posted
Spirocheta, I mentioned the time thing in the original post at the top -- it's a terrible symptom for me too. It's just this odd feeling of being completely ungrounded so "time" exists outside of me, and seems really fast all of the time (I feel like I just wake up and go to sleep with nothing in between, which is mostly accurate but the time in between seems so short now).
I also feel like part of why I can't get into the plot of a TV show or movie now is a) it's confusing, and I keep wondering why people are doing the simple things they are doing and b) I can't just be "in time" as you said, so I can't get swept away by anything as I'm never "in" it. But it's like that with everything now.
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
Haven't been around in a while because things are getting worse here on my end. The things that have improved are:
-Being back in time- at least being able to estimate and keep track of it again-- forget about PLACE, though. I can only deal with familiar places. New places are okay, but I get exhausted so fast in them because of the processing issues, I believe. -Less sensitivity to sound than before (it no longer feels like someone punches me whenever I hear a loud noise.) -Less photosensitivity
Before I had clearer thinking, but the cognitive processes could not engage, so I'd still have concentration, try and focus on something, and just hit a wall, like I couldn't. I had another attack last weekend, and now I have the characteristic "brain fog" (cannot think clearly), and things do not seem to be getting in at all, not even things I pay attention to.
The DR/DP stuff is gradually getting better, but I don't know if that is because I'm not as anxious anymore, either because I'm getting used to this, or part of my brain is wearing away where it lacks a certain kind of awareness.
I'm having trouble with TV shows that are under a half hour, or TV shows that I hadn't watched prior to the 12/28 incident. (Those I can tell what's going on.) I can't pay attention.
Anyone have eye issues? My eyes are getting so blurred all the time now, and worse when I am overstimulated or tired.
I have now become terrified that I have some kind of rapidly progressing dementia of some sort because all my tests are coming back normal, and I hope upon everything I don't.
How fast did everyone's symptoms progress to where they are now? Mine seem to be worsening week by week.
I think we need to explore this benzo connection. Is it because it makes us "feel" better and not notice? Is it anti-inflammatory? Or is it neurologically slowing us down, which is somehow helping? I try to talk to people about it, but because benzos have a bad rap and are controlled substances, I run into the problem of people using it as evidence this is a mental illness or that I am developing an addiction. But I feel like there is something chemical that is going on that might be helping with this.
Posts: 36 | From Connecticut | Registered: Jun 2012
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posted
I was just reading about benzos and pseudomonas aeruginosas infection, which can be opportunistic in immune compromise and are resistant to a lot of common antibiotics (I was looking through an old test that suggested I might have this and it was apparently overlooked by my doc, so reading up on it -- it does make me wonder if this could be another coinfection we get).
Benzos improved survival in a mouse study independent of their anti-anxiety (anxiolytic) properties -- but the researchers are not sure how.
J Burn Care Res. 2010 Jan-Feb;31(1):1-12. doi: 10.1097/BCR.0b013e3181cb8e82.
Mice treated with a benzodiazepine had an improved survival rate following Pseudomonas aeruginosa infection.
Dugan AL, Gregerson KA, Neely A, Gardner J, Noel GJ, Babcock GF, Horseman ND. Source Department of Research, Shriners Hospital Cincinnati, Ohio, USA.
Abstract Psychological stress has a high incidence after burn injury, therefore, anxiolytic drugs are often prescribed. Unfortunately, to date, no burn study has investigated the effects of anxiolytic drugs on the ability to fight infection.
This study was undertaken to determine if psychological stress, anxiety-modulating drugs, or both, alter survival following an infection. On day 0, 7-week-old male C57Bl/6 mice either received a 15% full-thickness flame burn or were sham treated (anesthesia and shaved), whereas controls received no treatment.
Mice received midazolam (1 mg/kg intraperitoneally) or saline daily and were stressed by exposure to rat in a guinea pig cage or placed in an empty cage for 1 hour a day, beginning on postburn day 1. For the survival experiments, mice either received bacteria after 2 or 8 consecutive days of predator exposure and drug treatment, which continued daily for 7 days after inoculation.
In a separate set of experiments, after eight daily injections of midazolam, mice were given lipopolysaccharide, bacteria, or saline and were killed 12 hours later. Mice that received midazolam had improved survival rates when compared with their saline-treated counterparts, and the protective effect was more significant the more days they received the drug.
For most of the cytokines, the bacteria-induced increase was significantly attenuated by midazolam as was the amount of bacteria in the liver. The protective effect seems to be independent of the drug's anxiolytic activity as there were no significant differences in survival between the predator-stressed and the nonstressed mice. The mechanisms responsible for the protective effect remain to be elucidated.
PMID: 20061831 [PubMed - indexed for MEDLINE]
Posts: 929 | From Massachusetts | Registered: Oct 2007
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posted
Spirocheta, re eye issues, I respond beautifully to drinking mangosteen juice - stops all Lyme eye symptoms for me, so you might give that a try.
Again, I want to say, for me, the sense that I was far away from everything, as well as no sense of time passing, both ended when I went on Armour thyroid - I tested low in T3, regular for TSH.
Posts: 13171 | From San Francisco | Registered: May 2006
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
I used to have this. I feel for everyone here who is or has gone through it. I'm with Cozynana on this one. Treating parasites and babs took it away for me.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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AuntyLynn
Frequent Contributor (1K+ posts)
Member # 35938
posted
For those of you with neurological symptoms (like depersonalisation, time warp, panic attacks, and general "brain fog") please be sure to look at this PA psychiatrist's website on Lyme.
posted
Not sure how to say this since its unfortunate we have this symptom but here goes...
I like that there's a thread discussing this bc it is really really difficult to go on everyday feeling like this...its reassuring to see people have gotten better and thanks to the tips from those who have gotten better.
I can not wait to 'wake up' from this symptom...
Posts: 183 | From ... | Registered: Oct 2011
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posted
gagamooppop- I agree! It's terrible that we're all suffering from it, but it's good to have other people who know EXACTLY what we're talking about. It is so hard trying to explain it to a person who never had the difficulties.
I tried to explain the difference between just regular "brain fog" and the cognitive crashes to my parents.
BRAIN FOG: You try and read something after you've been awake for 2 days and are drunk, and you know you can read it with much effort, but it's so hazy. But you can do it.
COGNITIVE: You wake up from a rested night's sleep, open a book, and it's in Chinese, with a few English words. But you could read it the night before.
I now have BOTH. I noticed the blurred thinking/brain fog-type stuff has started to increase as my Lyme symptoms (knee and leg pain, nerve pain), began to increase as well. The Lyme symptoms had been gone a month after going off ABs, and are now coming back.
The benzos don't seem to be working as well anymore. But I did hear that they eventually lose their effectiveness.
I have that same sensation every morning- I keep hoping to just "wake up" from it. But I can't remember what it was like to think the old way anymore, and it's only been 2 months!
Posts: 36 | From Connecticut | Registered: Jun 2012
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posted
Anytime is too long to feel like this...everyday for 1.5 years now...its unreal...literally...hah hah.
It's true...I have tried to explain to people bc to everyone I 'look great'...I've tried over and over to explain and again when I'm asked 'how are you feeling what's going on' and say 'same symptom' people still don't get it...
Just venting a little but its ok...you really can't understand it unless you experience it unfortunately and I wouldn't wish this upon my worst enemy.
Posts: 183 | From ... | Registered: Oct 2011
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But I did hear that they eventually lose their effectiveness.
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