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» LymeNet Flash » Questions and Discussion » Medical Questions » Long-term Babesia treaters - please check in! (Page 2)

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Author Topic: Long-term Babesia treaters - please check in!
RC1
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Gmb,
Coartem affects the QT interval so you just have to be careful with that. Macrolides, Diflucan, and Tinamax are out. I have taken it with Mino and Ceftin. I continued my supplements.

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gmb
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It also messes with Beta Blockers so I needed a 1 month pass from my PCP to stop Atenolol. One good thing thru 15 months on IV was I had my BP taken weekly on nurse visits. For some reason my BP has been the lowest in many many years, and I have been on 1/2 dose for three months now, so maybe time to quit it anyway.

I think my Buhners herbs and other supps would be OK too, but my LLNP is cautious at times, even though she has had me maxed on Rx thru most of my treatment.

I think Magnesium would also be important to stay on given my frequent calve cramps upon awakening when making that first stretch of the ol' legs.

thanks... how did coartem work for you?

gmb

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Catgirl
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I agree with Mlg and Nefferdun. My cycling babs/proto like symptoms are occasional air hunger, am sweats, chills, occasional hot flashes, occasional stiff neck and occasional insomnia. I think I have both babs and proto (have other proto symptoms), but my babs symptoms could just be proto or a mix. I also have more co infections.

For someone like me, the best way to improve is to focus on the proto and cut the fat because it cuts the biofilm so I can get at the rest with meds, herbs, parasite stuff, etc. No one would know they have this bug unless they were looking for it. Some proto symptoms have been considered to be babs, which is why so many docs miss it. I thought all of my babs/bart like symptoms were babs and bart (not the case).

Anyone dealing with babs should consider proto, especially if they can't get rid of their unrelenting babs symptoms. This bug is more common than you'd think. I'm pretty sure I've had it for at least 30 years and never even knew it (had some proto symptoms back then).

--------------------
--Keep an open mind about everything. Also, remember to visit ACTIVISM (we can change things together).

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RC1
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I really like it because its so easy to take, after a round of it I'm completely symptom free of Babs for a couple of weeks. It creeps back though.

Now I am pulsing it every 10 days and doing Artemisinin pulses in between. This seems to be working.

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BoxerMom
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RC1 - I would like to hear your Coartem schedule in more detail. Could you PM me?

--------------------
 - Must...find...BRAIN!!!

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gmb
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Started Coartem on Saturday. So far I only had mild early morning sweats upon awakening at 5 am today. I haven't had any sweats in a long while, and never anything heavy.

My LLMD said I should see some symptoms flare in the first 3 to 5 days, so I see this herx as positive that it's hitting something and not wasting my time.

I think BoxMon should also be starting her round pretty soon.

I'm doing 2 pill twice a day for five days then take seven days off, then repeat. I stopped my Atenolol and all ABX on Thursday. I also stopped CSA blend, Cats Claw, and GSA earlier last week to clean my system.

I'll keep posting on progress.

later

gmb

[ 09-23-2013, 08:21 AM: Message edited by: gmb ]

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gmb
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Yesterday I completed the first five days dose of Coartem. Other than the one morning of mild night sweats it has been pretty uneventful.

This morning a woke up with less tingling in my feet, slightly less foggy head and reduced pressure in the brain. I had pretty good day.. the best in many months

My only concern is that over the past week to ten days I think I've gained about seven or eight pounds and am a bit bloated in the gut.

I can't see how Coartem would be the cause.

Two weeks ago on Sunday 9/15 I stopped taking Crypto/Sida/Alchonia blend, Cats Claw, and Atenalol.

On Thursday 9/19 I stopped Diflucan, mino, alinia, and Bactrim.

Does anyone see what may have caused a metabolism change to contributed to the weight gain? I did read in one of Buhner's books that Sida does contain a small trace of something that they use in higher doses in with weight control meds.

