glm1111
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CD57,
I am pretty sure the reason you did not respond to the tx you mentioned is because you weren't taking the herbs and abx that would target your infections. lax om has a good suggestion for you to get ART tested.
I might have asked you this before (sorry if I am repeating)but can you find a Dr. K Art practioner in your area? If not, I would persist with the salt/c and add some of the herbs and enzymes mentioned.
Gael
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glm1111
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lax mom,
When I took valtrex yrs ago, it wiped me out and depressed me. Maybe consider cutting way back on the dose. I think it might be too much with the biltricide. Up to you of course. Hope you feel better.
Gael
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Tammy N.
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lax mom - have you been able to try coffee enemas yet? They make a HUGE difference in being able to tolerate and eliminate all of the die-off and toxins. Also, don't forget good binders.
CD57 - Don't lose heart. You've just begun. It doesn't sound like you are targeting the parasites yet. The salt/c is a very good start. Once you start the anti-parasitic herbs (that contain black walnut hull, wormwood, cloves, etc.) that's when I think you will begin to see results. It's smart to go slow so you don't overwhelm your body.
Those sesame seed things are telling you something. The first time I tried Humaworm, I passed tons of sesame seed things. I believe they were larve (eggs).
Stick with it. Feel better.
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lpkayak
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manna-recently a friend started reading to me about DE and it sounded really good...i also have read gigi talk about it and with her experience you know you are getting good info
i had thought i would start it soon...but now with new salt c and unrelated mobility issues i can only do one thing...it does sound the way it works that it would help with lots of things at once...
sounds like a lot of you are struggling...im very new (3 days) and going slow(2x a day) and ok...i continue to feel odd sensations that i have felt b4 and hope i am killing something bad.
if it is easy for someone to post the name of "the book" please do..esp if it is an ebook...
and anything any of you want to share about diet-good, bad, anything...please do that. i am also going thru diet changes now.
thx
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Parasite helpers (avoid)- simple sugars raw fish (liver flukes) uncooked meats (worms)
That's all I can remember for the moment.
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lpkayak
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thank you vv---ive been doing pretty good then. but can up the raw carrots tho...and not sure wher to get papaya seeds. but thx!
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lpkayak
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i cant find the e book...the real book is kinda expensive...thx
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glm1111
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CD57,
I did 4yrs of abx, incl 6mos IV Rocephin, MMS, 2yrs IVIG, alakalizing, juicing, acupuncture, colonics and more than I can remember.
I herxed like crazy, but NOTHING worked until I started salt/c and antiparasitics. I still herxed like crazy, but the difference was that I SAW results in the form of parasites exiting.
I pray that you get some results from these protocols. Persistence is key, so try and be patient a little longer.
Gael
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glm1111
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Ipkayak,
Google lymestrategies salt/c e book and it will come up. The cost is $29.95 I don't have a copy any more, or I would send it to you. I lost it when my computer crashed last year.
Gael
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MMS? What's that? Did you not even see partial improvement on other protocols?
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Tammy N.
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CD57 - My heart goes out to you. My sincere hope is that you have finally found something that will set you on the path to wellness. In my heart of hearts, I believe you will start to get results once you start adding in some herbs.
Keep us posted.
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posted
I've been having a ton of issues this week so I backed salt/C down to 1/4tsp salt and 1,000mg C a day.
My kidney pain is finally gone- not sure if it was a herx or not.
And I just got my Humaworm!! I want to be careful going forward because I've had strong reactions to just the salt/c so far-
Does anyone have a suggestion on how slow I should go on the Humaworm?
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glm1111
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daynise,
You can always do just half the dose recommended. If you want to step into it even lighter, you can open the capsules and mix it in some applesauce and just take a small amount thoughout the day. It's an individual thing. See how you feel. Keep us posted.
VV,
MMS is Miracle, Mineral Supplement better known as sodium chlorite. Not to be confused with sea salt. I did the PH Miracle program (Dr. Robert Youngs alkalizing program.
Didn't budge these fierce infections I had. The parasites were totally not fased by it.
Gael
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lax mom
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CD57: I bet if you go after parasites and heavy metals, you will feel better.
I know it's beyond frustrating to try everything and get nowhere.
Heck, I just started reading "The Healing Code". I'm just that desperate for anything that might remotely help me.
In my case, I feel like MASSIVE, unrelenting stress is hindering my progress, since it does lower immune function.
posted
Gael, thanks!
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glm1111
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Your welcome daynise.
lax mom,
MMS smelled just like bleach also. I tried to look up the ingredients of ASEA, but all they say is it's salt and water made of 16 chemically recombined salt water.
Purified water from Utah using reverse osmosis and distillation. They say it's cured salt water. Okay, let me get this straight.
