posted
I'm wondering if everyone can share the top 10 new treatments that have worked for them over the last 12 months or so. Here's my thinking.... if a dozen or so people post their top 10, that would be a total of 120 treatments listed out... will help us all to get NEW TREATMENT IDEAS! Here are mine:
1) Dr. K parasite drug protocol 2) Rife / MRS 2000 / Bionic 3) Nutramedix products 4) Mercury chelation 5) Tinidazole 6) Exercise! 7) Addressing adrenal fatigue as explained in Strasheim's book "Beyond Lyme" 8) Dr. K's pyrolouria treatment 9) B vitamins 10) Paleo diet!
(If you only have 5 instead of 10, please share!)
Thanks!
Posts: 641 | From Nevada | Registered: May 2009
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
1) Parasites (ivermectin and others) 2) iMRS (magic mat) 3) Raw food diet - making medicine with my Blendtec blender 4) Exercise 5) Prayer
Can't say these are in a specific order.
Posts: 2232 | From USA | Registered: Aug 2009
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
1. Parasite (ivermectin #1, biltricide, alinia) 2. Dhea, progesterone cream (helped sleep, painful, irregular menstrual cycles) 3. Digestive enzymes 4. Nystatin/itraconazole(for yeast) 5. Funding a hobby I love to get my focus off lyme
These are current but I did two years of Orval's plus two years of Iv abx. The best one Iv was vancomycin. That 4 Years was invaluable to my wellness.
Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
LSG Scott - can you expound on that. Tumeric - 3 parts and salt 1 part? Is that correct?
How much do you use?
I should add to my list diegestive enzymes and serrapeptase.
Posts: 2232 | From USA | Registered: Aug 2009
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springshowers
Frequent Contributor (1K+ posts)
Member # 19863
posted
1 Detox Detox Detox 2 Parasite Treatments 3 Diet 4 Rife 5 Heat 6 Exercise 7 Integrative Treatment Technique* *If Antibiotics are necessary make sure your doing just as much of the supportive therapies you need for your immune system and detox. Preferably in a professional setting because they have the equipment we can not afford. Detox detox detox detox.
Posts: 2747 | From Unites States Of America | Registered: Apr 2009
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
Can people specify what they mean by detox -- is this addressing the MTHFR gene?
Posts: 3528 | From US | Registered: Apr 2007
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surprise
Frequent Contributor (1K+ posts)
Member # 34987
posted
Bicillin injections 2x a week for 6 months.
Tindamax 2 weeks on/2 weeks off 6 months+
Levaquin
Parasite treatments
Gluten free, healthy eating
Yeast treatments
Samento and Bandeol, HH2 capsules, Byron White herbs
Doxy and Biaxin
Quality high dose curcumin, quality high dose probiotics, milk thistle.
Sweating through Epsom salt baths, circulation with walking
-------------------- Lyme positive PCR blood, and positive Bartonella henselae Igenex, 2011. low positive Fry biofilm test, 2012. Update 7/16- After extensive treatments, doing okay! Posts: 2518 | From USA | Registered: Nov 2011
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Catgirl
Frequent Contributor (5K+ posts)
Member # 31149
posted
Great idea Dan!
Finding a really good lyme specialist Balancing yeast with probiotics, s.boulardii, herbs, diflucan, compounded nystatin and rotating yeast products (I needed way more probiotics than I was originally put on). Parasite treatment (iver, alinia, bilt, salt/C) Energy testing Amalgam removal Coffee enemas Exercise every other day or 3rd day (light weights)--this is by far the best detox I've used Reducing fat (lower fat than I was eating) Adrenal support(dhea, adrenal herbs) Byron White herbs Rotating herbs (on same herb no longer than 3 or 4 weeks) Enzymes
-------------------- --Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together). Posts: 5418 | From earth | Registered: Mar 2011
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
So only two entries where anyone even mentioned antibiotics.
I haven't found much that has worked but I got back to 50% better on hardcore IV antibiotics and am trying parasite treatment now. But as far as feeling better my list is:
Razzle
Frequent Contributor (1K+ posts)
Member # 30398
posted
1. Getting rid of mold in the house 2. Flagyl + Andrographis 3. Progesterone support 4. Molybdenum 5. Vitamin B12 shots once a week (instead of less often) 6. Exercise 7. Making my bed more comfortable (so I can actually sleep in it) 8. Finding a biological dentist who is actually worth going to! 9. Avoiding potatoes 10. Home improvements - cleaning up piles of junk, fixing the broken dishwasher, etc.
