posted
2 here with lyme and 2 with Raynauds. Neither of us had this syndrome prior to lyme & co's. How many others are experiencing this and does it go away?
-------------------- If you play at the beach, expect to get some sand in your shorts Posts: 223 | From central pa | Registered: May 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Yes, it is fairly common for those with lyme.
Yes, with treatment, there is usually improvement if there has not been too much damage to the nerves.
Treating lyme and other infections (and parasites and heavy metals) is important.
Certain supplements can also help along the way. MAGNESIUM & FISH OIL are the top two but there are also others. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
Search LymeNet Archives, in the subject line for past threads on this topic. There have been several. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
I have Raynauds Syndrome - have for many years...had Lyme much longer. In much the same boat as Lymetoo.
Posts: 416 | From Southeastern PA | Registered: Sep 2003
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Ditto.
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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Rumigirl
Frequent Contributor (1K+ posts)
Member # 15091
posted
I've had it since I was a kid, although not diagnosed until well into adulthood. I've had Lyme since I was a kid---looking back and figuring it out.
As a kid, I was always having to go to the nurse's office with frostbite in the winter.
I have been treating Lyme a long time, and it is not any better, unfortunately. It has been really bad this winter. If I am out for just 3 minutes in the cold, even with my gloves on and my hands in my pockets, and with boots and socks, I end up with frostbite. Pretty bad. I guess that it will never get better in my case.
In your case, hopefully it will get better, since you haven't had it so long. But you will need good treatment for long enough.
IVIG is often used for to repair the nerves from peripheral neuropathy, which you probably have. For that, you would have to be evaluated by a good neurologist who works with IVIG for this diagnosis. You would have to get a referral for this kind of neurologist from here or from your local Lyme support Group.
Posts: 3771 | From around | Registered: Mar 2008
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