It's Utah tap water with added salt and then processed. Maybe it's me, but does anyone else think there is something wrong with this picture?
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lpkayak
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well...i took a 3rd dose and nothing has happened...good or bad...so guess i can tolerate 3 doses a day...
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CD57
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LAx mom, nope Asea is different. MMS smells and tastes hideous, I herxed on it for awhile as well but the results were not long lasting. It was hideous. Gael, you tried it too and got nowhere? Wow,
Thank you guys so much. I feel like a whiny baby and rarely say much about this to anyone anymore....but after 6 yrs I'm really pretty scared that there is nothing left to try. When your very good LLMD doesn't know what to do that's even scarier. I don't really believe in "non responders" b/c it seems like there is an answer for everyone.....but I've had these infections for a LONG time so they've had a long time to get entrenched and not budge.
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CD57
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LAX mom -- I AGREE that massive, unrelenting STRESS is a huge part of the picture. Finances, family, etc.
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Tammy N.
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A few months back my ART practitioner picked up on a massive stress episode I was enduring. Usually, I don't have unrelenting stress, but I was dealing with an enormously stressfull event. I found it interesting that he picked up right away on it.
Anyway, he recommended Theanine (must be suntheanine, approx. 100-150mg). I found it to be a big help. Plus it helped promote good sleep at bedtime (but remain non-drowsy during the day).
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lpkayak
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day 4 salt c
well...i did wake in severe pain with leg and i dont think that is related to salt c. the one thing the leg problem is doing is slowing me down enough to be able to try salt c.
so i took a dose first thing on empty stomach...got a little nausea...not bad...ate light breakfast half hour later and am ok
i may have passed more stringy things...hard to tell but i can report***gross warning*** i blew my nose and i am pretty sure i saw a perfect, chubby, little white worm...about 1/4 in long. i may find my microscope later...i think i see a mouth.
so now i am ocd about blowing my nose even tho there really isnt anything there
well...we'll see what the day brings.
CD-im reading your story and feeling really bad. but please remember---even tho it is scarey when a big wig llmd says he doesnt know what to do---that is what this disease is all about. we are on the fringes of learning about it. i was there when they started ilads and have followed many of the llmds along the way. they all went off on slightly different tangents -and with good reason-they were all really smart-cared- and no one really knew what to so...so each in his(her) own way followed what they thought would get them to the answe.
now parts of the puzzle are coming together...maybe they will get their collective brains together with new info and really come up with an answer.
i guess that was off topic and maybe i should have pmed it...but it does seem the new thinking is in the direction of gaels signature
"PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*
add in biofilms and the problem may have been identifed...pray for the cure...
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CD57
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I saw what may have been a stringy thing this AM also. Not sure.
Feeling extremely fatigued esp in the AM, this has been getting worse the past month or so. Lots of headaches too. Feel hot and getting chills at night, can't get warm. Babesia?
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glm1111
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CD57,
Seeing those white stringy things are music to my ears. Your symptoms are most likely from the G.I. parasites dying.
A warm water enema would be good to do for the parasites moving down into the lower colon. Drink lots of water. Keep going and keep us posted. We're all rooting for you!
Gael
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GiGi
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I do not come here much because I do not want to even think of myself as a warrior. I feel it is the wrong attitude and I do not want to give myself the name just as I do not call myself by a Lyme-name. Being a warrior and a Lymie does not get people well because it costs energy and stress. Energy always follows the thought.
Many of us got sick and more sick because of how we think.
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lpkayak
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gael...why does it say"free download" and then charge 29.? am i at the right place?
now this is gross too..but i hope i am supposed to be happy about it. i felt a hair in my mouth...but when i got it out (i shed and have a dog so i am used to hair) but this wasnt hair. it looked a lot like some of the pics...white, stringy, maybe half inch...yuk. they are going to come out of my mouth??? i know i should be happy...but...yuk! i need to find my microscope and get into this as a sciend project like gael said she did
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GiGi
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Please don't glibly "nix" MMS because you tried it and it "didn't work for you". It helps autistic children; it helps many people. Many people cannot use Salt & Co because it is very tough on the kidneys, blood pressure, and other factors. The liver has to survive if you want to live. Kidneys do not regenerate.
Study MMS before you kill it. I am using it in form of MMS enemas and MMS baths. I am also using Diatomaceous Earth. DE busts open biofilm. I am old enough at 81 to have accumulated a lot of biofilm. Biofilm hides parasites. Biofilm hides more than Lyme & Co.
And now to my Jane Fonda Walkout - A mile in 18 minutes -- in my living room because it is too cold and foggy outside.