-------------------- -Razzle Lyme IgM IGeneX Pos. 18+++, 23-25+, 30++, 31+, 34++, 39 IND, 83-93 IND; IgG IGeneX Neg. 30+, 39 IND; Mayo/CDC Pos. IgM 23+, 39+; IgG Mayo/CDC Neg. band 41+; Bart. (clinical dx; Fry Labs neg. for all coinfections), sx >30 yrs. Posts: 4166 | From WA | Registered: Feb 2011
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posted
In no meaningful order, and not in the past 12 months as I've been well for a few years and haven't treated in the last 12 months:
1. Bionic 880 photon treatment 2. Eliminating mold 3. Treating parasites 4. Fermented foods for the gut 5. HCl for the gut (Thorne Biogest) 6. Diet - plant based with meat/eggs/dairy, but mostly plants, and this was impossible at one point due to gut damage 7. Exercise - pilates specifically did more for me than weightlifting because it reaches the deep muscles 8. Vitamin D levels 9. Paying attention to adrenal fatigue (there are great websites with info on combating adrenal fatigue) 10. Rest/sleep
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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*Turmeric capsules = anti-inflam (joints, soft tissue) *Drinking mangosteen juice = anti-inflam (eyes, intestines) *Taking Armour thyroid tablets = "more present" *Taking Vitamin D drops = more perked up *Detoxing every 5 days in a portable sauna tent = getting less chemical-sensitive) *Taking Vitamin C powder capsules = keeps me from getting bugs all the time
Previously, I'd have to say oral clindamycin abx kept joint and soft tissue pain at bay for 5 years.
Also, drinking noni juice and taking grapeseed extract capsules stopped lipomas.
Posts: 13116 | From San Francisco | Registered: May 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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WPinVA
Frequent Contributor (1K+ posts)
Member # 33581
posted
This is a great thread! I'm not all the way there yet, but:
- yoga - detox - Nutramedix products plus dry brushing (never felt Epsom salt baths did anything) - sauna - addressing adrenal fatigue through supplements and lifestyle - energy supplements - NT Energy, COQ10 - addressing MTHFR mutation - thyroid meds - these were HUGE - abx - there is no way I would have gotten to this point without abx - I was just too sick.
Posts: 1737 | From Virginia | Registered: Aug 2011
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-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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posted
Has anyone else recovered from adrenal fatigue to the point that they can do cardio exercise again? I used to be able to do a lot of cardio, but after some stressful events, my cardio tolerance has dropped to almost zero.
Posts: 641 | From Nevada | Registered: May 2009
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quote:Originally posted by dan67: Has anyone else recovered from adrenal fatigue to the point that they can do cardio exercise again? I used to be able to do a lot of cardio, but after some stressful events, my cardio tolerance has dropped to almost zero.
Yes! I prefer sprints to long ended cardio, but I can do whatever workout I want.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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Ellen101
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Member # 35432
posted
Systemic enzymes!!!
Posts: 1748 | From United States | Registered: Dec 2011
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posted
I'm taking the Detox and Lyme formulas from Byron White. Apparently there are layers of illness that need to be "unraveled" so I have also taken the parasite formula and lots of antioxidants, water, green smoothies etc. Trying to unravel the mystery that many doctors don't even understand. Byron WHite is giving another public teleconference this month on Radiation. Which also effects those of us fighting other illnesses. It will be on April 24 at 5:30. You have to sign up on their website so they can send you the number to call. They don't sell to the public so the teleconference isn't a sales pitch. If it's like the one they did last month it will be full of quality information. INFO is key!
Posts: 29 | From San Francisco | Registered: Feb 2013
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
None of these are 'new' but what has helped the most.
IV Rocephin in combination with orals Wobenzym (enzymes) DIET (paleo - grain, dairy, sugar, low carb) Warm pool therapy 2 x a week Got strong enough with water therapy to hike the mts Adrenal support Meditation DIET (whole clean organic foods) Iodine Various supplements.....
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
PS DIET!!!!!!!!
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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posted
1. Bicillin shots 2x/week 2. Diet changes (eliminating things I'm allergic to--wheat, soy, etc) 3. IV Vancomycin 4. Biaxin+Bactrim for neuro pain 5. IV Glutathione 6. Xymogen shakes for GI health (OptiCleanse GHI, GlutAloeMine, and i5) 7. IV Clindamycin 8. ADRENAL SUPPLEMENTS
--no particular order
Things that didn't help me -IV Rocephin (caused lots of problems) -IV Zith
-------------------- You name it, I've got it. Full-time medical anomaly. Posts: 432 | From Southeast | Registered: Aug 2011
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
This is something I have only begun to explore, but I would like to share that I have spent hours researching other health boards with lyme afflicted people posting , and to my surprise , the only thing I read that encourages me significantly is COLLOIDAL SILVER .
