashing moment of fear about cutting someone. It is certainly NOT the motivation to use the knife, but a fear of the idea of the knife.
Anyway, I also get all of that derealization/depersonalization stuff. They happen in spells, and I used to shrug it off because the spells were short and infrequent.
These days the spells are longer and more disturbing. Sometimes it feels as though I have little bits of MS, Alzheimer's and ALS.
I hope treating for parasites can help some of these symptoms.
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Catgirl
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-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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CD57
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DBPEI said " I tested high in a marker that indicates my body was not detoxing well(TGF Beta 1)."
DBPei, have not heard of this being a marker for poor detox. Can you explain the connection by chance?
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Lymedin2010
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My 7 year old daughter has been very emotional since around the time she has been bitten (3 years of age). She would cry everyday, multiple times a day, & for what would appear as very little at the time.
She has had symptoms come back, while on treatment recently. Within the past two weeks she had two unbelievable rage/anger episodes. Uncontrollable crying, emotions, and anger.
I am a normally a free spirit and very easy going. I could not explain the sudden onset of anxiety. It would come out of nowhere & I would think to myself THIS IS NOT ME! I would not know what to do.
When I had gotten ill I heard from my neighbor, who at the time was recently bit. She mentioned that she had bouts of anxiety while getting sick. It hit me like a ton of ticks! I finally had explanations for my anxiety & my succeeding episodes of rage.
I remember reading about people with depersonalization symptoms & always felt sorry for them. I got to experience that too for only one day.
With all the disturbances, tremors, twitches, ticks & the feeling like maggots are moving within me at times, I know I have parasites as well.
Somehow they are very closely linked to our bodies, chemistry and hormones. If I get angered or upset, I stir them up. If I get tired and sleepy it appears I lullaby them to sleep and they are less active (less tremors/twitches/and migratory movement).
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dbpei
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CD57, I wish I could tell you more about that marker (TGF Beta 1). It is a cytokine and linked with inflammation and cancer (scary).
Catgirl, that was quite the link. Also scary.
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lax mom
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Catgirl: thanks for the link. It makes sense.
My body is full of toxins, I genetically cannot detox...and I'm full of anxiety.
That's why years of therapy and anti-depressants didn't work for me...but Glutathione does.
Lymed in 2010: I know what you mean when you say "THIS IS NOT ME!".
dbpei
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lax mom, have you tried cholestyramine? It seems to be helping me with detox issues. Forgive me if you have commented on this and I missed it.
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lax mom
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dpei: At the very beginning of treatment, I tried it for only a few days...I couldn't tolerate the flare that accompanied it.
glm1111
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*****FRIENDLY REMINDER*****
This thread was set up to discuss the different PARASITES, and how to get rid of them.
The toxins, yeast, mold, mercury etc are all part of the Babushka Principal GiGi has posted about.
These are what the parasites carry in their coats and release when dying along with their eggs and larva. Many of us have these serious, life threatening invaders that are causing havoc in our lives.
Discussing the symptomalgy as a main focus, (although needed at times) is not solving the problem. Unfortunately, I don't know how to copy and paste, but a lot of you do.
I would appreciate it if you could post some links about these invaders, their life cycles and protocols to get rid of them. Also your experiences getting rid of them and how you do it.
Otherwise, this thread will just be like all of the other threads on the main board. I hope this is taken in the positive, helpful light that it is meant to be.
I just know first hand how serious this infection is and want to see everyone get on top of it and get well. Thank You and on to health.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Maya12
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Hey guys I just passed what definatly looked like another 4 inch piece of dead worm
There is no way this could be mucus or even food , no way , it is definatly a dead piece of worm
It's funny because I have been on the humaworm for about 2 weeks and decided yesterday to take a dose of salt c instead of my second dose of humaworm and lo and behold there was a big worm piece this morning
Hey lax mom have you seen anything yet?
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posted
Anyone try mimosa pudica? I read about it from one of Dr K's protocol but am scared to start. Got it from bio pure
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lax mom
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Gael: Thanks for keeping us on track
It is VERY easy to get caught up in the symptoms because they are so horrific...so on to the way to end those symptoms:
My protocol (based on long distance ART testing with a Dr K trained practitioner):
Pyrantel pamoate at night for 14 days, repeat in 3 weeks.
Biltricide for 2 days, repeat in 6 weeks.
Mila as a binder.
Lipo-Health for biofilms, gentle heavy metal removal.
Nebulized Glutathione for detox.
Maya: nothing yet...I just had lots of energy yesterday and last night. I don't know what it's from.
jlcd1: I haven't tried mimosa pudica, but then again, I'm new-ish to treating all of this.
glm1111
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lax mom
Thanks for the support and understanding. Empowering ouselves in this battle is so important in getting rid of these invaders.
The message I kept getting early on when I kept getting distracted was "Keep It Simple And Stay Focused" On getting rid of these parasites.
As Dr. K. has mentioned, they will try and distract us from killing them. They are MASTERS at survival!! Let's give them a run for their money!!!
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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glm1111
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Pictures of some of the parasites we may be fighting. Viewing this and reading about their life cycle many times has always helped me stay focused. www.lymephotos.com
I must have read and studied this over twenty times, and each time I gleaned more insight as to what I was dealing with.
There are also, Lungworms, roundworms (Ascaris), Threadworms, Hookworms, Tapeworms,etc that could be in your body.
I had ALL of these pictured on lymephotos and the others I just mentioned. I saw them exit in the toilet.
They can't fight the salt because it puts them into osmotic shock (dehydrates them) like when you put salt on a slug. If you decide to do salt/c, it's best to get the e-book from lymestrategies for guidance.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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CD57
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Do the salt and herbs cross the BBB? i wonder if salt kills bacteria as well (or would we know?
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glm1111
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Mark Fett the owner of lymestrategies has stated that the salt will kill bb and the cyst form. I do believe it crosses the bbb because I have tasted the salt in my tears. Remember there is a brain/gut connection.
Whatever I take whether it's salt/c or herbs, it usually affects my brain fog, moods etc. I really think it's more about the brain/gut than the bbb. Just my 2 cents.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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Maya12
Frequent Contributor (1K+ posts)
Member # 36392
posted
Hi guys this is my protocol , currently on humaworm and adding a bit of salt c for the next few months (2)
Then I start albendazole and pulse this , I think for 5 days at a time
On the days off the albendazole I take ivermectin
I will also be taking bactrim ds , followed by doxy
I think during this treatment I will also be taking interphase plus and digestive enzymes
I don't know the entire protocol yet as I am not to start it for 2 more months and don't have all the details yet , but this is the basic protocol given to me by my llmd
Posts: 1632 | From Canada | Registered: Feb 2012
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Maya12
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Oh and I am also currently taking bentonite clay , chia seeds and warm water enemas to detox
Posts: 1632 | From Canada | Registered: Feb 2012
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CD57
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Member # 11749
posted
great Maya. I am currently on A-P and just added low dose salt and C (1/4 tsp) and will work up. Also LDN and once/week high dose Ivermectin) something like week 19.
Gael interesting. It must have to do w the gut/brain connection like you say.....I wonder if salt can kill bart if itt can kill Bb?
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Maya12
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posted
Funny enough cd57 I took some salt c last night and today I have a Bart like streaked rash on my hip
Posts: 1632 | From Canada | Registered: Feb 2012
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