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lpkayak
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i understand how you feel gigi. positive is best. but you know...when my mom had breast cancer she saw bernie siegle-a surgeon who stopped surgery to get ppl to cure themselves with meditation...and he said to use what works.
one child meditated on a fluffy white cat going around inside eating up the cancer germs...thats kinda violent-but it worked for her
i know so much i want to be well and riding and kayaking and not here...and i do that when i can. but having a place to vent is impt to me too...the outside world just doesnt get it. and saying "lymie" takes less pain for me than describing it...takes many more words.
but i do respect where you are coming from...positive is best.
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posted
I know this is getting off topic, but I don't think there is such a thing as "wrong attitude" when it comes to illness. If people cope by giving the disease or facet of struggling nicknames, it doesn't offend me.
Everything we feel about being sick is part of the healing process- the denial, the anger, the grieving, the helplessness, the hope, the fight, the acceptance...all of it.
People are where they are and I respect that- because I know I have been there or might end up there myself- If you are able to sustain positive thinking through all of it, that's wonderful! But I don't believe that we should be expected to do this gracefully.
glm1111
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Definition of a warrior: A person beyond all obstacles still manages to be successful. One who persevers in the end.
GiGi,
I respect all that you give to the board here, but I am truly dissapointed that you would post such a negative statement about this thread. Several people here were asking for this specific title of "Warrior".
Your statement is an afront to all the wonderful people that are posting here and fighting for there lives.
Gael
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lpkayak
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ramdom sharp pains:
has anyone equated this with killing worms???
the first day i had them in back sort of liver area just now had one in right knee...whew!
stabbing...makes me cry out...then goes...i hope im killing those suckers...
(and honest...i hate killing things...i catch spiders and put them outside...but fleas or bedbugs or worms inside me...cnat go that far)
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glm1111
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Ip.
Stabbing pains can be common with Lyme and I believe on the symptom list for parasites. You also posted that you spit what you thought was a worm out of your mouth.
They can come out of your mouth, and other orfices as well. I spit out a few of the egg shell blue ones myself.
P. S.
Your not alone with the killing aspect.I found myself feeling empathy for these critters when I first felt them dying. I quickly got hold of myself when it came down to me or them. They had to go!!!
Gael
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lax mom
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quote:Originally posted by GiGi: I do not come here much because I do not want to even think of myself as a warrior. I feel it is the wrong attitude and I do not want to give myself the name just as I do not call myself by a Lyme-name. Being a warrior and a Lymie does not get people well because it costs energy and stress. Energy always follows the thought.
Many of us got sick and more sick because of how we think.
How is this negativity helpful?
I am not staying sick because I am a warrior defeating these awful parasites. That is ridiculous.
Condemning those who are still sick, blaming their illness on them...because they choose an empowering name like "Warrior" is just as terrible as what the ID dr's do to us.
This thread is a positive thread of a group of strong, like minded, people who plan on being victorious over a disease (parasites) that has snuck in like a Trojan horse, hiding behind Lyme, and all the other co-infections, silently doing it's damage and trying to destroy lives.
If you want to hold hands with the parasites and sing a song with them while skipping through a meadow...have at it...but please do not send any negativity our way...we have a job to do and your negativity will hinder our progress.
glm1111
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This may be inappropriate to say, but I'm gonna say it anyway in response the liver flukes that lax mom got rid of.
Ya know the movie with Meg Ryan and Billy Crystal "When Harry Met Sally" when they are in the diner and she acts out an orgasim? And she is screaming "YES! YES! YES!.
That's just what I want to do when I see someone post that they got rid of some of these critters. Hope I didn't offend anyone, just thought we could use a laugh.
Way to go lax mom!
Gael
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lax mom
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surprise
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Well, I am not finding this process nearly as exciting (lol)
But it is exciting to see improvements with treatments, which I have had :-)
Lpkayak, I was also thinking Lyme when you described migratory pains. I have no idea where you are at with Lyme
(Know you are old timer and wise) but salt/C to me is also, for me I strongly believe, hitting Lyme. I was kind of surprised (ha ha) after all the Lyme drugs and herbs,
but there you have it. Yes, I am having die off too, still. xxoo
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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lpkayak
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well you got me laughing...any chance you could send a big O thru the computer?
from what i am reading...salt c does get Bb and everything else in the soup...its a complicated action-reaction scenario
2 yrs ago i had an igenex wb with 2 pos sig bands...llmds disagree about if more tx will help
i think i am going the route of changing my inside environment hoping to get thru biofilms to kill bugs and help my immune system get going
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glm1111
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O O O O O O O O O O O O O O
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Tammy N.
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Gael - that was LOL funny!
lpkayak - you are on your way! You have them on the run.
laxmom - that's great news!
I find it very empowering to see them expelled.