Any help?

gmb

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lymeboy
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Boxermom, I believe my Malarone/Mepron treatments may have become resistant as well. I feel horrible. Depressed and suicidal thoughts, Malaise, grumpy, woozy, I just feel SICK in and out.

I have the entire list of parasite abx you've mentioned, but hesitate to start because of my already high abx load. My liver can only do so much.

Art only made me feel lousy. I don't think it was a herx, it felt more like toxicity. WHen I stopped, I started to feel better.

Could you tell me how you rotate these drugs? do you take them at the same time as Mepron/Malarone? Did you first try an herbal parasite treatment? Did you drop some of your herbs first?

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gmb
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lymeboy,

try listing your meds later today. BoxerMom is on the left coast and mostly posts later in the evening. If you post late in the day she may have better chance to see it listed higher on the page.

gmb

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BoxerMom
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lymeboy - There is no right combo for herbs and meds. It is largely trial and error.

I cannot get by on just meds anymore. Resistance? Maybe. I'm also down to the deeply entrenched lingerers, and they are hard to reach.

And I'm not clear on what remains unaddressed. Viruses, certainly. Maybe more.

You certainly describe how I feel during a Babesia flare. If Art doesn't feel right, start trying others. Grapefruit Seed Extract is good. It's cheap at Amazon.

Cryptolepsis and Sida Acuta from Woodland Essence are helping people.

I bought high concentration stabilized oxygen (tincture) and I'm getting good die-off plus improvements in mood.

Most herbs are compatible. Do your best to protect your liver. These infections have done worse things to my liver than any abx or herb.

I hope this is helpful. Feeling cruddy today, so can't put together a more thorough response.

Mostly, pick something to try so you don't keep backsliding.

--------------------
 - Must...find...BRAIN!!!

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Keebler
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-
Similar thread with complementary detail:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/125114

Topic: Long-term Babesia treaters - please check in!

also started by BoxerMom - July 12, 2013
-

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GretaM
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I took A-BAB for the first time yesterday, and CSA in pom juice yesterday.

This morning I had the runs.

I am trying to figure out if it's a herx, or a reaction to A-BAB or something I ate, or a stomach flu.

Has anyone else had the runs with A-BAB?

Thanks.

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beths
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How much CSA are we suppose to take?
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gmb
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From Buhner's web site:

"Dear Stephen,
Please post the dosage for Sida acuta, ailanthius and whatever else you are now recommending for babesia that is not in the book…Thank you.

Stephen’s response:
Sida acuta: ¼-1/2 tsp 3x daily, Ailanthus: from 5 drops 3x daily to ¼ tsp 3x daily. Sida acuta/ Cryptolepis/ Alchornea cordifolia blend: ¼-1/2 tsp 3x daily. You could as well do ¼ tsp of each of these three tinctures 3x daily."

My comments:
Some say higher doses are needed. I ramped up to 1 tsp 2x/day for about five or six months with no noticeable improvements.

gmb

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GretaM
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For detox I am

-drinking detox tea (burdock, nettle, dandelion, lemon),

-Eno (Canadian version of Alka Seltzer Gold),

-dry brushing,

-Epsom salt soaks OR Epsom salt cream

-Drainage Tone (Energetix)

-Liver Tone (Energetix)

-Milk Thistle

-Ornithine

And honest to goodness my energy level is good today-but I am SO darn cranky!!!!

Argh!!! Grrrr!!!

Why the crankiness? I normally attribute crankiness to bartonella.

Was anyone else cranky when they started babesia treatment?

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BoxerMom
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I hated everyone.

--------------------
 - Must...find...BRAIN!!!

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GretaM
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Haha! Ok thanks Boxermom!

So I know what to expect for the rest of the Christmas season...

Any other strange herx symptoms in store for me?

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GretaM
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Noticed sore ribs and leg joints last night.

Bit of a headache today-doing some IV glut.

Gonna reduce the drops of A-BAB today.

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GretaM
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IV glut is a godsend. It really is.
Posts: 4358 | From British Columbia, Canada | Registered: Jun 2013  |  IP: Logged | Report this post to a Moderator
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