Some people are afraid of argyria, for good reason, but Dr Mercola has an article on safe usage of colloidal silver that you can easily google . There are over a hundred comments from silver users there who have used it safely , and many made their own . None have had argyria .
I also found an article in Australia about a man desperately ill with lyme who tried to get well and nothing worked til he used silver . He now makes his own and is well and was photographed by the newspaper for the interview. His story sounded extremely credible.
The thing that is causing me angst is that many sites like web MD or Mayo ridicule it ! And it is a fact that a scientist from Willy Burgdorfer lab found it killed lyme, which was published in DR Farber's book.
I am not a scientist , but am inclined to believe this - despite being a huge skeptic in general. Why ? When I take silver with my lyme herbs I have HUGE (!) herxes that knock me flat !! If I take it with ivermectin I have same result . Not a scientist , but I question the idea that biofilm is being destroyed . Even without herbs, I have a strong herx similar to an antibiotic drug , but no yeast nightmare .
Others here might want to google "colloidal silver lyme improvement or cure ". I used a variety of search words and found MANY links, and am quite surprised how many people have posted that it improved or cured them .
It is not my intent to present myself as a scientist or to mislead anyone . I am just a desperate seeker who is generally skeptical of most things without evidence . Do your own search , and you will probably find many people who say they DEFINITELY felt better after using it . Not one report of argyria either .
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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posted
Top ten: 1.Photon therapy 2.Diet-gluten/sugar free, whole organic foods 3.Detox-activated charcoal, chorella, epsome salt baths, detox foot pads... 4.rest 5.postive people around 6.fun 7.Hands on healings 8.Very Low doses of natural antibiotics, GSE, colloidal silver, mangosteen juice. 9.excercise 10. relaxation
A note on colloidal silver, when my son was really sick he couldn't tolerate it as it was too strong. Now he can take it as he is almost well. In our experience it hits lyme hard.
Posts: 372 | From british columbia | Registered: Feb 2012
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droid1226
Frequent Contributor (1K+ posts)
Member # 34930
posted
Life+Lyme, how do you know Dr. H is experimenting with Colloidal Silver?
dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I'm still working on inflammation in auditory area but the following seem to have made a difference for me in my struggle with this illness:
1. Mepron and Omnicef (Biaxin and Zith may have increased my tinnitus but were needed with this to work) 2. Byron White herbs (AL complex) 3. Samento and Banderol 4. Cilantro and chlorella 5. Fish Oil 6. Exercise 7. Yoga 8. Valtrex and Lysine 9. Acupuncture! 10. Kefir and Kombucha Tea
Posts: 2386 | From New England | Registered: Aug 2011
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posted
1. Ceftin + Biaxin 2. Daily "real" sauerkraut or other fermented food - goal of 1/2 cup per day 3. Volunteer work that gives me purpose outside of myself
#2 was so critical because it addresses my significant constipation issues. I feel much better and more energetic when I'm not "full of it". Hello, toxins! Go figure.
#3 is important for me psychologically, but I don't know that it would have been possible without all the other treatment I've been doing.
-------------------- Garden
"Fibromylagia" for 8+ years Pos IgeneX WB per both Igenex and CDC Pos Neuroscience MyLymeImmuneID Started tx for Lyme in March 2011 Posts: 245 | From East Coast | Registered: May 2011
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
canadianmama , The colloidal silver I have been using is so powerful at 1 tsp . I think I will need to go to 3 tsp daily , and I can barely stand upright with one. I have been treating a LONG time, so I think it HITS LYME . I am not sure about coinfections, but think it may bec of reading on other health boards .
The silver seems like taking a drink of water , is tasteless . The first day herx was noticeable, and each day has been more intense. I too find it a powerful killer and the only thing I am consistently reading about at other health boards that seems to work for a variety of people. There are quite a few I found who have their own lyme blogs now and feel silver was a critical helper in improvement .
I hope I will start feeling better also . I defintely feel worse now!
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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nefferdun
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Member # 20157
As long as I stick to the diet I am drug free and pretty much in remission - but PR is incurable so things are tenuous.
Other things in the mix to break down biofilm are: Lumbrokinase/boluoke/jiaogulan/danshen/ wobenzyme LipoPhos EDTA
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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gigimac
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Member # 33353
posted
Annxyzz, what brand of silver and what ppm are u taking?