Since I ran out of herbs and was on a little break, and now I'm back on, they are coming out of me also.
Recently I stopped everything because I am having some weird sort of allergic reaction that is causing my right eyelid to be swollen, red and itchy. My LLMD and my ART practitioner don't know what it's from. The eye doctor called it "Contact Dermatitis".
I thought it was possibly related to a hair tinting product, then possibly LDN, then possibly a reaction to colbalt (B12), then I thought maybe the herbs??? So darn confusing. So I thought I would stop everything and see if it goes away. Well, it hasn't.
Since I stopped everything, I've been feeling a lot of old symptoms coming back quickly. Ugh. I don't want to lose ground.
So, in the last few days I've just stuck with the salt/c and herbs because I know I have to keep killing these damn things. They eyelid is still weird. And I'm not feeling as great as I was. Feeling a lot of auto-immunity stuff.
I'm anxious to get back on the LDN. I think I may restart that tonight. The pharmacists said my eye thing didn't sound related.
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lpkayak
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i just realized something-normally i am on 100mg doxy from eye doc for what he calles chronic infec=he doesnt say lyme...but i figure that is what it is and the 100 a day keeps itchy, blurry, dry sx away. since i started the salt i havent been on the doxy...i just forgot cuz the sx was gone. i usually cant stand it. i would rather take salt c for eyes than doxy...
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lpkayak
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gael-why do you double the c
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glm1111
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Tammy,
Did you get my pm a while back about salt possibly causing you to have dry eye? I know you want to stay on the salt/c and maybe it is part of a herx/infection coming out.
Google dry eyes + salt. Says salt can cause this You will also see some solutions that are suggested for this.
Hope you get this resolved.
Gael
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glm1111
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Ip,
What are you referring to when you say, why do you double the C?
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Tammy N.
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Gael - I thought I replied....maybe I didn't....sorry. Anyway, I don't have dry eyes. It is an irritation on the eyelid.
Maybe the salt/c is pushing critters through the lid. Should I just do herbals and stop the salt/c? I stopped for a few days but when it didn't improve, I just went back to it. (I hate to stop because I'm still quite infected.)
Not feeling great, and this is bumming me out. I have to try to keep my head clear. I have to try to view this as a bump in the road.
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glm1111
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Oh okay. If it's just on the eyelid then that's a different story. I have had tiny critters emerge from from tear ducts (form of grit) and from my eyelid. So, probably is part of the infection for you.
Have you tried any coconut oil on your eyelid? Don't get bummed, I do think it's part of the infection. I would go back on the herbs and stay on the salt/c. It will resolve itself.
Wonder what would happen if you increase the salt/c a little. If it gets worse, then it's most likely from infection. Salt purges and pushes out toxins. Hang in there kiddo
Gael
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Tammy N.
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Thanks Gael. It helps so much that you have been on this path before us, and have experienced so many of these oddities along the way. I appreciate the supportive words.
I have tried coconut oil. But only sporadically. Will give it a try with consistency.
Interesting thought on increasing the salt/c.
I was thinking also about maybe warm salt-water compresses on the eye. Not sure if that will further aggravate the skin or if it will help kill bugs if they are there.
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glm1111
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Your welcome Tammy. I would do just plain warm water compresses and alternate with cool ones to see which one feels better.
The other thing that comes to mind is to try some vaseline on the eyelid to restore moisture. Vaseline was a lifesaver for me when my kids were little and had diaper rash. Hope you get this resolved soon.
Gael
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lpkayak
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gael i just went back to look at posts...i could have sworn when talking about doses you said start at 1/4 tsp salt and 1000mg c even tho you doubled the c....it was the last sentence of the post...but i cant find it now...and i am awful at math...and sometimes i just see things wrong...so i guess i was mixed up.
so you take 1/4 tsp salt and 1/4 tsp c in a glass of water 3 times a day as maintenece?
nothing much happened to me with my 3 doses today. i feel pressure in left side of chest...i went and googled western medicine salt/health info and it was a bit scarey except knowing what mayo does to lyme patients i dont exactly trust them
my leg has continued to get wworse and i am really having a difficult time with mobility. for the first time since 94 i cant drive. i will need to call doc and interview some helpers tomorrow.
if you stop salt c a day and then go back the next day -is that a big deal?
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Ip,
You must have read it wrong because it's always equal amounts of salt to C. Drink extra water and it's important to do a warm water enema.Even better would be a colonic. Drink extra water.
Backed up fecal material and toxins could be the reason you are having trouble with motility and heaviness in your chest Sounds like you are loaded with parasites given that you had one come out of your nose and mouth.
Maybe just back down to two x a day until you can get a colonic or do an enema. You don't want to recirculate toxins. Important to get dead and dying parasites out of the lower colon.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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