Posts: 1534 | From Greensboro NC | Registered: Aug 2011
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posted
1) Diet (Paleo like, focus on vegetables but not only, DAIRY is a killer) 2) Detox (chlorella, spirulina) 3) Colloidal and nanoparticle silver 4) LDN 5) Suplements: niacin, selenium, Vit E 6) Alpha lipoic acid 7) Flaxseed oil (omega3)
Canga
Posts: 14 | From Poland | Registered: May 2012
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annxyzz
Frequent Contributor (1K+ posts)
Member # 20404
posted
I am using Sovereign Silver. Cockapoo is using Apex and feeling better with that brand from her practitioner LLMD.
There are studies from Britain that even show silver effective at killing cancer cells - found this at Motley Fool Caps online . That was a shocker for me !
There is an interesting blog called "knowlyme" with posts on silver usage and results.
-------------------- annxyzz Posts: 1178 | From East Texas | Registered: May 2009
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posted
I see so many people saying Parasite treatment, my original LLMD wanted me to do 3 weeks Albendazole before treating my Lyme but she was too long distance and i didnt start treatment.
New LLMD is aware prev dr wanted this, however he skips this straight to Lyme specific antibiotics.
Should I ask Dr to consider 3 weeks albendazole before treating my Lyme?
Posts: 52 | From USA | Registered: Feb 2013
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posted
UP
Posts: 641 | From Nevada | Registered: May 2009
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MichaelTampa
Frequent Contributor (1K+ posts)
Member # 24868
posted
Here are the top ones I've started within the last 12 months, given in alphabetical order:
1. Amino acids, all-out focus on each one 2. Borax 3. Canada Dry diet tonic water 4. Coffee enemas 5. Diosmin and hesperidin 6. John Douglas workshop treatment 7. Treatment for cavities and cavitations
Here is my all-time hall of fame, broken into three tiers. Tier one the best group; tier three the least great group, but still all listed here have been great, they have been better for me than other very good treatments that haven't made these lists.
Tier 1
1. Antiparasitic full moon treatments using biltricide, ivermectin, pyrantel pamoate, albendazole, alinia, and supporting herbals
2. Borax (accidental overdose caused scary herx but appears to have wiped out protomyxzoa rheumatica, a.k.a. FL1953)
3. Coffee enemas (toxin circulation and toxin elimination portions of detoxification)
6. Hormone supplementation (vitamin D3, hydrocortisone, thyroid hormones T3 and T4, testosterone, DHEA, pregnenolone) and herbs to balance estrogen (gave me the energy to make it through varoius treatments listed here; true healing appears to have occurred as I am using much less of these now)
7. John Douglas workshop treatment (he killed my entire borrelia infection)
8. Low-carbohydrate diet (got control of candida/fungal infection)
9. Meditation CDs, brands Holosync and Lifeflow (trigger toxin circulation portion of detoxification and perhaps balance brain hemispheres)
10. Regulat, serrapeptase, and cistus incanus tea (break biofilm)
11. Treatment for cavities and cavitations
Tier 2
1. Allergie-Immun (trigger toxin circulation portion of detoxification)
2. Antibiotics intravenous ertapenem (brand name Invanz) with oral tindamax and alinia rotated
3. Low-fat diet (was needed until protomyxzoa rheumatica and circulatory system treatments)
4. Neuro-cranial restructuring (improved sinus circulation and improved cranial and body-wide bone alignment/posture)
5. Periodontal grafting surgery
6. Reduction of exposure to wireless signals and fluorescent lights and devices to help improve response to exposure (Philip Stein watch and EarthCalm and GiaWellness home systems and pendants)
Tier 3
1. Angioplasty for CCSVI
2. Canada Dry diet tonic water (contains quinine to treat babesia)
3. Chlorella (toxin elimination portion of detoxification)
4. Detoxamin (toxin circulation and toxin elimination portions of detoxification)
5. Nutrient supplementation including essentially all amino acids, vitamins, and minerals along with some antioxidants
7. Oxygen concentrator (before lyme diagnosis; improved oxygenation of blood and increased energy; likely helped immune system lower level of infection)
8. St. John Clark Pain Treatment Center treatments (improve bone alignment/posture)
9. Urine as nasal spray (balance/train immune system)
10. Willard Water (enhance assimilation of water and food in damaged digestive tract and help heal digestive tract)
Posts: 1927 | From se usa | Registered: Mar 2010
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posted
MichaelTampa, I just PM'd you. I'd love to hear more about the borax... what dose? Brand? Side effects?Any articles about it? Thanks.
Posts: 641 | From Nevada | Registered: May 2009
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have helped me the most. That said I still have major allergies, gut, and intestinal issues.
Posts: 14 | From Kansas | Registered: Jun 2013
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posted
Michaeltampa and Dan67, yeah I'm interested in the borax regimen too! Is it a powder and is it ingested, what brands to buy, what dosage, etc....
Posts: 33 | From tri-state area | Registered: Mar 2013
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